how long have you had your fibro?

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ashphobiax
Regular Member


Date Joined Feb 2009
Total Posts : 42
   Posted 1/27/2010 7:27 PM (GMT -7)   
since i was 11, and i am now 21.

i feel too young, to have this :(

fitlissa76
Regular Member


Date Joined Jan 2010
Total Posts : 51
   Posted 1/28/2010 3:57 AM (GMT -7)   
I was just diagnosed a couple of weeks ago, but in all likelihood I've had it for many many years.

myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 1/28/2010 5:26 AM (GMT -7)   
I was diagnosed in January of 2007, but I think I had it for a few years before that.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, prilosec, nabumetone, hydrocodone, c-pap machine.


Myself 09
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Date Joined Dec 2009
Total Posts : 5876
   Posted 1/28/2010 9:10 AM (GMT -7)   
Diagnosed in 2005. Sister was diagnosed in the early nineties. Brother has never been diagnosed, but assuredly does have fibro.

Remember: it has nothing to do with age.
Fibromyalgia DX 2005. Ulcerative Colitis, arthritis, TMJ. Family History of Fibro--2 out of 3 siblings diagnosed.

There are three kinds of people in the world: ones who see the glass as half-full, ones who see the glass as half-empty, and others who see a big crack in the side which is leaking all over their %$#@# foot.


Irish Babe
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Date Joined May 2007
Total Posts : 1371
   Posted 1/28/2010 9:15 AM (GMT -7)   
I was finally dx'd almost 4 yrs ago, I have had this all my life. In my house I heard 'everyone' gets that or it's 'growing pains'. I believe my DM has this, also, which would explain why 'everyone' has it.  shakehead
 
No age is a good age for this, but there are a lot of ppl here who have had this for many yrs and refuse to 'give up'. It is a big pain in the Everything!, but don't let it get the best of you. Many of us have gone on in school, gotten married, had children, worked outside the house and very hard inside the house, too. We have tried for yrs to figure out why we were so tired, forgetful, sore, etc..., and finally got an answer. You are young and have the answer. Use that knowledge, research everything you can. Come here and ask ??? share and vent. We all try to help each other w/ info and humor and compassion. We know the road you are walking. It doesn't have to be lonely, we are all there w/ you.
 
Check out Fibro 101 on the 1st page. There is a lot of good info there, dealing w/ so many topics.
 
I hope you are feeling better today.
 
God bless.  Alice.

crazykitty
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Date Joined Jul 2009
Total Posts : 4796
   Posted 1/28/2010 11:54 AM (GMT -7)   
The short answer is too long! wink
 
Hugs, Robin

Marlee2
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Date Joined Aug 2007
Total Posts : 6067
   Posted 1/28/2010 12:55 PM (GMT -7)   
Hi Ashphobia and welcome. I was blessed and didn't start having symptoms til my late 40s and have been dxd for I think 7 yrs now or somewhere around there.
 
I don't know what it would be like to have it at such a young age but like Alice said she has lived a full life with it and many others have too.
 
We are always here to get you through it.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


RedDiane
Veteran Member


Date Joined Jun 2007
Total Posts : 906
   Posted 1/28/2010 2:08 PM (GMT -7)   
I got it when in 1984 when I was 28. It has gotten worse every year since, but I'm still going. Maybe, before you get to be my age they'll have a cure or at least better treatments. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40574
   Posted 1/28/2010 2:31 PM (GMT -7)   
Hi Ash,

I am sorry that you have had fibro since such a very young age. It must be so hard to deal with. But like as was stated above, maybe they will find a cure for it. And you can still live a full life. You learn to adapt to things. You learn to cope. Take life one day at a time and see what it brings you. And remember you have us to help you through things.

Best wishes for a wonderful day.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 1/28/2010 7:27 PM (GMT -7)   
Dx in 2008, but probably had it for quite a while before that.
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


Shall
New Member


Date Joined Jan 2010
Total Posts : 15
   Posted 1/28/2010 7:40 PM (GMT -7)   
Ihave just been diagnosed with an unspecified Connective Tissue Disorder. But reading symptoms of Fibromyalgia sounds more like my problems. My rhemy didn't mention this. Is there a specific test?

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/28/2010 8:45 PM (GMT -7)   
Shall said...
Ihave just been diagnosed with an unspecified Connective Tissue Disorder. But reading symptoms of Fibromyalgia sounds more like my problems. My rhemy didn't mention this. Is there a specific test?


The test that was done on me was to see if I had tenderness in at least 11 out of 18 specific "tender points". I did. Here's a link that explains a bit more:

arthritis.about.com/od/fibromyalgia/g/tenderpoints.htm

I believe diagnosing fibro also may include ruling out other possible conditions, but there are other more knowledgeable people on this forum who can speak to that. You might want to read the "Fibro 101" post at the top of this forum.

Good luck!
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 1/29/2010 10:37 AM (GMT -7)   
Since 1954... or as far back as I can remember. I've always hurt and thought it was part of the human condition. Thought gymnasts and ballet dancers were so brave to do what they did with all the pain it must cost them... Glad to know that the whole world doesn't feel this way.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 1/30/2010 5:32 PM (GMT -7)   
Definately since getting the wonderful flu shot about 12 or so years ago. I had arthritis before that (since I was 7) and this
kicked the arthritis into high gear and brought out the fibro.....all those glorious chemicals being pumped into the bodies to
destroy it!!! Wonder why we're so screwed up...all in the name of modern science. Of course, they are FDA approved even
though they know they hurt us....did I miss something here? shakehead

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 1/30/2010 11:25 PM (GMT -7)   
I was diagnosed 30 years ago. It's been a long haul. It wasn't as bad at first and only had flares maybe twice a year. Now it is a constant struggle and I need to take percocet to get by with the pain every day.

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 1/30/2010 11:25 PM (GMT -7)   
I was diagnosed 30 years ago. It's been a long haul. It wasn't as bad at first and only had flares maybe twice a year. Now it is a constant struggle and I need to take percocet to get by with the pain every day.

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


willowsgrandma
Regular Member


Date Joined Jan 2010
Total Posts : 78
   Posted 1/31/2010 3:26 PM (GMT -7)   
i am 62 and was diagnosed in april. my condition (RSD) is getting worse. i am taking lyrica 75 mg. 4x daily with minimual relief. can anyone relate? thanks

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 1/31/2010 10:45 PM (GMT -7)   
I'm too old to remember when I was painfree!! LOL

I was officially diagnosed last year, but I've had it for many years....probably as far back as when I was a teenager, and I'm 47 now. I'm pretty sure my hip pain has been there for that long as well, and my pelvic pain has been with me for about 3 years now.
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS
Medications: Oxycontin, Tramacet, Cymbalta, Nortriptyline
Other: Vitamin D, Multi-Vitamin


WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 1/31/2010 10:48 PM (GMT -7)   
Officially diagnosed in summer 2009, however, I am certain I had it in 2007, fairly certain I had it in 2005, and feel it quite possible I had it as early as 2000.

I know what you mean about feeling too young. I'm 26 now, but I feel at least twice that old.
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