Vit.D and fibro

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

painter59
Regular Member


Date Joined Jun 2009
Total Posts : 83
   Posted 3/14/2010 10:11 PM (GMT -7)   
can any one tell me about vitumen D and fibro, Thanks all I needed I hope everone
is doing ok please write me a.
Ed.......Oregon
Please email me


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40574
   Posted 3/15/2010 2:26 AM (GMT -7)   
I take vitamin D3. It seems to give me more energy and a general sense of well being. I call it my happy pill. It really works. Especially if your levels were low.

Best wishes to you, I hope that it helps you Ed.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 3/15/2010 7:18 AM (GMT -7)   

There is a link all about it in Fibro 101...the second thread on the forum.

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/15/2010 8:46 AM (GMT -7)   
I will tell you that since I added Vitamin D3 into my med mix, it has really helped my fibro pain alot. And like Karen its helped a little with my energy levels too. I am now taking 3400 units a day. I also have Crohns Disease and its helped a little there too. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 3/15/2010 9:50 AM (GMT -7)   
My doctor wanted to test my level of vitamin D but my insurance company will not pay for it for fibro, they will for other things but not that :( and it's like 150.00 to have it done. My doc told me to go ahead and take a D supplement, I have no idea what brand or dosage to take, what is everyone else taking? Is it exspensive?
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Percocet for bt/pain, Flexeril as needed, Lopressor, Lexapro, Famotidine, and Promethazine as needed for nausea from migraines


Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4646
   Posted 3/15/2010 1:19 PM (GMT -7)   
Get it done for suspicion of osteoporosis or something or pay for the test. You should at lest get a break on the price and only have to pay what your insurance co would pay. I had mine tested and found out my level was 18. The old scale used to be 32 was normal. I understand Mayo is now recommending 40 to 80. You absolutely need the test to calculate how much you need to take.

How to calculate: for every ng/mL you are low, you need to add 100 units of D.

So for my level of 18, I needed to add 2000 units more than I was taking in my vitamin, calcium pill and the D I was already taking just to get to 38. Another 1000 would get me to 48, which is a much better number.

I will continue to get tested every time I get any other blood test because the level changes with the amount of sun you get. Not much D in food, so we need unscreened sun for a few minutes .... or pills.
Alcie
 
 


Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4646
   Posted 3/15/2010 1:21 PM (GMT -7)   
PS:
I forgot to add that in only 1 day after taking the extra D my fibro pain dropped by half. It was like coming out of a flare.
Alcie
 
 


luvskermit
Regular Member


Date Joined Jan 2010
Total Posts : 166
   Posted 3/15/2010 1:59 PM (GMT -7)   
I was very deficient in vitamin d, and I was given a prescription for 8 weeks of 50,000 taken once a week. After 12 weeks off, I had my levels retested, and had to do another round. Now I take 1,000 a day at my rheumy's suggestion. She doesn't want to test again until it has been a year, or as long as I'm doing okay.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4646
   Posted 3/15/2010 3:08 PM (GMT -7)   
I have read that 2000 units is a good dose for the average person, but I would ask for a D level every time I get a blood test from every doctor. I have a friend who has fibro and lupus and gets a D test every 3 months. You have to ask for it from most docs because it's not part of regular testing, like Chem 8 and such. Insurance should cover if there is a deficiency.

We can't store it and don't get much through food, not enough in daily vitamin, so in winter with little sun 90% are deficient, I read in a recent article.
Alcie
 
 


Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 3/15/2010 9:23 PM (GMT -7)   
I take 2000IU and do believe that it is a necessary addition to my Rx program. I was deficient and after reading about what a strong D presence can do for me, I take it.
"A butterfly is most vulnerable immediately after its' metamorphosis."
 
Dx FM- 2003
Rx Meds- Ultram, Toprol, Cymbalta, Amitriptyline, Trazodone
OTC meds-  B Complex, Vitamin D, Omega 3, Aleve [PRN]


Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4646
   Posted 3/16/2010 7:15 AM (GMT -7)   
Sera
If you're deficient 2000 units may not be enough. You may need more.

How to calculate: for every 1 ng/mL you are low, you need to add 100 units of D.

For my level of 18, I needed to add 2000 units more than I was taking in my vitamin, calcium pill and the D I was already taking, which totaled about 1200, just to get to 38. Another 1000 would get me to 48, which is a much better number. Mayo Clinic is recommending 40 to 80 level or something like that.
Alcie
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 9:45 PM (GMT -7)
There are a total of 2,732,834 posts in 301,059 threads.
View Active Threads


Who's Online
This forum has 151213 registered members. Please welcome our newest member, donaldtrump.
258 Guest(s), 6 Registered Member(s) are currently online.  Details
donaldtrump, Gograss, mpost, time2reclaim, GingerGirl, NotQuiteAntonio


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer