going to a rheumatologist

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moon_ glo
New Member


Date Joined Mar 2010
Total Posts : 4
   Posted 3/17/2010 8:15 PM (GMT -7)   
Hi all,
 
I just joined this forum. My physician who is an internal medical physician. I have PTSD, bi-polar, chronic major depression ibs, chronic headaches, tmj and high blood pressure. I have had the symptom for a long time, but did not make the connection until my sister asked me if I had asked my doctor about fibromyalgia. I asked my doctor and my phychiatrist and they both agreed it was probably fibro. My doctor even put it on my chart. When I told her my husband thinks it is in my head and that I had not been diagnosed with it she said "I do not write things in your chart lightly". She says I do have it. So one of my questions is can a primary physician diagnose you with fibro? My pain has been increasing and my doctor is now referring me to a rheumatologist because she wants to get another opinion and she said they may be able to help me better than she can with the management of my pain. She did this after my phychiatrist took me off the savella that she (my primary) had put me on because she thought it was to risky with my phych meds. .
 
My husband says I hurt because I do not exercise. He, for some reason thinks I made it up in my mind that I have fibro and that I really don't even though my doctor said I do. I cannot understand why he thinks that..he knows I had the symptoms before that. My daughter and my sister know I have had the symptoms for a long time. He now says I looked it up on the web an just decided that I have it. He said he has known people with fibro that do not hurt as bad as I say I do. I know I hurt!!  I am disabled due to the mental health issues. He is right I do not exercise but it is because I hurt so bad. I went to a thing we had at church 2 weeks ago and did some clapping to the awesome praise and worship that we had. The next day my hands and forearms were slightly swollen and I could barely move them. I was in horrible pain. He wants me to keep a spotless house like I did when we were first married. We have been married for 15 yrs in April.
 
I have the tender points, the trouble getting any sleep the fatigue and basically the majority of fibro symptoms. I have heard a lot of stories about people who have had trouble being diagnosed so now my fear is that the rheumatologist will mis-diagnose me. If that happens my husband will be delighted and I will have a worse time with him than I am having now.
 
I would appreciate any comments especially if anyone has went through a similiar situation, plus if anyone has ever been diagnosed with fibro by an internal mdicine doctor.  I guess I just need some type of support because I have none at home.
 
 
Thanks to all of you for listening.

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 3/17/2010 8:58 PM (GMT -7)   
Hi Moon,

Yes, your primary can dx this disorder.

Please have your husband read some of the posts on this site. He will see that we are trying desperately to live a good life with pain on all sides. He may not ever understand... but ask him about how you used to cringe in pain when he would hug you too tight, even when you were dating. Ask him about your weird sleep patterns, your foggy brain, your forgetfulness, your goofed up bowel patterns...

Love wants what is best for the beloved. If he loves you he will help you find your way through this diagnosis. IF not, we will be here for you. Take care and read back in the posts. There is a lot of sharing of ideas on how to help yourself feel better.

Gentle (((((hugs))))),
~ Jeannie
Moderator for Fibromyalgia and Diabetes


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 3/17/2010 10:14 PM (GMT -7)   
Hi Moon-glo

What a beautiful name and Welcome to our Fibro Family. It's hard for some people to actually we can hurt this bad on the inside and to them we look normal on the outside. I totally agree with Jeannie. If he truly loves you then he would try to learn and understand what's going on. Invite him to go with you to your doctor appointments and let the doc know he's coming. Ask the doc to explain to him what fibro is all about and that you do have all of the symptoms.

If he continues to live in denial it's possibly because he doesn't want you to be that way. He wants you the way you were when you married. Well so do we! But that's not reality. He's not the same person he was when you married. Remember that "for better or worse" deal? Well, this is part of "or worse" stuff. If he continues to make demands on you and not acknowledge your disabilities then I would get a referral to a counselor, one who specializes in pain. Yep, there are pain counselors who can help us cope and deal with a life surrounded by pain. Many folks have found it extremely helpful and it has made their lives so much easier to manage once they work through some of the extraneous problems we all have.

Please keep in touch and let us know how you are doing. We do care about you and if you aren't getting any support at home then we certainly will support you here.

Chutz
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 3/18/2010 7:58 AM (GMT -7)   
Hi Moon-glo, welcome to the home of friendly fibromites. You will find understanding and
caring support here along with knowledge from people who live and deal with fibro.
We know that fibromyalgia is real and it is hard for others to understand because they do
not live our pain. We are here for you!

Your rheumy will run bloodwork to rule out any connective tissue diseases and should
do a thorough exam. He will check out tender points and ask lots of questions.

You will find that exercise will help you. It helps relieve stress, gives you a energy boost
and will help your muscles from getting stiff and weak. I'm a walker and i know it helps.

Heat is a fibromites friend, most of us own heating pads or bed buddies. Taking long
showers and baths help too.

I'm sorry that your husband is not being supportive right now. I agree with the advice
that was already given. Hopefully your hubby will see things differantly.

Glad you have joined us. Make sure you check out fibro 101 on the top of page one.
There is a wealth of good info for us!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

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