How Does Fibro affect you?

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Confused725
Regular Member


Date Joined Jan 2010
Total Posts : 27
   Posted 2/2/2010 10:30 AM (GMT -7)   
Im in a dilema....not sure if I have Fibro (NO trigger points) OR Lupus, All negative Bloodwork.......so far,  :-(
 
I can really learn a lot if I knew how each of you are affected by fibro. Yes, I realize its pain but where?
 
Is the pain in ALL the muscles?
 
Does it feel tender? Sore?
 
What about Joints?
 
 
I keep hearing people say it hurts in the trunk, specifically the chest. I dont have that.
 
Just my calves, thighs, upper/lower arms, shoulders & joints. Poking at me hurts the worst on Most days/bad days.
 
Id just like to know about a day in your life with Fibro?
 
TY!
 
 

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 2/2/2010 11:31 AM (GMT -7)   
Hmmmm, good question. For me, I do have trigger points...all of them actually, but I feel the pain most in my muscles...legs, arms, neck/shoulders and hips/buttocks. I've had hip pain for many years and always assumed it was part of the Fibro, but after an MRI (for other reasons), I discovered I have something called Femoralacetabular Impingement, so it's not related at all.

The pain I feel with Fibro is a deep ache in the muscles and extreme tenderness and pain over the trigger points if touched...like a stabbing sensation. Needless to say, I don't like being touched! My joints are all sore, but I have no inflammation in them according to all the blood tests I've had done, so not sure if that's related to Fibro, or something else.

Mostly, I just ache...deep, constant and unrelenting. I had been on Lyrica for awhile, which helped with the Fibro pain, but I couldn't manage the side effects - I had huge weight gain, double vision, migraines, dizziness...it was too much to handle. I stopped the Lyrica and started on Cymbalta, which has helped lessen the pain a bit, but not a lot. Still, I'll take what I can get, and so far this, combined with the narcotics I'm on for other issues, is helping somewhat overall.

I hope you're able to get some answers. I've never experienced my Fibro in the chest area, but I have sometimes wondered if having "lumpy" breasts is partly because of it.

Good luck to you!

Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Surgical Adhesions
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Nortriptyline
Other: Vitamin D, Multi-Vitamin


Myself 09
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Date Joined Dec 2009
Total Posts : 5883
   Posted 2/2/2010 11:36 AM (GMT -7)   
I had chest pain once, right before diagnosis. Seriously sharp enough to cause me to sit down, no matter what I was doing. Now, it only comes back during a serious flare.

Pain: ankles, calves, thighs (front and back), outer hips, lower back, upper back, shoulders, arms, neck

Severe in calves, outer hips, upper shoulders, neck
Fibromyalgia DX 2005. Ulcerative Colitis, arthritis, TMJ. Family History of Fibro--2 out of 3 siblings diagnosed.

There are three kinds of people in the world: ones who see the glass as half-full, ones who see the glass as half-empty, and others who see a big crack in the side which is leaking all over their %$#@# foot.


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 2/2/2010 12:10 PM (GMT -7)   
I would decribe my day to day fibro pain as an allover achiness. When I'm flaring that
allover achiness turns to intense bone crushing pain. My whole body hurts, it would be
difficult to choose an area that hurts more than the others. In the past I would of said
my shoulders, back and legs hurt the worst, now it's a toss up!

Fatigue is a big factor for me. It is something I battle everday, Pacing myself is a biggie.
It doesn't take much for me to flare so I try to be careful not to overdo. I still exercise.

Fog is really bad when I'm flaring!

hope you get some answers soon and that you feel better!

hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 2/2/2010 12:42 PM (GMT -7)   
A day in the life of a fibromite huh??? I have not slept well for about 4 wks now so got up before 6 feeling like I hadn't been to bed in a few days and I can't sleep during the day so it's only gotten worse as the day wears on. The pain varies according to the weather, stress level, what muscles I have used recently and sometimes for no reason at all. On an average day I have a deep ache in the muscles from lower back up, bad enough that I always know it's there but tolerable, everything I do has to be done from about 10:00 am to 2:00 pm cause the energy runs out about then and there is no pushing myself when it is gone. I have knots in the muscles all over my body that when pressed on about sends me through the roof. I can't even remember a day that I didn't have a headache it's been so long. Can't stand any tight clothes on and everything has to be soft, our skin is sensitive. Most of us are like the Pea and the Princess when it comes to our beds, they have to feel just right for us to sleep at all. I can't even stand a lot of heavy covers on so I sleep with sheet and electric blanket on only. Then there is the fibro fog where we can't remember anything and we put things in odd places.
 
