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New Member

Date Joined Mar 2010
Total Posts : 2
   Posted 3/6/2010 9:29 AM (GMT -6)   
Hello, this will probably be all over the place sorry, this is really hard for me to do. A bit about me, im 28 this year, i got diagnosed with fibro about 2 years ago but i first went to the doctors for pain when i was about 10.
I got through school ok with the pain and stuff, just missed the odd day here and there. When i finished i mainly worked in heavy labour type jobs like concreting, yeah smart, i know lol. I worked very hard until my body gave out on me, i tried a few lighter work options after that but i was wrecked and had to stop working and have continued to get worse ever since.
Ive been to many doctors and specialists, ive tried alot of medications which either dont help or make me sick. Im in so much pain all the time its hard to do everyday things and even get through the day. I hardly sleep, went 8 days without sleep not long ago. I throw up pretty much everything i eat and am apparently fairly thin. Im depressed all the time, i cant remember the last time i was happy, i drink to much and am unwell on my current medication. The thing that makes things even more difficult is i have a severe social anxiety problem, the only thing i leave the house for these days is the doctor and thats not often. I tried to help this by making friends online and i put everything i had into the friendships but because of the way i am it seems ive lost them.
Sorry for the rant, i feel like a sook now lol but is good to get it out. I apologize if i dont post again but this one took so long to build up the courage to do. Thank you for reading.

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 3/6/2010 10:05 AM (GMT -6)   
Welcome to the forum Wulver. I am sorry you are suffering. this forum has been a
blessing for many, myself included. There are people here who really understand the
pain because we live with it. The members of this forum are caring and supportive.
We are family and are here for eachother.

Finding the right meds as you already know is trial and error. I am taking Savella, a
SNRI. It helps keep up my serotonin level. I take a muscle relaxer when I'm flaring.

I know you probably know this but isolation isn't helping you. You have made a good
first step by reaching out for help here. It feels good to be able to let your feelings
out. Stress contributes to our pain. The more we can do to help ourselves the better.

Excercise helps me. I'm a walker. If you don't move you hurt all the more. Heat is a
fibromites friend. Soaking in a hot bath helps me relax. I also do relaxation therapy,
a combination of deep breathing excercises and meditation.

On the top of page one you will find a thread titled Fibro 101. There is lots of good info.

Please post often and ask questions, let us know how you are doing. We really care!

Hugs, Robin

Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
Regular Member

Date Joined Dec 2006
Total Posts : 53
   Posted 3/6/2010 10:12 AM (GMT -6)   
Hello. SOunds like you have had a rough go of things. It is hard to build a quality life when dealing with that. I do think that quitting drinking would go a long way towards making you feel a bit better, but I know it is hard to do. I don't have nearly as much pain as you do, so I can't say I understand about that, but as someone who has hardly slept for the past three days (and has two active children under the age of four) I know how debilitating just the fatigue alone can be. And I would never leave my house if my family obligations and work didn't force me to. I look terrible lately, too much food and not enough sleep have left me looking puffy and pale and always like I am severely hung-over. I can't stand having people look at me anymore! So I understand the social aspect. But it is important for you to work on trying to feel better. Do you have any hobbies? I find a good hobby can make you feel pretty good. Even if it hurts to do it! i knit even when my arms and wrist and neck are killing me, because I just can't put the needles down! Maybe you should try to find ways to be creative. The bonus is it can keep your mind from focusing on the pain, and you can end up with something nice to keep or to give away to a friend or charity. Even if you just take up whittling little toys for neighborhood kids, you would be giving yourself a warm sense of usefulness and accomplishment, and from what you say, you could use it! I hope you do write back. Don't worry about ranting, when you start to feel a bit better about yourself, you will be able to help others here rant themselves!
fibromyalgia, Irritable Bowel, restless legs, polycystic ovarian syndrome.

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 3/6/2010 10:32 AM (GMT -6)   
Wulver, I forgot to add that I believe that we all have the power within us to make
positive change to do what we can do to help ourselves. The mind is a powerful tool
and wanting change is a good first step. Believing it is possible gets the ball rolling.

I'm so glad you joined us!

hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Irish Babe
Veteran Member

Date Joined May 2007
Total Posts : 1371
   Posted 3/6/2010 10:36 AM (GMT -6)   
Good morning, Wulver! I'm so glad that you decided to join us. I lurked here for awhile before I joined, I wanted to see what kind of ppl were here. I had never been on the 'net before and wasn't sure I would like it. I saw that ppl were very kind, since I've come here I have found that the ppl here are so wonderful. They share info, but mostly they share from the heart. It makes such a difference.

You do have courage, you have been living w/ pain since at least the age of 10. Sometimes you don't realize the amount of strength you have within you, BUT it's there.

