Here we go agian!!!

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New Member

Date Joined Mar 2010
Total Posts : 2
   Posted 3/8/2010 9:42 AM (GMT -6)   
HI I am new to this forum stuff... So please bear with me... I am 32 and was diagnosed with fibromyalgia two years ago by a rheumatologist. I have been dealing with this since my early 20's. I have been on so many different things in my life med wise because no one knew what the problem was and diagnosed me with the secon best guesses.. I am so frustrated.. been on a conglomeration of antidepressents,mild narcotics,sleeping pills,and what have you... Last year the pain was so bad this Rhuem who said I had a moderate to severe case of fibromyalgia finally gave me a script for vicodin after lyrica and cymbalta and tramadol didn't work... He said to take 5/500 once every 6 hrs... OMG what a joke.. So of course that worked for like 3 hrs. I had a 160 pills to last thirty days and I started taking 2 every 4-6 hrs . I was honest with him at my next appt and he dropped me as a paitent based on not following his directions.. Then to top it all he said he thought I was seeking narcotics based on here in CO every time you get them from the ER or anywhere it is recorded in a database... It doesn't tel them they only prescribed 10 or 15 pills but just that you got them... So I explained that before him i had many trips to doctors and ERs trying to find out what the hell was wrong and since they couldn't figure it out they would give me a few pain pills and send me on my way!!! Years of this meant many times in the database.. Thought he would understand.. how do I get past this?

Forum Moderator

Date Joined Apr 2005
Total Posts : 17061
   Posted 3/8/2010 10:04 AM (GMT -6)   
Hi, Angel, and welcome!  We have had others on this forum with the same problem you have.  It is SO important to follow the doctor's directions for these narcotics.  You found out that you should never take more on your own, like others have found out too.  If a medication isn't doing the trick, call the doctor or make another appointment and discuss it with them.  When we take things into our own hands, that's when the problem starts. 
I'm really not sure what to tell you except find another doctor and be brutally honest with them.  Let them know what you did and why and that you would never do that again.  The doctor has to trust you so you need to assure them that you would call them if the meds were not working AND that you would follow their instructions to a "T".  This is what I would do if I had this problem.  If the doctor won't take you on, keep looking until you find one that will understand your circumstances.
Oh!  I just thought of something else.  Keep a journal, starting today, showing your pain levels and what you were doing when you had the pain.  Be sure to check out the Fibro 101 thread...the first thread on the forum.  There are links to good info about fibro AND there are links with pain charts and also a journal you can copy.  The pain charts will allow you to be VERY accurate in describing your pain and this will help the doctor.  Actually there are two pain has faces and that helps!  You might try a pain doctor instead of a rheumatologist or internist. 
I'm sorry you are having this problem but there has to be someone out there that will listen to you.  BUT you really do have to follow any prescriptions just as your doctor prescribes them.  They have a reason for the amounts and strengths they prescribe.   Let us know what happens because we really do care!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 3/8/2010 12:04 PM (GMT -6)   
Welcome Angel, Sherrine gave you some wonderful advice! In time You will find what
works for you to help ease the pain. I have done the whole gamut of pain relievers in
the past, was on vicodin but didn't like the way I felt. We all tolerate meds so differantly.
It is an individual process. We all cope in our own way.

I find if I can eliminate or lower my stress, it is much easier to cope. Walking helps me,
Relaxation therapy helps me. Just by taking time to do deep breathing excercises or
meditating helps. Listening to my favorite music can lift my spirits. Pain hurts, there is
no question about it. Stress pumps adrenaline into our blood making our muscles tighten,
and we hurt all the more. Taking time for yourself to relax in a hot bath helps too.

For fibro I take Savella and a muscle relaxer for flares, I'm not pain-free but I'm learning
to cope. Hope you can find some relief soon. I'm so glad you have hoined our family!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

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