24y.o female in need of fibro friend of same age.

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@rianna
Regular Member


Date Joined Mar 2010
Total Posts : 78
   Posted 3/18/2010 7:25 AM (GMT -7)   
Hello all!
 
I am new to this site (as of a few minutes ago) and would like to ask if there are any young women that are 24 (or pretty close) that are married and have been recently diagnosed with Fibromyalgia to tell me how they deal with it?  I am just trying to get some understanding because no one else I know is my age with it.  I work graveyard to so on top of the prescription I'm taking for my little fibro pains, I'm always tired.  And right now I have to go lay down because I'm not feeling well due to my tooth (among the many small things that make life a positive challenge to deal with).  So I just wanted to get it out there because I could really use a friend instead of someone who loves me and pitties everything that goes on with me.

Melisana
Regular Member


Date Joined Feb 2010
Total Posts : 64
   Posted 3/18/2010 9:27 AM (GMT -7)   
@rianna I am not married and I do not have children b ut I am about your age (30 will be 31 in12 days). I have just fairly recently been diagnosed however I have been in pain and probably have had Fibro for a lot longer(diagnosed feb 11, 2010). I work afternoon shift. I am always tired as well and from the post that I have read several others in this forum are really fatiqued as well not sure what shift everyone works or if everyone works. From here I have learned that fatique is one of the symptoms that comes with the territory of fibro. I have learned to deal with the pain(I will not take prescription meds nor most of the over the counter "meds" I prefer to use natural remedies versus putting chemicals in my body... I have had adverse reactions to almost every medication I take. for me I have found that keeping moving is what helps me the most... the hard part is when it is time to sleep because you can't keep moving and sleep at the same time well somehow I manage to because I never wake up in the same place I go to sleep.... most nights(1am- about 9am if that) I don't really sleep to begin with which can contribute to the pain(as told to me by my doctor and have learned in here). I do take vitamin d3 currently on 10,000 IU and I have consented to B12 shots(which is natural products) which have helped me.... the first couple of weeks it helped me more than what it seems to be helping me now not sure if it is just because my body has adjusted to the extra vitamins or what. I go to a sleep specialist on monday and then back to my doctor on Tuesday. I would love to walk this discovery journey with you as I believe most people in this forum would as well. They may not all be the same age but I have discovered that they are very wise. many of the people in this room hav e had fibro for years and have a lot of information and "tricks" up their sleeves that seem to help ease the burden of figureing it out on my own. One of the best things was getting a electic heating blanket (which it is actually gettting to warm to use). that was discovered first by having my neice running a 101 temp in my bed with me and getting a significant relief from the pain however did not sleep because I had to listen for her breathing(they scare me when they are sick because I have had one of them stop breathing on me when she was sick). but after that night I went to get the heating blanket and it worked wonders. I find that I do sleep maybe an hour or two more than what I did before the blanket and the vitamins.... not sure which one is helping the most. Now that it is getting warmer i am hoping that the pain will ease up a little bit... In the past the summer months when it was warm seemed to hurt the least... I always contributed that to being able to sit outside and relax in the past (winter months are the months that i scrub things and don't relax much because I hate being couped up inside). Anyway I hope that this site can help you in this discovery time.

SarahBear9708
Regular Member


Date Joined Jun 2009
Total Posts : 286
   Posted 3/18/2010 10:49 AM (GMT -7)   
Hi there. I am a bit younger, I am 21. I am not married but I am engaged and live my fiance. I'm trying to still take classes and I work retail. I am exhausted all the time, and my pain levels depend on what I've done. It's not easy. I agree with you that most people don't seem to understand. I had a knee injury and am now in PT, and even my therapist doesn't understand/believe in it. It's so frustrating. But you need to remember that you are not alone. There are many of us who suffer from this horrible condition, and there are many VERY understand and helpful people here in this forum. That being said, I'm here if you want someone to talk to, as I'm sure many others are too. :)
"Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength."

~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*

Dx: Fibromyalgia, Chronic Fatigue, Trigeminal Neuralgia, TMJ, Migraines, Anxiety, Insomnia, Acid Reflux, RLS, Asthma.

