fibro with limited pain?

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thesleepofreason
New Member


Date Joined Feb 2006
Total Posts : 9
   Posted 2/24/2010 4:19 AM (GMT -7)   
is it possible to have fibromyalgia with limited pain? i have so many of the other symptoms but i do not notice the pain. here is the run-down of what's going on with me:
 
i have chronic and terrible heart burn. i have to take excessive doses of over-the-counter HB pills to quell it.
 
i have nightmares every time i sleep. literally. i sweat in my sleep, too.
 
i have various issues with sleeping, delayed sleep phases, inability to wake up, inability to sleep when i should. insomnia, super-somnia, and i do not typically function on a 24 hour schedule.
 
i've had upset/sick stomach my whole life.
diagnosed w/ulcers at age 9.
 
HIGH ANXIETY. about EVERYTHING. sometimes i get upset thinking about made-up scenarios with MADE UP PEOPLE. like i just imagine "what if this, then this--" and get really upset in a literal way.
 
depression. not sadness per se but very symptomatic of it. diagnosed as depressive. diagnosed as agoraphobic as well.
 
i have a real bad problem with motivation/fatigue. i feel tired all the time. i typically want to do things that are low-engery or 'restful'--like play online whilest laying in bed.
 
i get sick all the time, i have a low immune system.
 
i rarely feel "good."
 
i feel weak often (tho i'm a strong boy). i just feel limp in my muscles sometimes.
NO ENERGY.
 
some days i cannot see very well. like more than just eyesight issues. it seems to correlate with sleeping not enough/too much--things seem blurry and i cannot focus.
 
i often cannot concentrate. reading actually becomes burdensome.
 
i get migraines a lot. this too correlates with sleeping too much or not enough.
 
i've been diagnosed with and have an on-going problem with low-blood sugar. i feel faint often.
 
i have heart arhythmia all the time for no reason. it makes me feel light headed as well as naseous sometimes.
 
i have TMJ-jaw problems. grinding, hurting, locking of the jaw socket.
 
my hip hurts often from how i lay/sleep.
i often "sleep wrong" and get pains.
 
my back's gone out 2 times in 3 years (i'm in my 20s!).
i get random pains from little use. like i get rotator cup pain from PAINTING. it makes me feel weak/broken.
i get knee pain now and then, as well as ankle/wrist pain.
 
i just dont think the "joint pain" is the over-riding symptom as much as sleep problems, stomach problems, fatigue and motivation problems.
 
the motivation thing is REAL BAD. i do not do as much as i want to do. i just don't have the get-up and go to do it.
 
could this be FIBRO?

thesleepofreason
New Member


Date Joined Feb 2006
Total Posts : 9
   Posted 2/24/2010 4:20 AM (GMT -7)   
btw i've been sick with a cold lately--and tonight my temp was sub-normal it was 93-96 degrees.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 2/24/2010 5:05 AM (GMT -7)   
Hi, Sleep, and welcome!  Well, I'm not sure what is going on with you.  My guess is that anxiety and stress is playing a big part in what is going on with you.  That can make you feel weak.  Anxiety and depression many times goes hand in hand.  Depression can make you sooo unmotivated to do anything.  I'm diabetic and I know, when my blood sugar is too low, I get weak...like my arms and legs are made of rubber. 
 
You do need to do some exercising daily.  If you have fibro, you need to do gentle exercising (things like walking and swimming)and stretching exercises.  Otherwise you will be stiff as a board.  Also, exercise is so good for your muscles and will help strengthen them.  There is a saying...If you don't use it, you lose it"...and that is so true.  You need to keep active or you will get weak. 
 
I would suggest for you to see a doctor that treats fibromyalgia patients.  Be sure to ask because some doctors still don't think fibromyalgia exists!  I use a board certified Internist as my doctor but many here use a rheumatologist.  Take the list you just gave us and let them know what is going on with you.  They will run a lot of blood work to rule out other illneses that have the same symptoms as fibromyalgia.  If everything comes back fine, then you will most likely be given the diagnosis of fibro.
 
Be sure to check out Fibro 101...the second thread on the forum.  There are links to good information about fibromyalgia, including a link called What Else Could It Be.  You will learn a lot in Fibro 101.
 
I hope you find the answers to your questions soon.  It's so difficult to not feel well but don't have a clue why.  Keep us posted and let us know what you find out.  
 
I'm so glad you found us and joined in.  I hope to hear more from you soon.
 
