So sore and achy

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livenlaugh
Regular Member


Date Joined Dec 2009
Total Posts : 387
   Posted 2/19/2010 2:27 PM (GMT -7)   
 I am still in the stages of being diagnosed. Some days I am fine. The last couple of days I have had a headache and pain in my neck. Today, I feel like everything hurts. My legs, arms hands and head ache...I don't want anyone to touch me. Is this normal to experience this with fibro? It seems that I have a coupl...e of good days then a couple of bad and sometimes I feel like I am going crazy. Thanks for listening.

yo-yo
Regular Member


Date Joined Aug 2009
Total Posts : 159
   Posted 2/19/2010 5:13 PM (GMT -7)   
Hi,
 
Yes, it is normal to feel like this for a fibro person.  Every day is something different,  this is true diversity! LOL!  One day its the normal (for a fibro person) aching all over, next day you get one or two added painful areas, the next maybe they stop hurting and you have two or three  new areas that hurt.  And so it goes---.  It sometimes goes into a flare or maybe you have several days of just light aching and you think ,oh boy, its going away and I'm going to be NORMAL.  Not!  I have just come off  of one of the worse flares I've had in a year--It lasted 3 weeks and finally yesterday I could feel myself coming out of it. 
 
The thing you have to remember is you won't die from it.  Sometimes it just FEELS like you will.  Its always up and down. 
 
I do hope you will soon be on the upswing and feeling better. 
Use lots of heat and hot baths.
Soft hugs,
 Yo-yo

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 2/19/2010 6:10 PM (GMT -7)   
Hi Livenlaugh,

Yes, you've just described a typical Fibromite...the other day, I was so sore everywhere, even my hair hurt. Other days, I feel not so bad overall from the Fibro, and there's really no rhyme or reason for the changes...my days are all pretty much the same.

Keep your spirits up...this is a tough journey to be on and it may take some time to find the things that help you (heat, medications, exercise, etc.). Just know there will be good days and bad days, and that we're always here to listen and help.

Welcome to the Healing Well forums...glad you found us.

hugs,
Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines
(plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Nortriptyline
Other: Vitamin D, Multi-Vitamin


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 2/19/2010 6:24 PM (GMT -7)   
Hi Livenlaugh and welcome. It is so hard to predict what fibro is going to do one hour to another that alone from one day to another. Yo-yo is right about the pain intensifying and letting up and moving around at will. I do have areas that hurt all the time and headaches is one of them along with my upper neck but I also have arthritis in my neck. My shoulders and shoulder blades are always sore, the intensity varies from day to day, this week I have over done and have my whole upper body hurting. Weather changes has a lot to do with our pain also, along with stress and whether we are sleeping well. Sometimes we hurt and have no idea why.
 
I hope you live up to your name, you have to have a sense of humor to keep going with fibro and laughter is good medicine. smilewinkgrin
 
Hope tomorrow is better.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


shannahsmom
Regular Member


Date Joined Jan 2010
Total Posts : 87
   Posted 2/19/2010 8:05 PM (GMT -7)   
Marlee I was just going to ask if that was normal. Everyone talks about varying from day to day but I experience that not knowing what's coming from one hour to the next. I can wake up feeling not too bad and think this is great, I might get something done today. Then I can feel my energy just draining out of me or the pain starting to build in one part of my body or another. Or I feel really bad and cancel plans to do something only to find that when that time comes around I don't feel too bad and I could have gone ahead with them :( It frustrating trying to micro manage your day not knowing how you'll be feeling one moment to the next.
Shannahsmom
Fibromyalgia DX Dec 2009, bilateral epicondylitis, IBS.... stay tuned more to come I'm sure.
 
No one is in charge of your happiness but you.
Don't take yourself so seriously, no one else does.
What other people think of you is none of your business.
Life isn't fair, but it's still good.


yo-yo
Regular Member


Date Joined Aug 2009
Total Posts : 159
   Posted 2/20/2010 9:59 AM (GMT -7)   
Marlee and Shannahsmom,
 
You have it so right!  The thing about the energy just draining away is so on target, as is the feeling bad, cancelling a place to go or fun thing to do, only to have the time come later in the day and you are feeling better!  Oh, so frustrating!  And it is so true about not knowing hour to hour how you might feel in say three hours! 
 
As I said in my previous post I am just coming off a huge flare.  It did not last 3 weeks like I stated but after checking my calendar, it lasted 5 weeks!  See, I even lost track of time passing during the flare.  Pain and overwhelming fatigue can do that to you. 
 
As I said before fibro won't kill us, it just feels like it will!  Just remember better days are coming.  That is what keeps me going and the thought that research will come up with a solution for fibro.
 
Yo-yo

livenlaugh
Regular Member


Date Joined Dec 2009
Total Posts : 387
   Posted 2/20/2010 10:05 AM (GMT -7)   

Thanks to everyone for your kind words and good suggestions.  I am hoping that this is not a flare.  I don't know if I have had a flare...I am so new at this.  And not having a diagnosis, I often doubt myself saying that it is my weight, age, having children etc...  Confusing isn't it.  Well, whatever it is, it is here to stay.  And I seem to have the fibrofog more often than not, having difficulty remembering words and things that I need to do.  Sometimes it makes me laugh.  Oh Well.

Lisa


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40574
   Posted 2/20/2010 1:21 PM (GMT -7)   
Livenlaugh,

Do you have a bed buddy? It is a tube filled with rice that you can put into a microwave and heat up and wrap around your neck.

When we get pain, we get tense. Thus the shoulders and neck really hurt which usually leads to a tension headache. But when you use the bed buddy, it puts off moist heat and really helps with pain in that area. I got mine at the Walmart pharmacy, but they are also found in sporting goods. You can also make one with a tube sock. Fill it three quarters full with real rice. Then tie the end. Or sew if you are good at that. It really does help.

I hope that you feel better soon and I hope that you get a diagnosis soon so that you know what you are contending with.

Best wishes to you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


livenlaugh
Regular Member


Date Joined Dec 2009
Total Posts : 387
   Posted 2/20/2010 3:29 PM (GMT -7)   
I do have one, I just forgot I had it. I went to the psychiatrist today to talk about my anxiety/depression meds. She is almost definate that I have Fibro. She said that it sounds like alot of her Fibro patients. She is switching me from Prozac to Cymbalta. Can anyone tell me of the side effects that they have with this med? Is anyone on this and protonix? Thanks
Lisa

shannahsmom
Regular Member


Date Joined Jan 2010
Total Posts : 87
   Posted 2/20/2010 5:40 PM (GMT -7)   
My doctor tried to put me in Cymbalta. I only took one pill and I was out of it for 3 days. I couldn't concentrate at all, I had horrible dry mouth, my stomach was doing flips and everything I ate tasted aweful. When I went to see the rhuematologist he said my GP started me out on too high of a dose that he should have gradually built up but he wants to put me on Lyrica anyway. I'm really nervous about taking it though because of all of the side effects I've read about and not very many people saying that it helped enough to make up for all the bad side effects. I hope the Cymbalta works out better for you than it did for me.
Shannahsmom
Fibromyalgia DX Dec 2009, bilateral epicondylitis, IBS.... stay tuned more to come I'm sure.
 
No one is in charge of your happiness but you.
Don't take yourself so seriously, no one else does.
What other people think of you is none of your business.
Life isn't fair, but it's still good.


livenlaugh
Regular Member


Date Joined Dec 2009
Total Posts : 387
   Posted 2/20/2010 6:41 PM (GMT -7)   
Thanks...I hope that it works for me.  Good luck with the Lyrica.
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