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MT Lady
Veteran Member

Date Joined Jul 2008
Total Posts : 955
   Posted 1/28/2010 12:17 PM (GMT -6)   
On Saturday, I received a call from my mom, who has Alzheimer's, saying she was sick, it was an emergency. She said she had a terrible night, felt like she had to vomit, but didn't, and as I was talking to her, her words began to slur and she sounded like she had a mouth full of mashed potatoes. I got in touch with my sister, who is an RN and works at the assisted living facility where my mom lives. She went to be with mom, and I rushed over there. By the time I got there, I am ten miles away, they had called 911 and mom was on the transfer cart being taken to the ER. I followed them and the nightmare began. I stayed with mom for the next 27 hours. I have two sisters, one was out of town and the other, the RN was working a double shift that day and the next. I refused to leave my mom because of the dementia. It can cause some really frightening reactions in someone with dementia, so I stayed. She was admitted midafternoon and I slept there that night, well, if you can call it that, on a chair. Mom felt so guilty that she was in bed and I was in a chair and kept begging me to get in bed with her, that I finally did and neither of us slept. She stayed until Monday evening and during the three days, had countless TIA's (mini strokes). She had every conceivable test, MRI, MRA, EKG, EEG, Ultrasound of the carotids, of the heart, and more that I cannot remember...everything coming back negative. The neurologist told us that she felt the TIAs were being caused by medication....of all things, Sudafed! Mom recently was put on Sudafed to be taken twice a day because of her sinuses always draining and her nose constantly dripping. She has taken Sudafed for years but not as regularly as she is now. The neurologist told us that she feels Sudafed should be taken off the is known to cause strokes! I called mom's attending physician and he agreed! Why then would he prescribe it for her? Well, it's a "possible" side effect, not everyone is sensitive to it. Needless to say, mom is off Sudafed. I took her back to her assisted living facility Monday evening and I spent the night again, sleeping in a recliner chair. I don't think I have to tell my fibro friends what my body is like. I have been withdrawing from Prozac for the past month or so, and now this. I don't think I stopped crying for three days (of course, I didn't let mom see me). Mom has no idea where she is now, she doesn't recognize her "home". She keeps calling me and saying "I want to go home." It is heart breaking. My sister, the RN, is able to check on mom. She doesn't work on her floor, but can get there to check in. My other sister is now back home, so she is going there today. I haven't been able to work in four days and I don't get paid when I don't work so I'm desperately trying to get some work done, but all I want to do is stay in bed. I can't seem to get enough sleep.
There isn't much any of you can say. I just needed to vent to someone that understands how tough this is on us.
I have found a psychologist that I am seeing this Saturday. I have struggled for years knowing I needed therapy, but always thinking I can't afford it. I've come to realize I can't afford not to have it. I think the Prozac masked a lot of issues I've had that are now surfacing...I think I am coming out of the ether and it's not pretty. My parents were holocaust survivors. I have been doing research and finding that many children of survivors have PTSD along with FM. I know I need to work through this.
Sorry for the length of this, but thank  you for letting me vent.
gentle hugs

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.

Myself 09
Veteran Member

Date Joined Dec 2009
Total Posts : 5809
   Posted 1/28/2010 12:35 PM (GMT -6)   
Blessings. You are doing the best you can.

Fibromyalgia DX 2005. Ulcerative Colitis, arthritis, TMJ. Family History of Fibro--2 out of 3 siblings diagnosed.

There are three kinds of people in the world: ones who see the glass as half-full, ones who see the glass as half-empty, and others who see a big crack in the side which is leaking all over their %$#@# foot.

Regular Member

Date Joined Aug 2009
Total Posts : 159
   Posted 1/28/2010 12:37 PM (GMT -6)   
Oh, so sorry for what you have gone thru these last days!  Four days sleeping in chairs --I so totally understand how your body must be crying.  You say you must get back to work but going to your very own bed and having a long rest should be first on your agenda.  You can't be doing good work when you are so fatigued and hurting.  Hot baths, rest!  And gentle hugs from all your fibro friends.
I think it is good you are making the effort to deal with issues from your childhood.  Might I suggest a good book that could be helpful? " Bad childhood Good Life" by Dr. Laura Schlessinger.
Please know your friends here are thinking of you and care.  Come here anytime to vent and/or get support.

