What Bloodwork did you have to rule out other conditions?

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Confused725
Regular Member


Date Joined Jan 2010
Total Posts : 27
   Posted 2/2/2010 7:23 AM (GMT -7)   
Hi all!
 
May I ask, what bloodwork you had to rule out conditions such as Lupus, ect.......BEFORE you were dx w/ Fibro?
 
THX

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 2/2/2010 9:09 AM (GMT -7)   
Hi Confused! Hope I can help you. There are quite a few tests that are usually given.
The combined results of all the tests are reviewed, There is no single test to determine
whether you have a connective tissue disease. Symptons, observations, biopsies and lab
work determine a diagnosis.

CBC is a complete blood count, CMP is a comprehensive metabolic pannel,SED rate
ANA is a antinuclear antibody test, CRP is a creative protein test, BUN is is blood urea
nitrogen test and a urinalysis.

IF your ANA is negative and your doctor and your doctor believes you fir the profile of having
a connective tissue disease, he will run many antibody tests. MY ANA was negative but
I had many clinical symptoms of a CTD. Other antibody tests were run and I had a biopsy
which led to a diagnosis of Mixed Connective Tissue Disease (lupus, scleroderma,RA)
I have fibro along with this CTD.

hope this info helps....Hugs,Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 2/2/2010 10:17 AM (GMT -7)   

Gee, all I had was an ANA, sed rate and RA factor done.  And an MRI.  Of course a complete metabolic panel also.  That's it!

Huggies

donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil


Confused725
Regular Member


Date Joined Jan 2010
Total Posts : 27
   Posted 2/2/2010 10:21 AM (GMT -7)   
Hi CrazyKitten,  Cute Name!
 
Thx for the reply. So you have Lupus, scleredoma & RA?
 
When the ANA was negative, what other tests came back possitive?  Was it the Anti DS DNA or the Anti Ro?
 
This would be helpful for me to know!
 
THX!

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 2/2/2010 11:08 AM (GMT -7)   
When the ANA was negative my rheumy ordered an ANA8 ELISA The test was run on
differant occassions and I presented positive with RNP. Mixed Connective Tissue Disease
is the only connective tissue disease for which only one specific antibody(RNP) is needed
to make a diagnosis. I also tested positive for ssDNA and that antibody will show up positive
10-20% of the time in MCTD.

MCTD is an overlap of three differant connective diseases. In my case they are lupus,
scleroderma and RA. The most common combination is lupus, scleroderma and polymyositis.
It is a systemic condition

I had clinical features of all three autoimmune diseases, swollen joints on both hands, feet.
elbows knees all bilateral, rashes, Raynauds, and a biopsy confirmed the scleroderma.

Every connective tissue disease has their own antibodies. Diagnosis is not a simple procedure
because there are so many illnesses that have simular synptoms.

In checking for a CTD these antibodies should be checked ssDNA,dsDNA,Sm,RNP,
SSA(ro), SSB(LA), histone, Scl 70. Some doctors will not check for these unless you have
a positive ANA. Not everyone with a positive ANA has a CTD and sometimes a person with
a negative ANA has a CTD, confusing isn't?

hugs, Robin


Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

Post Edited (crazykitty) : 2/2/2010 11:11:29 AM (GMT-7)


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 2/2/2010 11:43 AM (GMT -7)   
I have been tested for lyme disease, lupus, rhumetoid arthritis, many other things that are not coming to me right now (thanks fog!) I had a cat scan done for chronic headaches, it came back as showing areas with demylentation, so had an MRI done to check for MS, it came back ok. I have been to see a neourologist (SP?) a pain management doc and am currently seeing my 3rd GP. I was just finally diagnosed like 3 weeks ago. It's been a crazy year!

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 2/2/2010 12:19 PM (GMT -7)   
Hi Confused and Damouthy1 and welcome. I was tested so long ago and had so many test I would have to look at my medical records to see. I had my heart checked, CAT scan of lungs since I am a smoker and many tubes of blood. My RA and ANA came back high so was sent to rheumy and was dxd with Sjogren's. Rheumy sent me to neuro for nerve conduction test. At first my biggest problem was unexplained fatigue so they weren't doing test to rule out everything else it could be but fibro, they were looking at all areas of the body. They came to the conclusion that it was the Sjogren's causing the few aches and pains and fatigue til I went into my first real, been beaten with a baseball bat flare, and my GP did the tenderpoint test, in which he about got punched a few times for, and it all finally fell into place for him and dxd fibro.
 
