Pure Exhaustion

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SarahBear9708
Regular Member


Date Joined Jun 2009
Total Posts : 286
   Posted 3/5/2010 2:40 PM (GMT -7)   
My exhaustion has been SO bad lately. I slept for over 12 hours last night and I am SO exhausted. I take a B complex, Vit D, and Iron. It can't be from lack of those. So my only guess is that its the fibro/cfs.

I also know I have been over doing it with work, but I can't help it, I have to work, or else we'd be homeless.

Anyone have any tips or suggestions on having at least SOME energy?

Thanks in advance!
"Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength."

"You were only given this life because you are strong enough to live it."

~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*

Dx: Fibromyalgia, Chronic Fatigue, Trigeminal Neuralgia, TMJ, Migraines, Anxiety, Insomnia, Acid Reflux, RLS, Asthma.

Rx: Celebrex, Buspar, Savella, Lyrica, Requip, Nexium, Symbicort, Compazine, Lunesta.

Supplements: Vitamin B12, Vitamin D, Vitamin C, Ginseng


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17098
   Posted 3/5/2010 3:34 PM (GMT -7)   
I see you are taking Vitamin D but have you had your levels checked?  I was taking 1,000 IU of D3 for over a year and my doctor checked my levels and I was still low!  I'm now taking 3,500 IU a day and will be having the levels checked again in a few weeks.  So, you still might not be getting enough D. 
 
I use malic acid/magnesium supplements and there is a link in Fibro 101 all about them.  They have really helped me with the fatigue, too.
 
Lastly, gentle exercise really helps with fatigue!  I walk as my main exercise.  Some days I have to drag myself out of the house but, after a 1/2 hour walk, I have more energy. 
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


jamies.mom
Regular Member


Date Joined Dec 2006
Total Posts : 53
   Posted 3/6/2010 8:19 AM (GMT -7)   
I have no suggestions, as I myself am ready to drop from exhaustion. I didn't have money to get my amitryptiline last week, and won't until next Tuesday. Since Wednesday I have been sleeping pooly. Laying awake until 2am or 4am, then sleeping for an hour or two then waking up again. I also have my "monthly", and it is particularly bad this time around, and the timing couldn't be worse. I have lost so much that I am weak, and getting dizzy spells a few times a day. I can hardly move. And as tired as I am, I know that going to bed won't help. I will just toss and turn. I hadn't realized how much I really needed those meds! When I go to bed now I am just so uncomfortable. I feel like someone took away my comfy bed and replaced it with some lumpy cheap hotel bed! My neck hurts, my back and hips hurt, my arms feel like they are just in the way! And my kids are too needy lately for me to take it easy. Okay, enough whining, it's your post! I wish I could help. I know you say you have to work, but is there any way to look into finding a less demanding job? Or asking your boss if you could lighten your work load for a few days until you are feeling better. Maybe taking one or two sick days, or putting in a vacation request? I know not everyone has a nice job that lets them do these things,but it sounds like maybe you need a day or two to yourself. I hope you get osme nice suggestions from other people here.
fibromyalgia, Irritable Bowel, restless legs, polycystic ovarian syndrome.


ksny_ru
Regular Member


Date Joined Mar 2010
Total Posts : 30
   Posted 3/8/2010 1:47 AM (GMT -7)   
Hello
Ask your doc about provigil.
"Life is 10% of what happens to me and 90% of how I react to it."
"If you don't go after what you want, you'll never have it. If you don't ask, the answer is always no. If you don't step forward, you're always in the same place."
--------------------------------------------

~KSNY_RU~
 
- Fibromyalgia, PTSD, IBS, Migranes, RLS, back problems
- Lyrica, Adderall, Ambien, Celexa, Norco, Clonazepam, Flexeril, Phenergan, Motrin
- Vit D, Calcium 1200


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 3/8/2010 7:43 AM (GMT -7)   
I wish I had the answer for the fatigue since that is my biggest problem most days. I also need my D checked again to see where it is now.
 
Provigil was my suggestion too. It didn't work for me but it does for some.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/8/2010 7:50 AM (GMT -7)   
I feel your pain. I got a good nights sleep lastnight and had a very relaxing weekend, but I can barely keep my eyes open today. Have been trying to drink alot of fluids to see if that will help, but no luck so far. Gentle Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 3/8/2010 10:22 AM (GMT -7)   
My vitamin D levels were back up and I was still feeling major fatigue. Found out that I was
potassium deficient and now make sure I drink a couple glasses of V-8 during the day to get my
levels back up. Potassium deficiency can cause fatigue. Rheumy also suggested that I start taking
B12 5000 mcg 1x daily. I'm feeling more energized, it might be the weather improvement too.
Hope we all feel like the energizer bunny soon!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 3/8/2010 11:39 AM (GMT -7)   
I second Provigil
 
I could not at this point get up and go to work everyday the way I sleep without it.
 
 
Monica
 
Lyme, Fibromyalgia, Anxiety, IBS, Reflux, Insomnia,Sleep Apnea
Current Meds: Tramadol, Percocet for break thru pain, & Adavan
Taking it one day at a time.... 


kathydownunder
Regular Member


Date Joined May 2009
Total Posts : 447
   Posted 3/8/2010 12:02 PM (GMT -7)   
Well all my levels are good and I seem to go for so long not sleeping and then I just crash. Thenn for about 3 days all I want to do is sleep day and night then I start all over again. The Doctor can not tell me why, it just seems to be my way of catching up on all the sleep I have nissed.

Kathy

FMS, CFS. IRS, Migraine

SarahBear9708
Regular Member


Date Joined Jun 2009
Total Posts : 286
   Posted 3/8/2010 8:57 PM (GMT -7)   
What is Provigil?
"Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength."