Rx: Celebrex, Buspar, Savella, Lyrica, Neurontin, Requip, Nexium, Symbicort, Compazine, Lunesta.

Supplements: Vitamin B Complex, Vitamin D, Vitamin C, Iron


@rianna
Regular Member


Date Joined Mar 2010
Total Posts : 78
   Posted 3/19/2010 6:38 AM (GMT -7)   
Thank you both for responding and making it so I know that there are young people that are struggling with the condition! It helps to know what you all have tried and what I've already tried or have not even thought of. I have found that heat pads work and taking advil before bed can make it so I can go to work the next night. Playing with my cat always helps to keep me moving. I guess what else I would like to ask is how it affects young people like us on an emotional level? For me its dealing with it since I was 15 or 16 and finally being diagnosed at 22 and yet still having no one get why I'm afraid to play sports to even walking around the mall of america. I can't wear heels too high because I have a really bad flare up afterwards. It wasn't until I got on amitriptyline that at least the little constant aches went away for the most part and made me feel free to move more. Cuz see how I found out that I might have something wrong was when I was a at a high school dance and then woke up the next day like I had run a marathon. My knees and ankles and lower back hurt and I thought that this wasn't normal. The doctor we wne to just thought I was pulling her leg, but I knew I had it when I was 18 (can't be diagnosed until 20 y.o.) and couldn't go to college for motorcycle mechanics because my hands didn't always want to hold the wrench to the engine, etc. and so i guess i've been taking time to feel sorry for myself because I only knew my cousin's 59 y.o. girlfriend who had it (they broke up). Enough back story. What have you 2 done about wearing pumps and wedges and so on to combat the major flare up afterwards?

SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 3/19/2010 9:18 AM (GMT -7)   
Welcome to the forum. You will find friends of all ages here! I am 21, almost 22, and I have fibro and am married. I also have a two year old son. The one thing I can tell you is that you can't fully get rid of the pain. You can only lessen it. If you try to completely obliterate it, it won't work. When doing housework, pace yourself. Take it one task at a time, and don't feel bad if you can't do it all at once. If you ever need someone to talk to, feel free to e-mail me. I wish you luck. Hang in there.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind. Dr. Seuss
 


MrsCavbar
Regular Member


Date Joined Mar 2009
Total Posts : 285
   Posted 3/19/2010 9:19 PM (GMT -7)   
Welcome Rianna!
I'm 28 (but shhhhh I tell people I'm 25) I'm married and I have a 5 y/o son. I was diagnosed 2 yrs ago 4 moz before my 26th birthday, the same appt I was told I was disabled from my arthritis, and fibro was just the icing on the top. My husband is also disabled, 68 tons of pipe was dropped on him 5 yrs ago. He's been in a wheelchair for the last yr and a half. Between the stress of being sick, and my husband's health problems, and an aborted attempt at steroid therapy, I ended up having a meltdown and am now in therapy once a wk. One of the things that have helped me most is having a journal, and being able to go back and look at a good day, see what helped and what didn't and try to reproduce the results. Aside from heat, I have found Aloe Vera with Lidocaine to be helpful with muscle cramping and spasms and well as headaches. I don't want to trash my liver or kidneys by taking too much medicine so I Googled home remedies. Vicks Vap-o-Rub also helps for headaches and muscle pain. Staying active is a must, but there's such a fine line between being active and over doing it. When I clean house, I put my play list on, I clean through 3 songs, then rest through 1. Not only is my house cleaner, but I no longer kill myself cleaning, then crash for 3 days only to get up and find my house has been trashed again. And who doesn't like music? LOL
Take care.
Lola

Any idiot can face a crisis - it's day to day living that wears you out.
Anton Chekhov

FM, costocontritis, degnerative polyarthritis, fibroid tumors, PTSD, 2 heart attacks at 22, PID, anxiety disorder


Zanax .50mg, B-complex, Lortab 5, Jet-alert, Toradol 10mg

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