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Regular Member

Date Joined Oct 2009
Total Posts : 434
   Posted 2/17/2010 3:55 PM (GMT -6)   
I have read that several of you take vitamin D.  I have been debating taking this for quite a while but haven't as of yet.  I haven't been told I have a deficiency in this but I haven't been tested either.  I was wondering how well this is working for you all that are taking it.  Thanks for the input.

Forum Moderator

Date Joined Apr 2005
Total Posts : 17059
   Posted 2/17/2010 4:30 PM (GMT -6)   

I think it's helping me.  Many with fibro seem to have this deficiency.  It's an important vitamin for your heart, too.  I live in Florida and was still deficient in vitamin D!


Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

getting by
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Date Joined Sep 2007
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   Posted 2/17/2010 4:59 PM (GMT -6)   
I like the vitamin D3 because it seems to give me a little energy and makes me feel good. I can always tell if I forget to take it. It really does help a lot.

Hugs, Karen
  Moderator-Depression and fibromyalgia
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Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 2/17/2010 6:17 PM (GMT -6)   
This is a good topic! I've tried Vit D on my doctor's suggestion. Did it for a month and didn't see any results. Doc said it most likely wouldn't then but I've decided to give it another try. Been taking it again for nearly a month and am waiting for some great things to OK, some small bits would be fine too.

"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
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Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 2/17/2010 6:23 PM (GMT -6)   
I take it as my doctor noted that I was low and my bone scan showed some thinning of the bones. I'm really not sure "what" I should be looking for results-wise, I just take them for preventative reasons. I'm on 1000 units, twice daily.

Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines
(plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Nortriptyline
Other: Vitamin D, Multi-Vitamin

Veteran Member

Date Joined Apr 2008
Total Posts : 1522
   Posted 2/17/2010 6:32 PM (GMT -6)   
Vitamin D is a fat soluble vitamin, this means your body stores it. If you take too much it can be dangerous. You should probably have your levels tested before you supplement especially if you plan to supplement with much over 1000 (whatever the units are)/day. Check any other supplements to see if D is in them. Some calcium supplements have D added.

That said, many people are deficient even those that live in sunny places like Florida and Arizona. We don't go outside like we used to or we cover up and wear sunscreen so we don't make enough of our own.

I live in a very sunny region and every single person in my fibro group that got tested was low in D. Some were just at the low end of the spectrum but many were very low and needed prescription D.

D is not very expensive and is necessary for so many body functions. It's sometimes referred to as a hormone rather than a vitamin. Even if it doesn't make you feel better, it may be worth taking for your overall health.

Regular Member

Date Joined Jan 2010
Total Posts : 87
   Posted 2/17/2010 6:36 PM (GMT -6)   
I take vitamin D3 I don't know if it helps with the pain at all but I know it makes me feel better generally. I had some bouts of depression last winter but I haven't had any this winter since taking the vitamin D. I live in southwestern Ontario and the winters can be pretty dreary so the lack of sunshine can cause vitamin D deficiency.
Fibromyalgia DX Dec 2009, bilateral epicondylitis, IBS.... stay tuned more to come I'm sure.
No one is in charge of your happiness but you.
Don't take yourself so seriously, no one else does.
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Life isn't fair, but it's still good.

Regular Member

Date Joined Oct 2009
Total Posts : 434
   Posted 2/17/2010 7:34 PM (GMT -6)   
Thanks guys for all the replies.  I know I can always count on you all.  Overall sounds like D is great!

Regular Member

Date Joined May 2009
Total Posts : 447
   Posted 2/17/2010 11:24 PM (GMT -6)   
Hello, I am one of the luly ones my VitD levels are great but then I live in Queensland Australia where we get sunshine  almost all year around, even on wet days we have to be careful because you can get sunburnt. But it was on the news here about people not gettig enough sunshine with the sun cancer warning. To get the most benifit out of the sun you need to expose your hands  arms to the elbow and face. It is posible to do this early mornings or late afternoon. 10 Mins is equal to 1,000 mils of vit D. I have talked to several  different Doctors about this and they agree here if people did more of this there would be less problems with defficently. My friends have all started to do this and have found wonderful results. But then we are the home of the most suncancers in the world. My mother suffers from this so I am careful and so are our children.
FMS. CFS, TMJ, IBS, Migraine, menapause

MT Lady
Veteran Member

Date Joined Jul 2008
Total Posts : 955
   Posted 2/18/2010 9:48 AM (GMT -6)   
I was tested for D and found to be VERY low - at 12, this was about two years ago and I went on prescription strength D, started at 50,000 a week and ended up at 150,000 a week because I just couldn't get my D up to normal. Even had a colonoscopy and endoscopy to see if I had celiac disease which would cause malabsorption and that was normal. Finally, D normalized and now I'm on OTC D, 2,000 a day and will be rechecked tomorrow. Honestly, I cannot say that I feel better since the D is at normal levels, I wish I could say it! But, I know that it is better for me overall to be taking the D. It can have negative effects on your bones, among other things...I think there have also been studies on cancer and low D....anyway, always check with your doctor and have your D level checked before taking it on a daily basis.

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 2/18/2010 9:56 AM (GMT -6)   
Vitamin D3 has helped immensley with my Fibro pain. I am currently taking 3400 units daily and it has really helped me. Its important that they type of Vitamin D you take is D3. Below is an interesting group of articles talking about Vitamin D3 helping chronic pain. Enjoy!

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Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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