I'm a newbie also!! any heads up would be great.

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crazedmom
New Member


Date Joined Feb 2010
Total Posts : 2
   Posted 2/12/2010 5:44 PM (GMT -7)   
 
Well hi, this is my fibro story....
 I have had joint pain first in the bones of my fingers so bad that I thought I was getting the flu...but I had no other symptoms. I had blood tests for Lupus, RA, all joint stuff...and one of my antibodies came back positive...but the doctors didnt know what to think. Oh, I also have some anxiety issues, never lasting too long but that also started getting a little more problematic. My GP (great doc) but he kept wanting me to try antidepressants..and to tell you the truth I was not depressed so I did not want to take that at all. I took diazapam for anxiety occasionally and that seemed to do really well.... Long story short...for around 8 years my hands were always in pain, but I just didnt know what to do.
 
In 2007 I had a tumor on my thyroid (not cancer :) so I had a partial thyroidectomy, so then I had to take massive doses of Vitamin D because they damaged my parathyroid in the surgery. In 2008 I had a total knee replacement (I'm 48)...and I recovered quite well...but I started noticing (a year after my surgery) that my shoulders felt like they were out of their joint, and then just everything would hurt. My calfs on my right leg would feel like it was rock hard and then of course with those symptoms I would have some anxiety. Finally after months of blood work, (I still think that my thyroid is wacked...I mean how long will half of one work anyway>?)..my doctor finally said fibro, he prescribed 3 different meds, antidepression types, and all made me feel really bad, like stiff muscles, and out of it...so now I just use ibruprofin and tramadol if needed...if it is really bad then hydrocodone..and I still take a little diazapam for the anxiety.
 
I have had a pretty quiet time of it lately, although today with the barometric pressure and snow WOOOO not a good day. Wierd feelings in my right leg, and just out of it....
Anyway, I would appreciate any tidbits of insite .....oh and I live with my heating pad....
 
Thanks, and I know I will be hanging around this site.
crazedmom (toni)tongue

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40602
   Posted 2/12/2010 6:40 PM (GMT -7)   
Hi Toni,

Welcome to HealingWell and the fibromyalgia forum. You are among friends here with a lot of different stories about their fibromyalgia.

My shoulders hurt constantly, but I am use to it. And my neck. That is what bothers me the most with fibromyalgia, along with fatigue. But I have gotten use to the pain, and can handle it. I do take hydrocodone daily though and that helps.

When you get a chance, check out the fibro101 thread. It is the second thread on the forum. I think that you will find it very interesting. And there is a world of information there.

I really do think you will like it here. I am sorry to hear about all of your complications, but you seem like you have a good attitude and that really helps with fibromyalgia.

I hope that you are having a good evening, and I hope that you are pain free.
Best wishes to you.

Hugs, Karen


  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


willowsgrandma
Regular Member


Date Joined Jan 2010
Total Posts : 78
   Posted 2/12/2010 9:37 PM (GMT -7)   
Hi toni and welcome! i'm sorry you've been having all the pain lately especially. i have reflex sympathetic dystrophy. the symptoms(skin sensitive to touch, burning arms, stiffness) sound just like fibro. the members here are all really caring. take care and i hope you have an easy weekend. take care. Donna

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 2/13/2010 6:17 AM (GMT -7)   
Welcome, Toni!  I'm so glad you found us and joined in.  We do have a great group of members that love to help one another and we also really do care about each other, too.  I know you will like it here.
 
You have gotten some good advice here.  Really do check out the Fibro 101 thread.  It is chocked full of information.
 
I use ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements and vitamin D3 supplements to help with pain and fatigue.  There is a link about the malic acid in Fibro 101.  It has helped me a lot but it doesn't help everyone.  Many on this forum have gotten relief from it, though.  Be sure to pass it by your doctor.  Mine said he didn't think it would help me but it wouldn't hurt me either so I tried it.  He was wrong!
 
Be sure to keep moving.  If you sit or lay too long, you will be stiff as a board.  You probably already know that.  There are some good gentle stretching exercises in Fibro 101 that really do work.  You need a gentle exercise, too.  I walk and swim as my exercise and feel better because of it.
 
I see you already know how wonderful heat feels.  We all have heating pads and Bed Buddies! 
 
I'm happy that you decided to join.  Don't hesitate to ask questions because we are here to help you.  I hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40602
   Posted 2/13/2010 6:19 AM (GMT -7)   
Willowsgrandma,

I don't think I have welcomed you to the forum, so Welcome!!!

My granddaughter's birthday is today. Your username make me think of it. I plan to bake some cookies for her today and give her her present.

I hope that you are having a good day and again, welcome.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 2/13/2010 6:44 AM (GMT -7)   
Hi Toni and welcome. You have been given lots of great info already. Try to keep as much stress out of your life as possible, I know impossible to keep stress out of our lives, but we can work on how we react to it. Stress + fibro = pain for us. If I get upset I can feel my muscles tighten.
 
I had thyroid surgery when I was 17 yrs old but didn't start having fibro symptoms til my late 40s.
 
I can't remember if I have welcomed you or not Willowsgrandma so welcome.
 
Karen, my middle granddaughter's birthday is today, she is 13 on the 13th. Party isn't til 4:00 I'll be dragging before the party ever starts.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


crazedmom
New Member


Date Joined Feb 2010
Total Posts : 2
   Posted 2/13/2010 9:30 AM (GMT -7)   
Thank you all for your wonderful encouragement!
This is a very lonely ((thingy)), I do not know anyone who has it, and my family as great as they are still dont quite understand how this works.
 
Let me ask ya all... can you all feel a flare up?... it seems like the last couple times it really bothered me, a day before I started with wierd little tightenings and foggy...then real bad for about a day, then feel better.?
 
This sights are a God send, really I thank you all for letting me know I am not alone. And for the most part its is all good, more good days than not and I don't seem to have to take a lot of meds so that is good.
 
You all have a blessed, fantastic day.
 
ToniJ

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40602
   Posted 2/13/2010 2:19 PM (GMT -7)   
Toni,

You will definately know when you have a flare, it is nearly unbearable sometimes. Fibro waxes and wanes. You can feel good one day and not so good the next. We never know how we are going to feel tomorrow. Which can be bad. But in a way has been good for me, because now I make the most out of every day where before I took them for granted.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 2/13/2010 2:31 PM (GMT -7)   
Toni, a positive attitude has helped me a lot over the years and I think you have a positive outlook, too.  It really does help with the pain and you don't feel "hopeless" either.  So, keep the good attitude, pace yourself, and work around fibro.  
 
Fibro hasn't stopped me from doing anything I have wanted to do.  Just this December, my children and I walked through Fantasyland at DisneyWorld from 9 AM until 6:30 PM!  I wasn't sure if I could do it but I gave it a try and made it.  I  also went on Splash Mountain with it's 52 foot drop.  I didn't know how my fibro would react but I did it anyway because I really wanted to!  I was sore for a few days but I'm still patting myself on the back for that one!  I know I'm blessed to be able to control my pain and do these things and I do believe my positive attitude really plays into that.  By the way, I'm 62 years old.  So, enjoy life and enjoy your family. That's what's really important.
 
Sherrine 


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 2/13/2010 2:38:54 PM (GMT-7)

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