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New Member

Date Joined Jan 2010
Total Posts : 17
   Posted 1/25/2010 3:46 PM (GMT -6)   
Hi all!

I've been reading for a while... so I thought it was time to jump right in! I got DX'd with rheumatoid arthritis in the summer of 08. After complaining of frequent fevers that consisted of body aches and a flushed face, but weirdly no actual increase in temp, my rd diagnosed me with fibro. (Dec. 09) I have to admit that I was one of those people that didn't think fibro was a real disease, so I was REALLY surprised to get diagnosed with it. REALLY REALLY surprised. I've since done a bunch of research and between that, and how crappy I feel, I've decided that fibro is real. blush

Right now my RA is pretty well controlled. But feeling like I've got the flu all the time is the pits. I spent the whole weekend in bed (no small feat with 7 children!) and still don't feel rested. I guess it doesn't matter if I rest or don't rest, Im gonna feel exhausted. I do have a bladder infection right now, so maybe once that is gone I'll feel a little better.

Anyway, I look forward to learning a lot from you guys!

RA, Fibro, Migraines

Enbrel, methotrexate, lodine, sertraline, relpax, nortriptyline, gabapentin, and vicodin

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 1/25/2010 5:14 PM (GMT -6)   
Great that you finally posted...ya i too was always and still am so bleeding drained of energy i was very ill for quite some time n in hospital from other issues but i am starting to climb out a bit more each day...i hope you stick around and get to know the family here this hw and the ppl make living each day just a bit easier for me and i am sure for so many others..T/C,,BLESSINGS...LYN
                                Co Mod for Crohns, Anxiety/Panic, Alzheimers
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
                                Donate to
                        HW FRIENDS N FAMILY TRULY DO UNDERSTAND                                                 

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 40405
   Posted 1/25/2010 5:14 PM (GMT -6)   
Hi Leila,

Thanks for joining us. We always love to have new members join in. I was a lurker for a while too, but so happy that I joined the group.

If you get a chance, pop into the fibro101 thread. Second thread on the forum. There is a ton of information in it and it will answer many questions you may have and let you know that you are not alone in this.

You have really come to a good place full of wonderful people. I think you will be happy that you joined us.

I hope that you are having a wonderful day, and that you keep posting.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 1/25/2010 5:22 PM (GMT -6)   
Hi Leila!

Beautiful name...I love it. And you are not alone in being doubtful about fibro. A lot of the world is also...even part of the medical community. But those who are educated or who suffer with fibro know that it is very real.

I'm very glad you decided to join us!! I'm sure you have some great tips on how to survive fibro with 7 kids. You are an amazing woman to make it this far! I'm in awe~~

Warm hugs,
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 1/25/2010 6:09 PM (GMT -6)   
Welcome to our fibro family Leila! I'm sorry that you found out first hand how real fibro is.
I was a lurker too before I joined, but so glad that I did because of the wonderful people
here. There is always someone to help, we're like family. We understand the ups and downs
of living with a chronic illness and we like to laugh here too!

You must be one busy Mom, seven children! I give you and all the moms who still have
kids at home alot of credit. It takes alot of energy to raise a family. I'm a grandma now and
my little grandaughter can wear me out.

Hope you are feeling better soon. Soaking in a hot bath helps me when I'm achy.

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Forum Moderator

Date Joined Apr 2005
Total Posts : 17060
   Posted 1/25/2010 9:21 PM (GMT -6)   
Hi, Leila, and welcome!  I'm glad you decided to join our fibro family!  We love to get new people here.  You will learn a lot, get a lot of support, give support, and just have some fun, too!  We do like to laugh on this forum.
Seven children?  Wow!  That's a lot of work.  But, that's a lot of help, too!  I hope you have delegated some duties to the kids that are old enough.  I think Mom could use a hand.  I'm surprised you could stay in bed but, actually, that's not good for fibro.  You do need to keep moving.  Sitting and laying to much will make you stiff as a board and make the pain worse.
I hope you will have more energy once that bladder infection has cleared up.  They can take a toll on a person and you do have to be quite active since you have such a large family. 
Many with fibro have a big problem getting good sleep.  I go to bed around 10 PM and am up around 6-6:30 AM and am still tired.  I wake up many times during the night and that's part of my problem.  I don't go into REM sleep where your body starts healing itself.  Most of us are dealing with that.  So, fatigue seems to go with the territory.
I am so glad that you joined in and am looking forward to getting to know you better.  I hope to hear more from  you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

New Member

Date Joined Jan 2010
Total Posts : 17
   Posted 1/26/2010 6:22 PM (GMT -6)   
Thanks for the warm welcome everyone! And Sherrine thanks for the advice about keeping moving! I had to laugh though, because my version of "staying in bed" involved making meals, helping my youngest daughter (4 yrs) locate her favorite panties, doing 6 loads of laundry, and wrapping a birthday present. But I did most of these things while in my pjs... And I did lay down in between, so in my addled mind, I was practically bed ridden!

Thanks again.. You guys are awesome. It's so nice to chat with people who literally "feel my pain".

RA, Fibro, Migraines

Enbrel, methotrexate, lodine, sertraline, relpax, nortriptyline, gabapentin, and vicodin

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