an update, I guess.

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jamies.mom
Regular Member


Date Joined Dec 2006
Total Posts : 53
   Posted 2/19/2010 7:05 PM (GMT -7)   
Hi - haven't posted in a while. I had a difficult time over the holidays, mostly panicking about the future. I was fired from my last job due to fogginess, and while I was lucky enough to get unemployment insurance benefits, all i could think of was "What am I supposed to fo when they run out this July??" I luckily found that after a few months of adjusting to fibro life that I could manage daily life with two little kids constantly needing me, but just barely. I couldn't figure out how I was going to squeeze in a forty hour work week. I am thankful to report that my best friend and I are going into business together. We will be able to earn a living with about half the hours, as photographers. We have done the market research, and it appears that we will be successful! So good on that front. Ihave had a hard time this past week, must be relapsing. I am starting to feel more pain again, mostly head/neck/upper back/shoulders. It's not terrible - I think I am lucky in the pain department - but it nags. Well the headaches are killer. But over all lucky that the other pain is not worse. Have been too tired lately. Waking up in the middle of the night, tired all day. Having trouble keeping myself the right temperature. Unlike most of you, I am just as sensitive to heat as I am to cold. I can't bundle up against the chill, because as soon as my body hits room temp I start sweating, and get hot chills. My feet are the worst - the are cold, so I put on slippers, only to take them off two minutes later when they get sweaty, only to have them go too cold again! I learn to laugh about it! I have been having trouble in the hubby dept. It seems he doesn't put a lot of weight on the fibro dx. He gives me weird looks every time I take a pill, shrugs off my complaints, say so what else is new, when I say anything about being tired. I think he shuold log in here and read what we go through, but he has no interest in learning.
So that is where I am at. I don't think I have said anything particularly interesting, and maybe people will read this and say so what. But I just felt that somewhere, someone aside from my mom must care how I feel. It sure isn't my husband!
fibromyalgia, Irritable Bowel, restless legs, polycystic ovarian syndrome.


willowsgrandma
Regular Member


Date Joined Jan 2010
Total Posts : 78
   Posted 2/19/2010 7:44 PM (GMT -7)   
blush cool hi Jamie's mom! i'm sorry your husband doesn't understand. i know of very few people even really care about our horrible dx. that's ok though. take care of your precious kids. they grow up so fast. i have 2 grown sons and a precious little grand daughter. i have yo tell you what my wonderful Mom who is 89 yrs. old said today. she lives in an assisted living apt. after a couple of appts. today i went to visit. i got up to leave and flinched and stretched. she said "honey i wish i could take your pain for you." there is really NOTHING likes a Mother's love! whenever you start feeling kinda low, just interact with the little ones. that'll cheer you right up. guaranteed. take care..i stopped taking lyrica today so hopefully i won't be quite as poor as a church mouse in a couple of months haha hoping for at least 5 hr. of sleep tonight! Donna

jamies.mom
Regular Member


Date Joined Dec 2006
Total Posts : 53
   Posted 2/19/2010 7:54 PM (GMT -7)   
Thanks for the cheering up! Yes, my sweet little girls are definately a source of joy! My four year old doesn't call it fibro - MY-algia, she calls it fibro-Your_algia! Its so cute. I feel sad most days that I don't have the energy to devote to them that I thought I would when I had them. I haven't even taken them outside to play in the snow! But they will forgive that when they are old enough to understand!
fibromyalgia, Irritable Bowel, restless legs, polycystic ovarian syndrome.


willowsgrandma
Regular Member


Date Joined Jan 2010
Total Posts : 78
   Posted 2/19/2010 9:27 PM (GMT -7)   
blush cool eyes rolleyes jamie's mom, please try not to worry about the future...you know it'll just make the fibro worse. where do yall live? i live in a small east texas town. i wasn't happy about our snow-the cold makes my fibro worse. i think about this time last year. i hadn't yet began to show signs of fibro. last jan i suffered a spinal cord injury then surgery. i was in hospital for 26 days then in a nursing home 5 1/2 mo(no insurance then and still now). i started displaying subtle signs of fibro in march and was diagnosed in april. i moved here to my apt. july 1 and hate to say i have gotten a lot worse since. oh well...i'll just say my prayers tonight and i'll include you and yours. take care, Donna

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 2/20/2010 7:54 AM (GMT -7)   

I am happy to hear about your photography business!  I have a couple of friends with their own photography business and both are doing quite well.  I wish you the best of luck.

I couldn't do much with my children.  When they were very young, I was suffering with Crohn's disease badly and couldn't be away from the bathroom for any length of time.  It was horrible so trips to the park, picnics, were non-existant in my children's lives.  By the time they were in their preteen years, I came down with fibro.  I felt very guilty for many years but my now adult children have since told me that I was the best Mom of any of their friends.  I was always home for them, I had wonderful dinners on the table at night.  So, there are some benefits to this illness.  You are more likely to be home for your children when they really need you and need some help or advice.

I'm sorry your husband won't even try to understand.  It's times like these that I wish these types of people would be hit with fibro for just one weekend.  That would surely knock some sense into them!