Veteran Member

Date Joined Nov 2008
Total Posts : 2854
   Posted 1/28/2010 12:43 PM (GMT -6)   
Hi sorry for your nightmare.  I have a friend that took Sudafed for a sinus condition and her BP sky rocketed to a lethal level.  It think its main ingredient is ephedrine and has to be bought behind the counter now.  I only took it once in my life and it gave me palpations.  The good news is they figured it out.  I am thinking of you and hope you start feeling better soon.  This kind of stress can really do a number on our bodies.
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil

Irish Babe
Veteran Member

Date Joined May 2007
Total Posts : 1371
   Posted 1/28/2010 1:32 PM (GMT -6)   
Dear Miriam, I'm so sorry for all that is going on w/ your DM, your sisters and you. I am so glad you were able to be w/ your mother, I know you were of tremendous comfort to her. It is so hard to see your mother suffering.                                                          
 I know how horrible the chairs are at hospitals, most definetly make it up to your body as best you can, hot bath, heating pad, BED!
I do hope that your therapy will help you. We tend to think of 'medical things' for us as being too expensive, but sometimes it is such a good investment in our future. We are worth it!
My prayers are w/ you, your mother and your sisters. Hope you all have a restful and peaceful day!
God bless.  Alice. 

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 1/28/2010 1:50 PM (GMT -6)   
Miriam, I'm so so sorry you are going through a stressful time. I know how tough it is
to worry about someone you love. You wish you could fix everything and make things
I'm glad that they were able to find the cause of your Mom's TIA's. Now it is time for
you to get the rest you need. Hoping you feel better soon, sending gentle hugs.
hugs, Robin

Forum Moderator

Date Joined Apr 2005
Total Posts : 17057
   Posted 1/28/2010 2:00 PM (GMT -6)   
Miriam, I'm sorry you are going through this.  It's so difficult watching your parents having problems like this but you are doing everything you can and I know your Mom sees this.  She may not be able to vocalize it but I think they know somehow. 
You have her in a good facility and your RN sister can check in on her, too.  That's really wonderful and it's wonderful you all are working together with this situation, too.  That is not always true of all families.
Try and rest.  You are a wonderful daughter and your Mom knows that.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Aug 2008
Total Posts : 1771
   Posted 1/28/2010 2:04 PM (GMT -6)   
I'm so sorry you are going through this. I too have dealt with a sick mom, and it is so very, very hard.

Sending you soft (((hugs))) and praying for peace, comfort, and strength for you and your family.

"There is no charm equal to tenderness of  heart." - Jane Austen

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 1/28/2010 2:32 PM (GMT -6)   
Miriam, I'm so sorry about your mom and what your family is going through. I know you need to work but please take care of yourself too. Also glad your getting help with the PTS. I learned a long time ago that we can't move forward unless we deal with the past issues.
I'm sure going through another weather change hasn't helped you either.
You know we are all here for you any time you need to vent.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
Vit D/calcium

MT Lady
Veteran Member

Date Joined Jul 2008
Total Posts : 955
   Posted 1/28/2010 5:07 PM (GMT -6)   
I feel so fortunate to have my "sisters" here...thank you all so very very much. Not everyone has such good, warm hearts as you all do and I so appreciate your kindness.
Sherrine, at another time, I will tell you about my relationship with my sisters. Yes, we came together at a time of crisis, but it certainly hasn't been this way for the past five years. That too has been a very painful time for me.
In any case, thank you all. It means a lot to me
warm wishes

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.

Regular Member

Date Joined Mar 2009
Total Posts : 285
   Posted 1/30/2010 2:05 AM (GMT -6)   
I am so sorry for your situation, Miriam. Seems it's bad enough when you're the one sick or with medical problems, but it's so much worse when it's someone you love. Your mother and my grandmother have a lot in common. You and your family will be in my prayers.
Sudafed, for many, was a legal speed for years, one of the main ingredients in meth. (Worked as a cashier when fed law requiring 18 y/o, ID and that it be kept behind the counter started) There is a cold medicine/decongestant that's OTC for diabetics and ppl with heart issues as it doesn't cause BP to go up, Coricidin ( ).
Rest well and don't forget to take care of yourself and relax! *gentle hugs*

Any idiot can face a crisis - it's day to day living that wears you out.
Anton Chekhov

My train of thought derailed long ago, now I take the bus, few more stops, but I eventually get there.

FM, costocontritis, wide spread arthritis, fibroid tumors, PTSD, 2 heart attacks at 22, PID

Buspar 10mg, Acetometaphen 500mg, Zantac 150mg, B-complex, Tramadol 150mg

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