Pain killer question

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topsyturvy
Regular Member


Date Joined Jul 2009
Total Posts : 30
   Posted 2/6/2010 2:47 PM (GMT -7)   
I have my second appt with my rheumy on friday and I'm wanting to try something that might actually keep me out of pain.  Last time he gave me Nortrytiline(sp) but  it didn't really work.
 
So I'm wondering what out there actually works so I can research it and talk to him about it.  What do you take and how well does it work for you?
 
I'm so tired of being in pain and am ready to try something that might keep me out of pain for a decent amount of time.
Ramie
 
Ativan 1mg x2, Savella 100mg x2, Seroquel 400mg, Ambien 10mg, Zyprexs 5mg once daily,Lithium 600 mg @ bedtime, Levothyroxin 50 MCG,Zanaflex 4mg 1 every 6 hours and Norco 7.5 1 every six hrs as needed, Zanaflex 4mg every 6 hrs
 
Fibro, Bi-Polar II, PCOS, Hypothyroidism.
 
The list just keeps growing.


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 2/6/2010 4:34 PM (GMT -7)   
Hi Ramie!

The Nortriptyline is an antidepressant and is very common for a doctor to try this on fibro patients. The newer Cymbalta is also an antidepressant used to try to lessen the pain of fibro. I tried and it didn't do anything for me either. There are lots of medications that your doctor will or should try like Lyrica, Cymbalta, Amitriptyline, and a host of SSRIs and other antidepressants are all in their bag of tricks. Some work for some folks, some folks have no luck with any of them. But non of these are "pain killers". They affect other systems in the body in hopes of lessening pain. Often a very light dose of an antidepressant can help lessen the pain more often than other medications but then again...not always.

As to "pain relievers" and pain control....you need to know that nothing you take will totally take away the pain. I'm sorry to tell you that but it's just how life is. Stronger pain medications will decrease the pain to a point where you can live with it or ignore it. But if we take enough pain medication to get rid of it all then we will be out cold and snoring.

I would suggest telling your doctor just what you have told us...that what you are taking isn't helping reduce your pain level. You are wise to do your research. The only caution is to not jump in too fast to 'ask' for a specific medication, unless you know your doc very well. It's always possible they might think you are a "drug seeker". Sad, I know but it's happend way more than I care to think about.

If you want to research some pain medications here's a list of some that people on the forum have tried. This list is certainly not everything out there but some of the most common ones.

Hope this helps,
Chutz

Codeine
Darvocet
Vicodin
Tramadol
oxycodone (e.g. Percocet)

These are sustained release medications.

morphine (MS Contin, Avinza, Kadain, Oramorph)

oxycodone (OxyContin, Roxicodone, M-oxy, ETH-Oxydose, Oxyfast, OxylR)

fentanyl (Duragesic, Fentanyl Patch)

oxymorphone (Opana)

methadone (Methadose)
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


topsyturvy
Regular Member


Date Joined Jul 2009
Total Posts : 30
   Posted 2/6/2010 5:21 PM (GMT -7)   
I am currently taking Savella but it doesn't do much other then take some of the ache out sometimes, but the majority of the time I am in pain. I haven't really taken much to help with the pain other then a muscle relaxer but then again I am still in pain. I knew the nortrytiline was a anitdepressant and my dr said to try it for the pain but it didn't work but I waited the time till my 2 month appt came up to try anything else.

I just prefer to not be in pain all the time and just hate to get up and around cause it just hurts. So I suffer which really doesn't do anyone any good. I take enough medicine as it is cause I have other things going on but nothing more then the Savella.
Ramie
 
Ativan 1mg x2, Savella 100mg x2, Seroquel 400mg, Ambien 10mg, Zyprexs 5mg once daily,Lithium 600 mg @ bedtime, Levothyroxin 50 MCG,Zanaflex 4mg 1 every 6 hours and Norco 7.5 1 every six hrs as needed, Zanaflex 4mg every 6 hrs
 
Fibro, Bi-Polar II, PCOS, Hypothyroidism.
 
The list just keeps growing.


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 2/7/2010 8:26 AM (GMT -7)   
Hi Ramie and welcome. I take very little vicodin and only when I can't stand the pain any longer. I have had so many negative reactions to different pain meds in my life there aren't many out there that I can take. I do take 100 mg of amitriptyline a day and I do think it helps with the fibro pain but a lot of my pain is arthritis and it doesn't help that.
 
You said due to the pain you hate to move, sadly, no matter how much we hurt we can't just sit or we will hurt worse. There are days when I feel like I don't have the energy to breathe that alone move but I have got to get up and stretch and move around or I hurt on top of being fatigued. As soon as I am awake in the mornings I have to part with the bed or I start to hurt. I can't even imagine myself staying in bed all day or it would be torture.
 
luv and hugs
Marlee
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40592
   Posted 2/7/2010 10:26 AM (GMT -7)   
If your doctor is going to give you any pain meds at all, which some of them don't, he/she will probably start you out with tramadol or vicodin. This is good though, because you have leeway to go up. It is easy to build a tolerance to pain medications, and if you start too high on the scale, there is no where to go. I do know people that take oxycontin and dilaudid which are the stronger ones and they are doing well. But starting out lower would be better in the long run.

As was stated above, you will always have some pain. Even with narcotic pain relievers, some feel that nothing works completely.

And as also stated above, I wouldn't ask for any specific pain med because the doc does think you are drug seeking. That is the hard thing about fibromyalgia, as it is kind of a silent disorder.

I hope that you find what works for you.

Best wishes for a painfree energetic day. And do keep moving, if you don't, you will be in much more pain. Getntle stretching helps me, and walking.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


yo-yo
Regular Member


Date Joined Aug 2009
Total Posts : 159
   Posted 2/7/2010 10:43 AM (GMT -7)   
Topsyturvy,
Might I make a suggestion?  I don't see anything in your list of meds that shows you take any vitamins.  If you don't, I've found that taking vitamins, fish oil, CoQ10 and others has helped my overall health and I believe helped lower the pain somewhat.  Don't get me wrong, I have pain every day and I have flares, I'm in a bigtime one right now.    But I just think I would be WORSE if I wasn't taking these things for my allover well being.   I know several people on the forum take the Malic Acid/Magnesium and get some pain help.  I, however, was unable to take it myself.  I have ulcerative colitis and the magnesium in it was intolerable to me. 
 
Anyway, give yourself some help by trying some things that might give you some overall health.
Yo-yo 

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 2/7/2010 11:41 AM (GMT -7)   
I agree with much of what was said but I want to stress that you need to keep moving.  If you sit or lay too much, you will be stiff as a board and have more pain.  You need to find a gentle exercise that you like to do.  I walk and swim for my exercise.  I also do stretching exercises.  There are some on Fibro 101 that really do help.  But, please get moving.  I think you would feel better if you did.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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