Trish, I'd stick with your Dr. Great Guy if I were you. He probably knows as much, if not more, as to how to care for you and you really trust him. That is huge! If you are wary of what a doctor tells you, you really won't have success. It's amazing how much our minds play into how we feel.
I have avoided the high powered stuff for the exact reasons you have stated. The side affects of Lyrica and Savella are too much for me, personally , to want to try. Narcotics are great but then you need more and more of them, over time, to get the same relief. You have found that out, too. Your body builds up a resistance to them, I believe. I do have a prescription in my medicine cabinet for Vicodin. I've had it for over five years but have never taken one. They are my security blanket! I know they are there if I REALLY get in problems. But, you see, I know that the pain waxes and wanes with fibro so I just wait and then I feel a little better.
Now, if you are trying to be pain-free and stay pain-free, that is part of the problem. The only time I was pain-free in the two decades I've had fibro was when I was given morphine for a partial bowel obstruction. I have fibromyalgia and I know that I'm going to have pain. I have totally accepted that fact and have used things to help me control the pain so I can enjoy my life. Without these, I can barely move.
I use ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements, and vitamin D3 for my pain and fatigue. These have helped me a lot and there is info about the supplements in Fibro 101. I also keep moving. That is a must for me! If I sit or lay too long, I will be stiff as a board. I walk, do walking-in-place videos when I can't get out, and I swim. Those are my gentle exercises. I also do stretching exercises and they, too, can be found in Fibro 101. Without the gentle stretching and the gentle exercises, the pills don't help as much.
I see you have high blood pressure. Do you have high cholesterol, too? If you do and are taking a statin drug, they can take out the COQ 10 out of your body and that can cause muscle pain, too. There are COQ 10 supplements you can take. I'm on a statin because I'm diabetic and my doctor wants me to have extremely low cholesterol because diabetics are more prone to heart attacks and strokes. He told me to stop the statin drug for one month and take 200 mg of COQ 10. I'm doing that right now. Then, after the month has passed, take the statin drug again but I'm to keep taking the COQ 10. I'm anxious to see how this will work and will report on it soon.
Be sure to pass all of this by your doctor. You seem to have a good rapport with him and the two of you should work together for your health. I'm always reading and trying to find things that may help and when I think I've found something, I pass it by my doctor first. We are a team. I hired him to help me be as healthy as possible and we work together.
Lastly, keep that chin up and keep a good attitude. If you keep thinking about pain, you will hurt more, be very unhappy, become more depressed, etc. Take one day at a time. You certainly can handle that. Find things that you can really focus on and the pain will fade some, too.
I hope you will feel much better soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7