Have you been to an Endo?

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Regular Member

Date Joined Jan 2007
Total Posts : 35
   Posted 2/9/2010 9:15 AM (GMT -6)   
Maybe I don't have Fibro after all?  I was dx'd 9/06 by a rhemotologist, after spending a year with orhto's and neuro's.  On my never-ending quest to find relief, I spoke with a co-worker who's daughter had sleep problems as a teenager.  My co-worker ended up taking her to an endocrinologist who found her deficient in several areas (can't remember what) and treated her with a supplement.
After researching Endoncrinology on the internet and finding out that my sister and a grandmother have thyroid problems, I decided to visit one.  I explained my fibro dx. My Dr. was open-minded an ran all kinds of tests which revealed that my testosterone is 143 when normal is 300-800.  Also, insuline-like growth factor was low.  My Dr. said it could be caused by the meds I am on for Fibro, but he doesn't want me to stop taking them and  become overridden with pain just to see. 
I posted recently about visiting my primary care Dr. and explaining how I thought my body was not healing right. Even before I was dx'd with I can think of many times during my life that my body was sore and recovery took a long time. Except during those times the pain eventually went away, not like now.
Anyway, my endo prescribed Androgel, a Testosterone gel that I put on every morning.  I have to go back for follow up blood test and pituitary MRI results tomorrow.   After reading about low testosterone symptoms, I think I've been low almost all my life. 
So, I encourage you to visit and Endo if you haven't.
I am not suggesting that everyone who has Fibro has an endocrine imbalance, just suggesting that endocrine tests might flush out any other treatable possibilities.  My symptoms are very Fibro-like: restless sleep (wake every 60-90 min), muscle/tendon/joint soreness, massive fatigue, FOG, and trigger points that feel like a being jabbed with a hot poker.  
Post-traumatic Fibro onset after accident 10/05, diagnosed end of 8/06
Total right hip replacement due to osteoarthritis 8/1/06
Extra Hemi Vertibrae on top of T1 and below C7 (call it C8??)
resulting in scoliosis, last measured 40+ degrees.

meds: Cymbalata 60mg twice daily,
Lyrica quit taking...seemed to feel better 150mg 3 times daily
Oxycodone 10/325 up to 6 times daily, usually 3 or 4
Fentanyl patch 50mc 1 per 48 hours
Provigil 200 mg once daily
St. John's Wort.
....i'll take anything that won't make me naseaus

Veteran Member

Date Joined Apr 2008
Total Posts : 1522
   Posted 2/9/2010 6:27 PM (GMT -6)   
I think it's worth checking with an endocrinologist, especially if there is a family history of endocrine imbalances/disorders. The few here that take my insurance only take new patients AFTER they've been diagnosed with diabetes or thyroid problems. We have a real shortage of endocrinologists here.

I've had my testosterone checked a few times and it was actually higher than normal. My doc checked it because he said he noticed that an unexpected percentage of his chronic pain patients had low levels.

Good luck with your treatment, I hope it helps a lot.
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