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Date Joined Feb 2010
Total Posts : 2
Posted 2/20/2010 11:15 PM (GMT -6)
Hi, I have been in a FM and Sjogrens flare. Since Dec 21, I've gone through 1 1/2 months of bronchial pnemonia & pleurisy along with extreme fatigue and illness. I had two weeks grace , then my hips flared up , stress (for no good reason) , fatigue, depression & anxiety set in on another flare up and now I'm sick again with a sinus cold going down into my lungs again!! I am so beside myself & frustrated. I went off prozac about
a month ago as well and thought I was doing well emotionally & mentally. I tried to quit smoking again today and had a major anxiety attack. I am so low right now :( Well, I just went out to the garage and hit my elbow on the door jam, the pain I felt was like never before EXCRUCIATING is an understatement...I somehow flew screaming into my bathroom, bawling my eyes out and whailing in pain and distress. I feel like I had a total breakdown. I guess are pain is worse when we just bump into something? This is ridiculous. I'am concerned of the unknown future. Just stating that fact. I know there is nothing anyone can do anyways. Thanks for listening. I am 43, at another low..this will pass
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Date Joined Sep 2007
Total Posts : 40405
Posted 2/21/2010 12:10 AM (GMT -6)
Welcome to the HealingWell fibromyalgia forum. I am so happy that you have joined us. Yes, I think that our pain is magnified. And there for no reason. It is hard dealing with fibromyalgia, but as you will here mentioned here, it isn't a death sentence. So we have to learn to adjust and live with the pain and fatigue. No fun, but it can be done.
If you get a chance, check out the fibro 101 thread. It is the second one on the forum. It has a lot of great information and you will find out that you are definately not alone in your suffering. We are right here with you. Some of us have worse pain than others. I myself have had my pain at a controlable level for quite some time now. I still have hard days, but it is tolerable.
I think that by coming here you will find that you are among friends, and among people who do understand. Many of us have other illnesses along with fibro also. That is a huge battle I know. And a lot of us with fibro also suffer with depression. That is another battle in itself.
The best thing to try to do is keep moving. Do gentle stretching from time to time and try to walk if you can't do other things. Walking is so good for you. Swimming is even better if you are able to. But I mostly walk. I was even able to work a part time job for a few months after not working for seven years. So I hope that you can see it can be livable and tolerable. But it is work on our part too. The most important thing I think is to avoid stress. Stress really makes the pain worse. Try not to worry about
things either. take life one day at a time, one moment if you have to.
Keep posting and reading. You will find you have your fibro family now to keep you company. There is a wonderful group of people here and they are so understanding.
I hope that you start to feel better soon.
Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies
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Date Joined Jan 2005
Total Posts : 9090
Posted 2/21/2010 1:45 AM (GMT -6)
Hi Emobender and Welcome!!
I understand your comment about
"there's nothing anyone can do" but may I politely disagree with you? One thing we can do that many others can't is we can care...and we care deeply with the understanding that comes only from those who've been through your pain and misery.
I have fibro, PTSD, arthritis in my spine along with one disk that's collapsing, and on and on. And yes, when we bang into things the pain we sense is way more that most people feel. Just over a week ago I did a very similar thing, smacking my 'funny bone' on a door jam and it sent me into tears with pain and frustration. It's a very lonely feeling even when we have family that truly cares but it's times like that when I remember I have wonderful friends here whom I can turn to for understanding and friendship.
We have a disorder that isn't well understood, some doctors who refuse to get their heads out of the dark ages and recognize it, and is most often under-treated. But it's not life threatening yet is is life altering. Most is not for the good but if we thing about
it there might just be some good hiding in that cloud of gray. We are forced to slow down and not only smell but see and feel the roses. We appreciate small moments of joy like others can't. And we have compassion that others can only imagine. So when I disagree and say there IS something we can do you understand where I"m coming from. We do understand and we do care and we will hold on to you and sit with you and cry with you from time to time. And all of these things are very healing. Plus we can offer our experiences with doctors and pain control in hopes they might help you too.
Plus when you come here you will always find a hug somewhere...
Warmest hugs and welcoming wishes!
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.
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Date Joined Jan 2010
Total Posts : 1097
Posted 2/21/2010 11:12 AM (GMT -6)
Hi Emobender and welcome!
I absolutely agree that we probably feel pain differently than the "average" person. I am hypersensitive to pain...what might feel like a mild bump to someone else is amplified 100% for me...so that could be what you experience as well.
Please do read the Fibro 101 document as getting by and Chutz recommended. There's a lot of great information there. We're a good group here and happy to help, share and listen. We're all in the same boat, so we really understand what you're going thru.
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Nortriptyline
Other: Vitamin D, Multi-Vitamin
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Date Joined Aug 2009
Total Posts : 159
Posted 2/21/2010 11:57 AM (GMT -6)
Welcome to our fibro group of people. May I just say these are very special people. So many times I have come here to the forum feeling low, hurting and so fatigued, only to read some posts by others and come away feeling more hopeful. I myself have just come off a 5 week flare of extreme exhaustion, pain, shortness of breathe---I could go on! So, I DO know what you are feeling. And it does end, sooner or later, in its own time.
Yes, we are more sensitive to pain than NORMALS! I'm forever ramming my shoulder on a door frame or some other stupid thing I do to myself and in excruciating pain. Just the other night, my DH turned over in bed, winged his foot forward (for a love tap) and jambed his large toe into my shin. Oh, the pain and throbbing and it continued. He felt so bad, it was "only a tap". But only a tap to fibro people is sometimes like being jammed with a steel rod at full force!
Anyway, welcome. This too will pass, just pace yourself, keep warm and know that the forum people are here for you.
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Date Joined Apr 2005
Total Posts : 17059
Posted 2/21/2010 1:47 PM (GMT -6)
Hi, Emobender, and welcome! Oh, yes, we are more sensitive to pain. When my kids were teenagers, they would playfully swat my arm and I would yell out in pain and would swear that I would have a bruise from it. But that never happened. I wince when my son gives me a hug. I never have told him it hurts me because I only see him once a year and I'll gut it out and remind myself he hugs hard because he love me a lot. So, you are not alone.
I see that Karen directed you to Fibro 101. There are links there to a lot of good info about
fibro, including a list of symptoms. You will be surprised that some of the things happening to you are really connected to this illness!
Be sure to keep moving. If you sit or lay too much, you will be stiff as a board and have more pain. You need some stretching exercises and a regular gentle exercise that you can do daily. There are some good stretching exercises on Fibro 101. Walking and swimming are my forms of regular exercise and I always feel better and have a better outlook when I get back home. I try to remember all the things I can do in spite of fibro and I do count my blessings a lot.
Just try to keep a positive attitude and take one day at a time. You know you can handle that! This helps with the depression. Also, keep a good sense of humor, too. I laugh at myself frequently...especially with the fibro fog!
I'm so glad you found us and joined in. Don't hesitate to ask questions because we are here ot help you. I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
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