Lyrica for Fibro pain

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BigBry
Regular Member


Date Joined Nov 2008
Total Posts : 106
   Posted 2/20/2010 4:32 AM (GMT -7)   
Has anybody had luck with Lyrica for Fibro/Arthritis pain? I’m up to 225 mg a day and it hasn’t really helped. Has anyone had luck with higher doses? I take Celebrex as well 200 mg a day and as needed an extra strength liquid Advil and two extra strength Robaxacet to take the edge off the pain and stiffness. I won’t take narcotics so I’m looking for something that might help.
DX: IBS 00, +ANA 05, Depression 06, MCTD & Sjogren's 07, GER 08, NO Sjogren's 09, Fibro and all over tendonitis?????  
Life is what you make of it.  Just something I try to remind myself every day.


willowsgrandma
Regular Member


Date Joined Jan 2010
Total Posts : 78
   Posted 2/20/2010 12:52 PM (GMT -7)   
blush cool eyes rolleyes hi! i took lyrica r 5 1/2 mo. with little relief. i was taking 75 mg 4x daily the last 2 1/2 mo. i even got 30% off from mfr and it still cost me $218/mo. i went to a new dr. fridaya d he took me off lyrica and rxd savella. i will (within 8 days) be taking 59 mg 2x day. i called pharmacy..it costs aroune $138/mo. the dr told me friday he would give me 4-6 weeks samples and since i used to work for a clinic and am aware of how the drug reps leave sooo many samples i'm gonna ask for samples until they tell me no. why not? between office visits and rx costs, i am broke. i haven't personally heard of anyone "singing the praises of lyrica." i'm just praying the savella works! good luck. i'm hoping for the best for all of us. Donna

Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 2/20/2010 5:15 PM (GMT -7)   
I did the Cymbalta route and after 4 days I was in even worse pain. They wanted me on Lyrica but I couldn't do the $180 to
justify even trying it. That's way too much money. I finally found True Calm by NOW brand which is an herbal suppliment that
works in the same way as the above but without the devestating side effects. It works on the neurotransmitters and in the
3 months since starting it I've seen a marked decline the muscle spasms that go alone with fibro. The nice thing is True Calm
only costs about $10!!!! tongue

BigBry
Regular Member


Date Joined Nov 2008
Total Posts : 106
   Posted 2/21/2010 1:05 AM (GMT -7)   
Thanks for the responses and the info.

Bryan
DX: IBS 00, +ANA 05, Depression 06, MCTD & Sjogren's 07, GER 08, NO Sjogren's 09, Fibro and all over tendonitis?????  
Life is what you make of it.  Just something I try to remind myself every day.


daisyj
New Member


Date Joined Feb 2010
Total Posts : 13
   Posted 2/21/2010 6:51 AM (GMT -7)   
I started Lyrica about 6 months ago and it helped at first. the Dr. then wanted to raise the amount to see if it would help more; it didnt. It just made me dizzy and very weird feeling at work. I cut back to the lower dose and that was fine for a few months. Now my pain is worse and I dont know if the Lyrica is still working and I am just having a flare up or if the Lyrica has stopped working.

I am going to ask the Dr about Cymbalta. I wonder if you can take them both. But I have been concerned about all the side effects and dangers they both have.
~Daisy J~
Fibromyalgia, Chronic pain, anxiety & depression and 5 Herniated disc. (3 in lower back; 2 in neck)


Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4645
   Posted 2/21/2010 7:00 PM (GMT -7)   
Nana
Thanks for the info on the muscle spasms. I get them when I do any hard physical work and had no idea that could be from the fibro! They last at least all the next day.

BigBry
I tried Lyrica, gained a half pound a day. Then I was put on Neurontin (generic is gabapentin) and didn't have that problem and it works about the same. I only tolerate 100mg 3 times a day. I take the daytime doses along with tramadol 50 mg (some say it's a narcotic, some say it's not) because it wakes me up and makes me fairly happy and stops most of the pain well. I only take that twice a day unless I am having a bad day. NSAIDs don't work and Tylenol only helps a little bit along with something else, like the Neurontin. Narcotics don't do much either. I take a half of the smallest pill (1mg) of diazepam for muscle spasms - old drug and very good for spasms and cheap generic. The tiny amount I take is not tranquilizing. It's hardly ever the dose docs give out. But I find fibro makes me very sensitive to some drugs, so I always start with a half dose of whatever is prescribed.

Daisy and JustLive
I get dizzy from Neurontin (just like Lyrica but much cheaper), also sleepy. Taking it with tramadol takes care of the sleepiness. I have no stomach upset with them, but you might want to eat a little. I usually just take them with my coffee with a a lot of milk. I am really sensitive to anything that upsets stomach. I would try Darvocet, but it has sulfite, and I have a sensitivity/allergy to that. I have to look up everything!
Alcie
 
 


MEG25801
Regular Member


Date Joined Jun 2008
Total Posts : 204
   Posted 2/22/2010 8:41 AM (GMT -7)   
I have been taking Lyrica for little over a year now and swear by it.  about 6 months ago I tried to go off it because I didn't feel that it was working.  IT WAS!!!  I take 3 100mg pills a day.  No weight gain.  No other of the bad side effects.  It did take a while to get over the dizzy/light headed feeling but now I don't get it at all. I am considering asking the doc to raise the dose a bit to see if more of the burning pain will go away.
 