If you haven't already read the fibro 101 thread it contains lots of great info.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


Confused725
Regular Member


Date Joined Jan 2010
Total Posts : 27
   Posted 2/2/2010 12:23 PM (GMT -7)   
Thank you all for your replies!
 
Im hoping to hear from others. SOO curious to know if drs are actually Ruling out Other autoimmune diseases before Dxing Fibro by doing ANA, DS DNA, Anti Ro, Ect....
 
Crazy Kitten,
 
Thx for explaining in such detail. I actually understood what you wrote!
Seems your Dr knew exactly what tests to run & lucky (Or not) you have a dx. It seems like a lot to deal with. Im already an anxious wreck foreseeing Lupus....Bless you for your strength!
 
I never heard of RNP........Were you negative on all these tests for long or did it show up right away?
 
Thanks EVERYONE for all your input!
 
 

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 2/2/2010 1:16 PM (GMT -7)   
Confused, The RNP showed up positive right away, so did the ssDNA. I tested negative
for all the other antibodies. After repeated tests with positive RNP and symptoms, and
biopsy I recieved my dx. I did see many specialists to help with the diagnosis: my rheumy,
neurologist, dermatologist, hematologist/oncologist. I'm thankful I have a good rheumy.

I started the diagnosis process seven years ago in other state where I lived and my ANA
was negative. The rheumy there told me he thought I had a CTD before any bloodwork
was drawn, after the ANA came back negative he changed his mind. All my aches and
pains he said were due to my osteoporosis, DDD and osteoarthritis, I don't think he believed
in fibro.

When I moved to the state where I am now living, my rheumy believed I had fibro and a
CTD and started the ball rolling. I believe I have lived with fibro for along time. He did
a tender point exam right away and started all the necessary bloodwork.

No matter what illness you find that you have, you live with it the same way, one
day at a time. Fibro is a life sentance and MCTD can be life threatening depending on
severity and progression.

I still have a good life and I am happy!

Good luck to you! Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


susan1
Regular Member


Date Joined Dec 2009
Total Posts : 80
   Posted 2/6/2010 2:49 PM (GMT -7)   
I have had a positive ANA (1:64) for over 12 years. Also, I have a positive ACA (anticardiolipin antibodies). All of my Drs at first say "hmmm, Lupus?" But then when they run the full panel, always come back to say NO, you do not have lupus.

My opinion is to go to a couple of Rhuematologists and Neurologists too. Sometimes I have found that Rhuematologists just aren't up to date and don't know much about lupus or even fibromyalgia for that matter.

Hugs
Susan
41 years old
Married with one child
 
Waiting on diagnoses:  Fibromyalgia, MFS or MS. 
Abnormalities:  Vitamin D deficient, B12 Deficient, +ANA, +ACA        MTHFR heterogenous gene A1298C
 
Rheumatologist ruled out lupus on 01/15/10

"Have I not commanded you? Be strong and courageous. Do not be terrified; do not be discouraged, for the LORD your God will be with you wherever you go."  Joshua 1:9


ashphobiax
Regular Member


Date Joined Feb 2009
Total Posts : 42
   Posted 2/6/2010 6:44 PM (GMT -7)   
i had 4 full CBC's, 6 MRI's, upper GI test, 5 ultra sounds, a full body bone scan, doppler ultra sound of my legs, millions and millions of xrays and finally 3 full sessions of PT.
 
sounds a bit ridiclious doesn't it...
depression/anxiety/fibromyalgia - 2000
diagnosed - 2008

medicine - none.
 
"in my eyes, if you standing there facing a pitbull its better to stay where you are instead of running away, at least it wont have the chance to bite you in the butt, so dont run from your problems, face them." - House MD


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 2/7/2010 10:04 AM (GMT -7)   
I had never heard too much about fibromyalgia at all, even when I was going through all of the other tests to see what the heck was going on with me. 4 doctors later and so much blood work and other tests my new gp asked me if anyone ever told me I had fibro. With that she began to push in different areas, starting with my neck (I now know she was checking pressure points) but all I knew then was that if I had been standing up I would have hit the floor! The pain was incredible! Through tears I asked her to please, never ever do that again! Well her response was to move onto my legs. Which was painful, but not nearly as painful as what my upper body was. I am just now starting to get more pain in my hips, legs and oh my goodness, my shins. I left there with my diagnosis of fibromyalgia and came home and started looking for everything I could on this wonderful condition! But that is how I found this site and have met many wonderful people, who are going through the same things I am. They say there is strength in numbers, I know I feel much stronger knowing I am not the only one going through this. Good luck with your diagnosis, take care my friend!
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