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


livenlaugh
Regular Member


Date Joined Dec 2009
Total Posts : 387
   Posted 2/20/2010 8:24 AM (GMT -7)   
Hi!  I totally feel the same way as you from the pain to the husband that doesn't really believe that I have Fibro.  I also have two children 4 and 7.  If you want we can connect and talk to eachother.  I am not diagnosed yet but still feel the aches and pains especially in my upper body and head.  Keep your head up and take care of those kids!  They are precious and keep you laughing!
 
Lisa

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40573
   Posted 2/20/2010 1:29 PM (GMT -7)   
Hi jamies.mom,

I am really happy to hear about your photography business. That must feel awesome. I am glad that you wrote and updated us in what is going on. Fibro is so hard to live with at times, but we just have to keep plugging along. Try not to worry about the future, that is one good thing fibro did for me, I had to stop worrying about things and started taking life as it comes.

Best wishes to you for a lovely day.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


jamies.mom
Regular Member


Date Joined Dec 2006
Total Posts : 53
   Posted 2/21/2010 5:04 AM (GMT -7)   
Thank yo to everyone - as always! - for being there for anyone who needs to vent, cry, complain, or just talk. Hubby got up the next morning to my full wrath about his comments about me not having a problem. I think he knew he crossed a line. He quickly retreated and hid behind "I was just joking!". I informed him that successful jokes are the ones that make everybody laugh, so he must not be all that great at it! So I think he will refrain from those kinds of comments in the future! On a very happy note, I bought my camera yesterday. Well, my VISA did! I took my first portrait of my daughter last night, and it was so beautiful, we couldn't stop staring at it. I would post it, but don't know how here! It is a good sign that I still have a knack for capturing those perfect shots. And hey, if I can get a nice of my super hyper never sits still four yaer old, I should be able to do it with anyone!
fibromyalgia, Irritable Bowel, restless legs, polycystic ovarian syndrome.


livenlaugh
Regular Member


Date Joined Dec 2009
Total Posts : 387
   Posted 2/21/2010 7:46 AM (GMT -7)   
jamiesmom~ I would like to talk to you about how you are starting your business. I was also thinking of starting a business with premade scrapbooks and cards. Not quite sure where to start.thannks
Lisa

livenlaugh
Regular Member


Date Joined Dec 2009
Total Posts : 387
   Posted 2/21/2010 7:46 AM (GMT -7)   
jamiesmom~ I would like to talk to you about how you are starting your business. I was also thinking of starting a business with premade scrapbooks and cards. Not quite sure where to start.thannks
Lisa

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 2/21/2010 8:04 AM (GMT -7)   
I hope the business takes off like a rocket. We seem to have most of our pain in the same areas but many have the shoulder, neck and shoulder blade pain. The headaches can be horrible and the neck and headache is what usually gets me up at the crack of dawn, yesterday was 4 am and today 5. My children are all gone and I have earned the right to sleep as late as I want but can't.mad
 
I have the temp problem and it drives me and DH crazy. I have wore out one little heater this winter and we had to replace our remote control ceiling fan in the fall in the family room and I'm sure it was from turning it on and off so many times in the past almost 5 years.
 
It took my DH a long time to even begin to understand what I feel. I think it helps that he is almost 67 yrs old and has aches and pains of his own and his energy is getting less too. I think if I had gotten fibro very young like so many of you it would have been harder for him to understand. I sure would have a hard time understanding it if I didn't live with it day after day.
 
I hope things get better for you all the way around.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


jamies.mom
Regular Member


Date Joined Dec 2006
Total Posts : 53
   Posted 2/21/2010 5:16 PM (GMT -7)   
livenlaugh!
Good luck with your business! I am starting my photography business with my best friend. We have such limited financial means, so it is a challenge, but basically the start up cost is $3000, which is not bad for a new business, and I am lucky enough to have a credit card I can use for my half. We are smart girls, and have a business plan completed with market research, and a cash flow projection done for the next five years. Those are the two most important things for any one to have that wants to start a new business. It doesn't matter what kind of business it is, you need to have the paperwork to back it up, and goals for the future. If the market research doesn't show support for your business, then you either have to go back to the drawing board and tweak your idea to better match the needs of the people you will be marketing to, or scrap the idea all-together. The best way to do this is a survey, preferrably done with strangers who won't just give nice polite answers. My hubby surveyed almost seventy strangers, and 78.5 of them said they would definately hire us, and they told him what they would be willing to pay, which helped us to determine not only what to charge,but how many bookings we will need to have to be able to earn the kind of living we wanted. I don't know exactly what kind of info you wanted to hear, but anyone is free to ask for my help in starting any business. I don't know it all, but I know how to get started. Scrapbooking is a big thing, and even bigger right now is having someone else do it for them! Too many moms are too busy to learn how, but they all want to have them, since everyone else does, so if that is the avenue you are looking into, if you are good you should do well! If you need any help with business plan, projections, cash flow, ask away. What I don't know I know how to get. You might also want to look into local groups that specifically help people start their own businesses, maybe chamber of commerce could help, or the government. Good luck and let me know how it goes. I truly think that people with fibro have next to no place in high stress long work weeks. I see self employment as a way to earn what I need with fewer hour invested, and gives me the ability to work as hard or as little as I need to.
fibromyalgia, Irritable Bowel, restless legs, polycystic ovarian syndrome.

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