been feeling good, then bam! that's how it goes, huh?

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Date Joined Jul 2008
Total Posts : 1495
   Posted 2/20/2010 12:52 AM (GMT -6)   
I had a really good couple of weeks.  Worked in the yard all day on a Saturday and walked all over Ikea the next day without any adverse consequences.  I was very tired, but with a low pain level.  I was silly enough to think I was getting stronger and better.  My temporary disabled permit expired feb 10 and I asked for another temp one because I thought I was getting stronger and would not need it after another 6 months. 
I am getting stronger of course, but I guess I was unrealistic.  So yesterday and today were really tough days.  I toured the university where I was accepted for the phd program.  I am beat now.  The difference between me and the other students became obvious when we toured, stopped and stood around.  The other students did not seem to notice and acted like it was perfectly normal to stand around while I was suffering a lot! 
I am going to write my doctor.  She has been giving me 6-month temporary parking placards and I have to ask my doctor and go to dmv every 6 months to renew it.  It appears that no matter how much stronger I get, there will always be days like today where I need the placard.  There is no cure for fibromyalgia and that is not my only problem.  I also have arthritis, myofascial pain, hypermobility joint syndrome and bursitis. 
very tired today!

Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 2/20/2010 4:25 AM (GMT -6)   
Hi Sue,

It's so hard isn't it, when you have good days. As much as you welcome them, it's almost like your body is tricking your mind into thinking things are getting better, and then WHAM....reality hits again with more pain.

I think the one thing you can try to do is pace yourself. Even if you're having a good day, don't overdo it. Your body is going to experience good days and bad days, but by being aware of how much you're doing and what the consequences can be of overdoing it, you give yourself the opportunity to lessen those flares and higher pain days. Don't compare yourself to the other students - having Fibro (and other issues as well) means knowing YOUR body and how it acts and reacts - not how it measures up to others.

Good luck with your PHD program...what subject are you pursuing?

Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Nortriptyline
Other: Vitamin D, Multi-Vitamin

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 2/20/2010 9:31 AM (GMT -6)   
As long as I have had fibro I should know better too Sue but ....................  The little town where I live I don't have trouble getting parking places close to the door, most of the time, so parking isn't a problem for me. But when I go to one of the cities around us by myself I wish I had a card.
I hope things get better. When do you start the program???
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
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Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 2/20/2010 12:26 PM (GMT -6)   
I have know about the fibro for about a year and a half.  So based on some things the doctor said, some things I have heard here, and by the fact that my dr only gives me a temporary placard, I thought, "ok, I will never get completely better, but I will get stronger and be able to do more."  That is true to an extent.  I am not hurting every day all day like before - the exercise and meds and pacing, etc do help.  But I guess I didn't realize it could come back with such force and without warning.  (see how I pick and choose what I want to learn from everyone's posts here!)  rolleyes
Noticing the other students seemed to be oblivious to standing around so much was a reminder to me that I need to pace myself and not go by what others are doing.  It also makes it clear that fibro is not every day aches and pains.  I did not think that but some members' family have been unsympathetic in such ways.
I have been accepted into a human development program and am interviewing for developmental psychology program in a few days.  Both are at a UC in California.  I am really excited about it.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 40406
   Posted 2/20/2010 3:15 PM (GMT -6)   
Congradulations Sue!!! I always wanted to go into psychology, but didn't have the confidence to do so. I took some classes in college and really loved them.

Don't let a couple of bad days ruin your outlook. Because you will have more good days ahead of you. Many of them. As posted above, just pace yourself even on the good days. Sometimes when we feel good we want to get as much done as we can and we over do it.

Try to be optimistic and remember that there will always be a bad day here and there, but they go away and you do feel better.

In any case, I hope that you are having a good day today and I hope that you are getting sunshine as we are. Yippy!!

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

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