"You were only given this life because you are strong enough to live it."

~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*

Dx: Fibromyalgia, Chronic Fatigue, Trigeminal Neuralgia, TMJ, Migraines, Anxiety, Insomnia, Acid Reflux, RLS, Asthma.

Rx: Celebrex, Buspar, Savella, Lyrica, Neurontin, Requip, Nexium, Symbicort, Compazine, Lunesta.

Supplements: Vitamin B Complex, Vitamin D, Vitamin C, Iron


ksny_ru
Regular Member


Date Joined Mar 2010
Total Posts : 30
   Posted 3/9/2010 5:58 PM (GMT -7)   

Provigil (modafinil) is a medication that promotes wakefulness. It is thought to work by altering the natural chemicals (neurotransmitters) in the brain.

Provigil is used to treat excessive sleepiness caused by sleep apnea, narcolepsy, or shift work sleep disorder.

Provigil may also be used for other purposes.

I work in the hospital and i know couple docs take it to stay awake/concentrate better or when they come off the shifts. I have very bad exhaustion and no concentration, bad fog. So i take adderall which is a stimulant. I take 20 mg extended release in the morning and then 5-10 mg in the afternoon because otherwise i crash. If i dont take it i can barely function, i cant even read...

It is something to look into if you have exhaustion on daily basis like me. Read some more about provigil and adderall on google smile


"Life is 10% of what happens to me and 90% of how I react to it."
"If you don't go after what you want, you'll never have it. If you don't ask, the answer is always no. If you don't step forward, you're always in the same place."
--------------------------------------------

~KSNY_RU~
 
- Fibromyalgia, PTSD, IBS, Migranes, RLS, back problems
- Lyrica, Adderall, Ambien, Celexa, Norco, Clonazepam, Flexeril, Phenergan, Motrin
- Vit D, Calcium 1200


SarahBear9708
Regular Member


Date Joined Jun 2009
Total Posts : 286
   Posted 3/9/2010 8:40 PM (GMT -7)   
Thank you!!!
"Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength."

"You were only given this life because you are strong enough to live it."

~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*

Dx: Fibromyalgia, Chronic Fatigue, Trigeminal Neuralgia, TMJ, Migraines, Anxiety, Insomnia, Acid Reflux, RLS, Asthma.

Rx: Celebrex, Buspar, Savella, Lyrica, Neurontin, Requip, Nexium, Symbicort, Compazine, Lunesta.

Supplements: Vitamin B Complex, Vitamin D, Vitamin C, Iron


harleybluz
Regular Member


Date Joined Sep 2009
Total Posts : 122
   Posted 3/10/2010 12:39 PM (GMT -7)   
Wow, I just looked up Provigil and it's very expensive.  The adderal is a generic so that's quite a bit cheaper.  I don't know which one works better but the price difference is something I would "have" to consider.  I've been so exhausted I've been sleeping at lunch (for over a year now) and now it's even harder going back to work after that.  I used to feel refreshed after an hours nap.  It's really scary because I cannot afford to lose my job and right now I don't know how I'll get through my day.  I guess I'll talk to the Doc and see if she thinks the Adderal will do any good without keeping me up at night.  You know...I think the exhaustion is worse than the pain.  And that's saying alot.

This is no Social Crisis... Just another Tricky Day (The Who)

 


SarahBear9708
Regular Member


Date Joined Jun 2009
Total Posts : 286
   Posted 3/10/2010 8:50 PM (GMT -7)   
I agree with that statement of the exhausting being worse then pain. I feel like with pain I can either push through or take a pain pill. With the exhaustion, I can only try to fight it, I find that I seem to fail at it most of the time. *sighs* I just wish fibro would disappear.
"Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength."

"You were only given this life because you are strong enough to live it."

~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*

Dx: Fibromyalgia, Chronic Fatigue, Trigeminal Neuralgia, TMJ, Migraines, Anxiety, Insomnia, Acid Reflux, RLS, Asthma.

Rx: Celebrex, Buspar, Savella, Lyrica, Neurontin, Requip, Nexium, Symbicort, Compazine, Lunesta.

Supplements: Vitamin B Complex, Vitamin D, Vitamin C, Iron


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 3/10/2010 11:00 PM (GMT -7)   
Being hydrated helps with exhaustion and staying away from caffeine after a certain time. I try not to have caffeine after 4:00. V-8 is a good idea!

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 3/11/2010 7:32 AM (GMT -7)   
I just had blood work done except for the D, we forgot, and everything came back fine. I have been thinking about having a sleep study done. I was going to a couple of years ago but it seemed to get better so decided not to have one. Now I have been having trouble sleeping for over two months and it is getting to me big time so maybe it is time to have one. On those rare nights when I feel like I have gotten some good restorative sleep it sure makes a difference in how I feel and function.
 
I have too much life to live to be tired all the time. I had about 4 good months of more energy and motivation and then when the sleeping problems began again poof it was gone.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


ksny_ru
Regular Member


Date Joined Mar 2010
Total Posts : 30
   Posted 3/12/2010 10:12 AM (GMT -7)   
well i take adderall and i love it. It raises my blood pressure a bit but it will take couple months to adjust. It realy depends on each person so you need to speak with ur doc. On the other note i know that caffeine is bad for us! So keep that in mind.
"Life is 10% of what happens to me and 90% of how I react to it."
"If you don't go after what you want, you'll never have it. If you don't ask, the answer is always no. If you don't step forward, you're always in the same place."
--------------------------------------------

~KSNY_RU~
 
- Fibromyalgia, PTSD, IBS, Migranes, RLS, back problems
- Lyrica, Adderall, Ambien, Celexa, Norco, Clonazepam, Flexeril, Phenergan, Motrin
- Vit D, Calcium 1200

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