I have a very hard time w/ meds, they don't work or they make me sick. I am on NO rx meds for Fibro, I take Tylenol Arthritis and PM, they don't take away my pain, nor do I sleep like a baby, but they don't make me sick. lol I suffer from chronic nausea, I take Reglan for that. The problem is the med makes me sleepy, so I can't take it and drive or anything I must be alert for, but it does help w/ the nausea.

Most of us find that exercise helps us. Now, I'm not talking training for the Olympics, most ppl walk or swim. I can't swim, but I can walk.
The secret is really no secret at all, as w/ anything in life, Don't overdo. Start small, work your way up. A five minute walk out in the sunshine is a gift we give ourselves. I cannot get down into the tub for a bath, but I take a hot shower every night. I have my beloved heating pad ready at all times.

I tend to keep myself at bay when I don't feel well. It doesn't help, really! Just letting your feelings out is such a physical release of stress. Stress is our enemy, no matter how bad you feel, stress makes it 100x worse.

Look for the post of Fibro 101 near the top of the page, read over all the different topics. Our Sherrine compiled all this info, from different posts our family members found. It is a very good read. I have read them before, and I still go back to read them again. I find some new thing I hadn't noticed before. (Or that I forgot, gotta love the Fibro Fog)

I do hope you will come back again, ask questions, vent, share, laugh. We are all in this together.

God bless. Alice.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 3/6/2010 2:18 PM (GMT -6)   
Wulver, you have already been given so much great advice from so many of our members that know how important this forum is for us so I do hope you will stick around and let those that know, some of what you are going through, is like and we also live with it daily.
I found this forum during one of the grimmest times in my life, I had lost a grandson in Iraq three months before and had done nothing for those three months but sit on the couch in a daze only moving when I had to and the pain was getting worse all the time from the psychological hell I was going through and not moving. I thought the ones, that are still here when I joined, going on three years ago, were nuts when they kept telling me I had to move, had to move but something made me listen to them. They were so kind and understanding. I have made, what I hope is, life long friends on this forum and I can't imagine life without it.
You are a lot stronger than you think you are, look at what you are dealing with??? Fibro is not for sissies.
If your doc is not helping you and apparently they are not you need to find one that will. Sometimes we go to several different docs before we find one that is willing to help us. It is so important to have a doc that believes in fibro 100% and doesn't treat you like this is all in your head cause it sure isn't.
Please let us know what you need help with and we will do what we can to help.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
Vit D/calcium

New Member

Date Joined Mar 2010
Total Posts : 2
   Posted 3/6/2010 6:28 PM (GMT -6)   
Thank you everyone for your kind and helpful responses and sorry to hear of your own difficulties.
Just a bit more on myself, i try to walk or swim everyday, even if it makes me hurt more i do feel a little better for doing it. I recently went to a new doctor and so far has been very good, trying lyrica at the moment but it isnt going to well.
The rant was just a release from a long week, just had a flood, where i lost alot of what i own and have spent most of the week waist deep in cold water, the water has gone down and now im into the clean up job.
Thanks again, it makes a real difference having people around that understand and the kind replies were very helpful.

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 3/6/2010 6:48 PM (GMT -6)   
Wulver, You really had a bad week, I'm so sorry you lost many of your possesions. It
must be a mess to clean up after a flood. Walking around in waist deep water sounds far
from pleasant. That alone would stress anyone out.

I haven't tryed Lyrica, did try Cymbalta ( couldn't tolerate it) before the Savella. The
Savella takes the edge off the pain. Meds can be crazy to adjust to. Hope the Lyrica starts
helping. The side effects from meds really make it hard sometimes.

It is great that you are excercising. It helps me with stress and gives me an energy boost.

Be careful to pace yourself in cleaning up your mess. you don't want to be flaring.
Glad you are part of the family!

hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Forum Moderator

Date Joined Apr 2005
Total Posts : 17057
   Posted 3/7/2010 8:45 AM (GMT -6)   
Hi, Wulver, and welcome!  I was gone all day yesterday and will be gone a lot today but just wanted to jump in and say Hi to you.  I just wrote a long post on the "Newly Dx'ed" post so check that out, okay?  I don't have time to rewrite it!  Thanks!
You mentioned how sad you are and you also mentioned that you drank too much.  Alcohol will make it so antidepressant medications won't work.  Also, alcohol can affect many different medications and that can make you feel worse, too.  Just wanted you to know that, if you didn't know that already.  Depression is horrible.  I've been there and done that!
You have come to a wonderful place.  We have members that really love to help one another and we really do care about each other too!  I do think you will like it here. 
Be sure to read Fibro 101...the second thread on the forum.  There are links to good information about fibro and you will learn a lot there.  Don't hesitate to ask questions, too.  We are here to help you. 
I hope you are having a much better day today and I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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