A flare??? Feels like you have been tortured for days by being beat, everything hurts and my body feels sick, like it is fighting off the flu or something and I do run a little temp. During those times I pray a lot, use heat in any form and the sad thing is no matter how much you hurt and how bad you feel you can't just lay or it makes it worse so you have to get up and move and stretch your muscles whether you feel up to it or not.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 824
   Posted 2/2/2010 1:04 PM (GMT -7)   
Hi Confused. When my fibro started which I now think was many years ago it was mostly neck, shoulders, arms. As a child I did have hip pain and 'stitch in the side a lot'. Migraines were next. After 30 or more years it has become an allover ache but pretty bad in the hips, shoulders, arms, side of legs, buttocks, lower back, hands and knees. Sleep (or lack of it) was a huge problem for me since I was in my 20's and I am 64 now. I spent many middle of the nights soaking in a tub of hot water. When dx'd last Feb I had 16 of the 18 points very sore.

That being said, I do not let it control my life. I still bike ride, exercise often, and walk a big dog 2 miles every day. I follow all of these things with stretching and/or yoga, which I love. Malic acid/magnesium helps me. I take an anti-inflammatory daily and an antidepressant at bedtime. I sleep very well most nights now.

A flare for me is usually intense pain in my buttocks, making sitting impossible almost, a migraine with terrible neck pain. Car or airplane travel is very painful during this time.

I hope this helps.
Puppylover
 
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40595
   Posted 2/2/2010 1:19 PM (GMT -7)   
I can handle the pain with pain medications, though some days are worse than others. It is the fatigue that bothers me, though I take medication for that too.

But the pain part is worse in my neck and shoulders than anything. I am doing things now that I haven't been able to do for years.

I hope that this helps some. And I hope that your fibro settles down and that you are comfortable.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 2/2/2010 2:29 PM (GMT -7)   
I have pain in many areas but most noticeable for me is the neck, shoulder and back pain. I also have the fog many times and I'm sure people think I'm on drugs...well I guess I am!turn  The one thing with having fibro is that I can REALLY feel it when I've done too much. I was in bed ALL sunday because I guess I overdid it on Saturday. I baby sat for a 4month old, held her a lot and then went to a Hafla for my belly dance teachers anniversary. I did a bit too much dancing too I guess. Some days I'm fine with lots of activity but others I am toast the next day. It's frustrating!!
Dee-39yrs old wife/mom of 3 boys UC since 04
Panic Attacks/Depression/fibromyalgia2009-750mg colozal/1,000mg canasa/Rowasa enema) a bit under .5mg clonazepam, 10mg Lexapro/2.5mg Norvasc-/Fioricet/Prilosec OTC  Triple Strength Fish Oils/Colonoscopies-5
 


ashphobiax
Regular Member


Date Joined Feb 2009
Total Posts : 42
   Posted 2/2/2010 4:09 PM (GMT -7)   
bad pains in the back, ribs and legs, i have a horrible sleeping pattern and i also get numbness and "bug crawling" feeling in my legs, i also have horrible depression and anxiety. it's not fun at all :(

caligirl2001
Regular Member


Date Joined Jan 2010
Total Posts : 197
   Posted 2/2/2010 11:41 PM (GMT -7)   
My worst areas of pain are my neck, back, shoulders and most recently, my chest. (Some of my pain is also due to a herniated disc-pain medication helps with that pain but does almost nothing for the fibro pain). I also have issues with knees and elbows. Tiring easily is a big problem. It is hard for my family to understand sometimes that Mom can't do everything. I was explaining to my 13 year old yesterday that instead of doing everything I want to do, I have to choose what is the most important that day. I can't grocery shop AND do laundry. I have to do one or the other, and some days I have to choose nothing but the bare minimum. If I get cocky and try to do everything I SHOULD be able to do at my age, I pay for it with several days of being incapacitated. I have terrible sleeping issues that definitely don't help the fatigue.

I get pins and needles feelings all over, especially at night that can be very uncomfortable -ashphobiax describes it very well with the bug crawling analogy.
Fibromyalgia, High BP, Migraines, Cervical radiculopathy

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