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Rascaliggy
Regular Member


Date Joined Jan 2010
Total Posts : 65
   Posted 3/9/2010 8:22 PM (GMT -7)   
Hi,
 
Today I went off to the doctor to get the results of my latest blood tests. I have them done every 3 months because of all the meds I am on. All were good except for the Vitamin D.  I did know folks with Fibro can have low D levels but mine was 1/3 of what it should be.  Holy crap. So now instead of the 1000 units I was taking I am now up to 4000 for a month and then 3000 from then on. A good message for those who don't have it checked regularly...please do.
 
I was also diagnosed with Depression...finally. Maybe it was because I cried in the doctors office... a first for me. I have been on meds for panic attacks and anxiety but was never given the official dx of depression. Now I can add it to my disabilty claim along with Fibro and get things moving. Has already been a year.
 
Lorraine

Fibromyalgia, Depression, IBS,  Panic attacks.
 
Lorraine


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 3/9/2010 9:49 PM (GMT -7)   
Hi Lorraine!

It does seem that many of us have a D deficiency but yours certainly is way down there! Glad you found out and I sure hope the extra D makes a great improvement for you. Many doctors give fibro patients a light dose of antidepressant to help with the pain but maybe it was time for your doc to offer you medication for what almost seems like a side effect of fibro - depression. So many folks have it that it does make us wonder what all is going on with this darn disorder.

The first time I fell apart in the doctor's office I was mortified! He's a community member and most of us know him outside of the office too. No way he would ever reveal anything about someone's confidence but it was just hard. The second time wasn't any easier tho. I don't tolerate most antidepressants well and only a tiny dose works but when the tears start on a daily basis it's time to tell doc that I need to move up to a more 'normal' dose. ;-) It's hard for many of us to admit but we all try to ignore the old stigmas and just move on. We do what we need to do to have a quality life!!

Warm hugs,
Chutz
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/10/2010 8:17 AM (GMT -7)   
Vitamin D3 was low and added to my med regimen recently. It has helped so much with my Fibro pain. Took about 3-4 weeks to notice the difference, but it has helped immensley. Also, helped my mood too. I take 3400 units a day now. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 3/10/2010 10:41 AM (GMT -7)   
Like Nanners, I take 3,500 IU of D3 a day.  I was so surprised to see that I was that low because I live in sunny Florida! 
 
Everyone, please get your vitamin D levels checked.  Low levels can cause more pain.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


SarahBear9708
Regular Member


Date Joined Jun 2009
Total Posts : 286
   Posted 3/10/2010 8:54 PM (GMT -7)   
Does anyone know what the differences between D2 and D3 are besides the origin? And if it makes a difference which one we take?
"Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength."

"You were only given this life because you are strong enough to live it."

~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*

Dx: Fibromyalgia, Chronic Fatigue, Trigeminal Neuralgia, TMJ, Migraines, Anxiety, Insomnia, Acid Reflux, RLS, Asthma.

Rx: Celebrex, Buspar, Savella, Lyrica, Neurontin, Requip, Nexium, Symbicort, Compazine, Lunesta.

Supplements: Vitamin B Complex, Vitamin D, Vitamin C, Iron


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/11/2010 7:43 AM (GMT -7)   
My understanding is we need to take D3 not D2. Sorry but I forgot why:)
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

SarahBear9708
Regular Member


Date Joined Jun 2009
Total Posts : 286
   Posted 3/11/2010 11:22 AM (GMT -7)   
That's what I've heard too, but I'm just wondering. I was taking sublingual D3, but when I learned what it was, I couldn't force myself to swallow it anymore, let alone put it in my mouth. Need to go back to pills I guess.
"Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength."

"You were only given this life because you are strong enough to live it."

~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*

Dx: Fibromyalgia, Chronic Fatigue, Trigeminal Neuralgia, TMJ, Migraines, Anxiety, Insomnia, Acid Reflux, RLS, Asthma.

Rx: Celebrex, Buspar, Savella, Lyrica, Neurontin, Requip, Nexium, Symbicort, Compazine, Lunesta.

Supplements: Vitamin B Complex, Vitamin D, Vitamin C, Iron


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 3/11/2010 11:45 AM (GMT -7)   
Vitamin D3 is far better for you and I think possibly absorbed better, too.  Here is a link about it.
 
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


SarahBear9708
Regular Member


Date Joined Jun 2009
Total Posts : 286
   Posted 3/11/2010 1:13 PM (GMT -7)   
Thank you for the info. I will keep that in mind. I think I need to switch back to pill form D3 though..I just can't bring myself to take it sublingually anymore.
"Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength."

"You were only given this life because you are strong enough to live it."

~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*

Dx: Fibromyalgia, Chronic Fatigue, Trigeminal Neuralgia, TMJ, Migraines, Anxiety, Insomnia, Acid Reflux, RLS, Asthma.

Rx: Celebrex, Buspar, Savella, Lyrica, Neurontin, Requip, Nexium, Symbicort, Compazine, Lunesta.

Supplements: Vitamin B Complex, Vitamin D, Vitamin C, Iron


Melisana
Regular Member


Date Joined Feb 2010
Total Posts : 64
   Posted 3/12/2010 10:36 AM (GMT -7)   
my D level was a 1/4 of what it should be I am currently taking 10,000 IU a day and we are supposed to recheck it well in another month and a 1/2 to see where it is at.  Originally they thought that is what was causing the pain but then they decided that it shouldn't cause as much pain as what I was in(not being able to get up).  so then they started giveing me the b12 shots too..... between the two the pain is significantly better but still have days where it is pretty painful... they are not wanting to add anything else until after the sleep consult to see what he is wanting and then we can go from there

Rascaliggy
Regular Member


Date Joined Jan 2010
Total Posts : 65
   Posted 3/12/2010 8:38 PM (GMT -7)   
Hi everyone,
 
Thanks so much for your replies. I actually feel a bit better already. I am going to guess that it is the Vitamin D and not the new anti- depressant as I think it would take longer to work???  So far I have not had any side effects from the Prestiq. One is nausea and I remembered that I had some gravol from a previous med that caused nausea so I take one before the Prestiq and so far so good.
 
I see the doctor again next Tuesday and I would guess she may keep the Vitamin D at 4000 units until my next blood work.
Also started to take B12 so maybe it is that....so many new drugs if ya shook me I would rattle.yeah
 
 
Lorraine 
 
 
 
Fibromyalgia, Depression, IBS,  Panic attacks.
 
Lorraine

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