Sherrine 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


thesleepofreason
New Member


Date Joined Feb 2006
Total Posts : 9
   Posted 2/24/2010 6:43 AM (GMT -7)   
i've been treated numerously for depression, often against what i think is actually wrong. i went to the dr for sleeping too much: BOOM anti-depressants, with no change/effect.
same with anxiety. i guess my point is i've been checked out by specialists, drs and psychietrists, they all just sort of throw out "depression" as a blanket term and throw anti-depressants at me. not one ever made me feel better, and i tried it for years, switching meds, etc. i'm happy with my life and generally in good spirits, but i'm sort of negative and have a deery attitude towards most people (i guess i'm a bit of a hermit?)

i've sort of dismissed the idea of it being CHEMICAL depression and believe most of my depressions have been circumstantial. i pulled myself out of most funks.

but i mean...i feel even less productive during winter (SADS?) but i generally stay away from bright lights. my apt is dim with the shades always drawn.

i know i have a sleeping disorder but i do not know how to get that checked out or fixed...i actually got sick of going to the doctor for my gut-aches and sleep/depression issues because it's almost like they won't believe me. they dont' seem to be able to think outside the box. if it's not the really common things they diagnose (and test for) they just sort of dismiss it or blanket it with some all-encompassing term.

eh. doctors...

not to mention i do not have health insurance anymore (self-employed, in my 20s, i'm all alone when it comes to health care).
so i don't really have the ability to start paying for a billion expensive tests...

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40578
   Posted 2/24/2010 9:21 AM (GMT -7)   
Hey Sleep,

I just wanted to mention, if you are dealing with depression, you are welcome to come over to the depression forum. We would love to have you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 2/24/2010 9:43 AM (GMT -7)   
Hi Sleep,

Welcome to the forums. After reading your post, it struck me that you don't seem to really have Fibro symptoms, but definitely a sleeping disorder. Is there a sleep clinic your doctor could send you to? That would be the first thing I would suggest, as I think that would provide you with a lot of answers.

The second thing I noticed in your post was a high level of anxiety/stress, etc. Rather than meds for depression, you might want to ask about medications to help with the anxiety...I think that would help a lot of your other symptoms settle down. I think you also need to ask for medication for Gastric Reflux (GERD) for your severe heartburn. Taking excessive amounts of OTC stuff is a sure sign you need more help. I suffered from GERD for years and used to think eating handfuls of Tums at a time was normal. There is a GERD board here as well you might want to check into. You would be surprised at the number of ways that having GERD can affect your body.

The other thing I would suggest is some counselling or cognitive behaviour therapy, to help you deal with things going on in your life. I'm not saying things are all in your head, but there are ways you can manage the symptoms you're experiencing, with the right tools.

I'm glad you found us, and I hope my suggestions help. I'm not a doctor, but I've experienced some of what you've described and I know how important good sleep is for feeling healthy. I wish you the very best in getting answers and I hope you'll keep posting to let us know how you're doing.

hugs,
Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Nortriptyline
Other: Vitamin D, Multi-Vitamin


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 2/24/2010 2:49 PM (GMT -7)   
What are you doing about the low blood sugar? Hypoglycemia could cause many of your symptoms; anxiety, sleep trouble, difficulty concentrating, blurry vision, lack of energy, weakness, heart palpitations, etc.

WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 2/24/2010 3:29 PM (GMT -7)   
That sounds about like me.

I don't have nearly as much pain as some people here do, but I was diagnosed with Fibro last year.

thesleepofreason
New Member


Date Joined Feb 2006
Total Posts : 9
   Posted 2/24/2010 9:07 PM (GMT -7)   
hey whitechoc,

tell me more, please.
what lead you to checking it out? what turned you on to the idea of it being fibro?
what are your symptoms?
how'd you get diagnosed?
and finally, does knowing/getting medical help make your condition better?

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 2/24/2010 10:16 PM (GMT -7)   
Hi and welcome!

Fibromyalgia is a chronic disorder that leaves you in pain 24/7. The degree of pain varies from person to person but most people live with pain pretty much all of the time. Pain is the main problem of people with fibromyalgia but most do have other symptoms that seem to go with it.

As far as 'getting better' it doesn't happen. There's no cure for fibromyalgia. If you have it, you have it for life. A lot of the literature out there says it's not progressive but I haven't heard one person on this forum ever say that they would agree with it. Each year fibro symptoms seem to increase and there is still no research that can define the problem. Without knowing what causes muscle pain there can be no absolute treatment nor cure. There are treatments that can help with the pain but none work for everyone because of this problem.

Fibromyalgia is not a disorder you would want to have. If you could see the faces of the people of this forum you would understand. If you will take the time to read the Fibro 101 thread at the top of the page you will find a list of symptoms and other information you are looking for.

Another suggestion I would have for you is to see a good psychologist. If you are having as much medical trouble as you list then a good pain counselor or medical psychologist can be very helpful.

Good luck,
Chutz
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


thesleepofreason
New Member


Date Joined Feb 2006
Total Posts : 9
   Posted 2/24/2010 10:28 PM (GMT -7)   
hi chutz
thank you. i went over the 101 section thoroughly. but Whitechoc said they have the same symptoms minus the massive amounts of body-pain which would indicate something similar to what i'm talking about.

i just can't imagine that all these things wrong are not connected.

as for a psych, been there, done that. done counseling, done all manner of meds. i've never considered fibro before just now, actually i never knew anything of it. i'm just checking into the possibility.

i've already checked into depression and many other problems. i've had a lot of blood work and a lot of other things checked out...
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