Good Luck!!
Missy
Diagnosed with Panic Disorder(16 yrs ago)-GERD(12 years ago)-GAD(16 yrs ago)-IBS(12 years ago)-DDD(6 years ago)-Arthritis(since teenager)-Controled HBP(2 years ago)-Diagnosed with fibromyalgia 9-29-08.
Meds: Cardizem CD~Prilosec~Klonopin(prn)~Daily Vitamin~Tylenol~Lyrica


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 2/22/2010 9:31 AM (GMT -7)   
Lyrica and neurontin made me suicidal. be careful.
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 2/23/2010 7:51 AM (GMT -7)   
I was on the highest dose and it made me suicidal. My Lyrica helps some...but not that much.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind. Dr. Seuss
 


RedDiane
Veteran Member


Date Joined Jun 2007
Total Posts : 906
   Posted 2/23/2010 10:40 AM (GMT -7)   
Everyone reacts differently. I started Lyrica over 2 years ago. I was a little dizzy and light-headed for a few days. It almost immediately helped me sleep without waking up during the night. I did gain weight, almost 30 pounds, but until I started Lyrica my sleep was so disjointed and bad that I was nearly desperate. I worked up to the maximum dose, but it didn't seem to help any more than the minimum. So now I take 100 mgs. of Lyrica at night. I don't think I could do without it. However, it hasn't helped my pain levels, like it has for some people. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 2/23/2010 2:35 PM (GMT -7)   
Lyrica does help my pain. I'm on 450mg per day. Weight gain....well I've already gained so much weight from prednisone I don't think I noticed any more problems in that dept from Lyrica.

I already have severe vertigo problems so if Lyrica makes me dizzy I wouldn't notice.

As others have noted, everyone has a different reaction to this med. You just have to try it to see if it works for you.

Good luck!
Lyme Disease, AIH, Hashimoto's, "lupus-like" CTD?, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel, Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP, Darvon, Morphine Sulfate

autoimmunediseasesgfliving.blogspot.com


TressiaN
Regular Member


Date Joined Jan 2010
Total Posts : 52
   Posted 2/23/2010 6:12 PM (GMT -7)   
I took Lyriica about 2 years ago, it did not help with the pain and i did gain 20 pds with it. I tried cymabalta after that and still no help with the pain. After alot of trial and error I finally got a good mix of meds that help. I take Ibuprofen 800 for the arthuritis, Lotabs for pain, and cymbalta for anxiety/depression. I had taken these meds before seperatly and with no help, but by taking them all together it helped a great deal.
 Diagnosed with -FM, Degenerative disc disease, spinal stenosis, arthritis, Lupus., undifferentiated connective tissue disease. 
Medications- Plaquanil, 800 Ibuprofen, Lortab, Cymbalta 


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 2/23/2010 8:07 PM (GMT -7)   
TressiaN said...
I took Lyriica about 2 years ago, it did not help with the pain and i did gain 20 pds with it. I tried cymabalta after that and still no help with the pain. After alot of trial and error I finally got a good mix of meds that help. I take Ibuprofen 800 for the arthuritis, Lotabs for pain, and cymbalta for anxiety/depression. I had taken these meds before seperatly and with no help, but by taking them all together it helped a great deal.


What TressiaN said was a reminder to me to add that not only do I take Lyrica 450mg per day but I ALSO take Cymbalta 60mg per day. My rheumy is convinced that this is a magical combination, and I have to admit it makes a difference. The pain is not gone but it is better.

So it's true that combos can help when the meds taken by themselves do not.

See my signature line for my total med list (and my dx list too).
Lyme Disease, AIH, Hashimoto's, "lupus-like" CTD?, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel, Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP, Darvon, Morphine Sulfate

autoimmunediseasesgfliving.blogspot.com


Lisers1
New Member


Date Joined Feb 2010
Total Posts : 4
   Posted 2/25/2010 10:01 AM (GMT -7)   
Hi BigBry,

You should check out my post from the other day; it is listed Guaifenesin for fibro/acid reflux. I highly, highly recommend the book I talked about. The friend who recommended it to me has been on the guaifenesin for several years and tried going off it to try other meds including Lyrica and always got worse being off the guai. I have seen great improvement in both my pain and fatigue. I know different things work for different people but guaifenesin is worth a try.

Snue
Regular Member


Date Joined Feb 2005
Total Posts : 194
   Posted 2/25/2010 11:43 AM (GMT -7)   
I'm having success with Neorontin, 200 mg, 3X a day.  From what I understand it is very similar to Lyrica, but for me it's a lot cheaper.  No weight gain, no side affects (for me).  I find it helps with the stabbing fibro pain.  I still have the achy flu like symptoms sometimes.  But overall, the Neorontin has made things better.
I agree with the person that said everyone is different and everyone reacts to things differently.

LizzieLouLou
New Member


Date Joined Feb 2010
Total Posts : 1
   Posted 2/25/2010 12:40 PM (GMT -7)   
I was diagnosed with FM in January 2006, but I've had it for years and didn't know there was a word for it. My husband use to have to pull me up out of bed, I hurt sooooo bad. Right now, I'm taking Zanaflex(2mg) every night for the restful sleep that we have to have. I'm just as tired in the morning as I was when I went to bed. I take 60mg Cymbalta every morning, along with a Prilosec for Acid Reflux & Gerd, Vitamin D(50,000 IU, once a week), Nabumetone(750 mg twice a day) for pain..I have IBS, tinnitus, interstitual cystitis, etc..My pressure points are so bad.. I'm trying to walk to lose weight, because my heart wants to jump out of my chest sometimes, so the heart Dr thinks I need to lose some weight first to see if it helps with that.
We'll see..ha-ha

Post Edited (LizzieLouLou) : 4/8/2013 2:29:19 PM (GMT-6)

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