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Date Joined Jan 2010
Total Posts : 1
Posted 1/30/2010 1:53 AM (GMT -7)
im 16 and have been diagnosed with fibromyalgia over 5 months ago. still trying to find ways to cope and failing. i also have costocondritis. my doctors have tried nearly everything under the sun when it comes to medications, injections, and physical/mental/massage therapy. at one point in time i was on over 20 pills a day. ive had my fair share of blood testing, x-rays, and MRIs. ive even had a doctor go as far as surgery...epic fail. i still pay everyday for his mistake. nothing seems to work. i usually dont get more than 3 hours of sleep a night if any at all cause the pain is so intense. i know kids my age arent supposed to be stressed but yes, times have changed and i get completely stressed out. i miss months of school at a time because i cant get off the couch and hurt that severely. im down to only 3 classes which is because my wonderful school is trying to help as much as possible. even though my class load is lower i still cannot ever seem to catch up. and i used to be on honor roll, advanced placement classes, and all that good stuff, now im just concerned that ill pass this year at all. i just really miss being "normal." my life was a nonstop whirlwind when i was healthy. 2 sports all year round. my father is varsity softball, freshman boys basketball, and 8th grade football coach at my school which is rather intense because ive always had to be 10xs better than every other girl out there on the field to even be considered to play and my older sister always has been that good. shes our varsity pitcher. shes lettering in everything she plays ever since her freshman year. just a freak of nature in a good way and still a brainiac. shes my ultimate rolemodel. i try to attend all her athletic events as well as my little brothers. theyre both 3 sport athletes. im really active in my school, well try to be anymore. it really slows me down. im head of both prom this year and next school years homecoming decorations(already). in student council, pep club, french club, trying to get into national honor society, used to sing and act, art club, used to do sports, was working under our trainer, and just about
everything else you could imagine. ive already looking for colleges and all my requirements and so on and so forth. as hectic as it was i miss it. and just because i slow down doesnt mean the world around me does. my little brother is on all 3 levels of playing for basketball this year, frosh jv and varsity, and ive maybe seen 4 games. ive lost touch with most of my firends cause i never see them. i used to be the fun friendly girl who was extremely easy to like. i even got voted onto both valentines day and homecoming court before i was sick. now people dont even know if i still attend the same school. and im not the same person. im not happy anymore and i was my mothers "happy" child. i kept things just so fun and couldnt be a sweeter child. i always smiled. people ask where ive been, why ive changed and i tell them im sick. i try to explain the best i can but they still dont understand and never will. if i had a dollar for everytime someone told me "blahblahblah...but you look good. oh whatever. youre not sick, you look just fine" i would have 10 houses in beverly hills. the visual disconnect is so difficult to get over. i know i shouldnt expect the all to understand but i wish they did. somedays i need a hug and my mom or boyfriend or whoevers around will sense that i do and they just do out of impulse and it physically kills me a little. im just having a really rough time dealing with the pain let alone a little bit of depression...i wouldnt say im depressed but a little down missing out on whats supposed to be some of the best years of my life. so if anyone out there has any advice or is close to my age(ive yet to meet another child dealing with the same circumstances as i am. everyones like 20+ not that your advice isnt appreciated i just wish i had someone like me to talk to. just a little more relatable) and just wants to talk please do. im all ears. thanks.
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Date Joined Feb 2009
Total Posts : 686
Posted 1/30/2010 4:35 AM (GMT -7)
I'm so sorry you are going through all this. It's so sad that you are suffering so much....and at your age. Please know that the best years of your life are yet to come. It may not feel like it right now.
Your doctors will more than likely come up with the right combo of meds for you. This takes time. I know my fibro was much worse when I was first diagnosed. Now it's livable, though still painful.
I'm glad to see that you are trying to remain active in school. Do what you can.
It's great that you have a supportive mom and boyfriend. Try not to dwell on the folks that keep saying "you look good." They just don't get it. You will find much support here - and there are others your age here. I hope you can hook up with them.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.
fluoxetine (prozac), abilify, trazodone, lorazepam, prilosec, nabumetone, hydrocodone, c-pap machine.
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Date Joined Apr 2005
Total Posts : 17129
Posted 1/30/2010 6:36 AM (GMT -7)
Hi, and welcome! I'm so sorry you are having all of these problems and you are so young, too. We've had teenagers on here before. One has done really well but she is now in college. I think she is 18 now but came to the forum at age 15. She hung around all of us "Moms" and had fun. So, stick around. Even though we are older, we really do understand what you are going through and we do remember our teen years.
Be sure to check out the Fibro 101 thread...the second thread on the forum. There are links to good information about
fibromyalgia and you will learn a lot there. There is one link to The Spoon Theory that you might want to print out and show your friends. It might help them a little to understand what you are going through. If you had diabetes, you would look fine, too, on the outside. It does seem like people don't understand unless you are in a wheelchair, have a cast on your leg, etc. But WE do understand.
I'm so glad you found us and joined in. I'm looking forward to getting to know you better. I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
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Date Joined Sep 2007
Total Posts : 40793
Posted 1/30/2010 9:52 AM (GMT -7)
I am so glad that you have found us. Yes we do have teenagers (young adults) on the forum. and you are going to fit in here just fine. I know this is hard, but as somebody posted above, it does take time to get your pain under control and the depression. But then you can lead a normal life. Things might be a little slower, but you can be happy.
You sound like such a sweet person. I am sorry for what you are going through. But keep your chin up. And keep on keeping on as Jeannie would say. Never give up.
I am glad that the school is helping you. This is so important. You will go far, I can tell. Just never give up. You have a wonderful support system and now you have us. We are here for you.
Keep posting and let us know how you are doing.
Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies
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Date Joined Aug 2007
Total Posts : 6067
Posted 1/30/2010 10:29 AM (GMT -7)
I want to give you a big pain free hug (((HUG)))). I know it's not fair for you to have this but the sooner you learn to cope with it the better and I'm not saying that to be cold cause your story broke my heart reading it. I know you don't think so right now but there are much worse things to have. You can live a full life with fibro just in a different way than you use to.
It doesn't sound like you lack medical care in anyway. Maybe a little too much medical care.
You need to learn to relax. Stress only causes more pain and I know it zaps my energy, what I have of it. Your going to have to reprioritize your life, I don't know how you kept up when you were healthy as full as your plate is. Pick only the things that mean the most to you and, I know it's going to be hard, but give up the rest. You have put so much pressure on yourself to excel at everything and no one person can do that.
I would have never understood fibro before I got it and really those that have it are the only ones that fully understand what we go through. The spoon theory is a great way to explain it to people so they will have some idea what it is like.
Hopefully, some of our young members will see your thread and be of great help to you from a teens point of view. In the mean time stick with us old women and we will do our best to help you.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
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Date Joined Jul 2009
Total Posts : 4796
Posted 1/30/2010 3:00 PM (GMT -7)
Reading your post brought tears to my eyes. Sending you gentle hugs, so sorry you are
hurting and so sad. I believe you will be happy again. You do have great support. Try
to take one day at a time and believe things will get better.
You will find some pain relief that will work for you, it does take time. Hang in there!
Having a chronic illness takes some getting used to. Initially it is common to go through a
grieving process. At some point you accept the illness and try to find ways that you can
help yourself. Focus on what feels good to you. Pacing yourself is very important. You
will find that it is possible to be happy again. Don't ever give up hope!
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid. OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
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