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Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 3/19/2010 6:01 PM (GMT -7)   
Hi, I've written a few times but never gave my full story.  I caught my back on fire from leaning against the stove (fibrofog?!) when I was 13.  After 3rd-degree burns and skin grafting, I was pronounced "fine" - and thought I was, for the most part, although my burned side always felt tighter.  I also got tired and weak a lot for someone so young.  Took synthroid for about 15 years and then was told I didn't need it.
 
After my first baby was born, I began having bad migraines and back pain.  about the time I was expecting my second, (age 30) I began feeling more fatigue and back pain, but didn't think it was strange.  The third pregnancy really did a job on me.  Afterwards, sometimes my back hurt so bad I thought I was having organ failure.  A chiropractor helped some, but not enough, and the pain was spreading.  I began the search for a doctor who would take me seriously.  Thankfully, I finally found one...
 
I'm now 55 and what I can do is less and less every year -  that's what scares me the most.  I watched both my parents' decline and was their main support, but physically, I couldn't do much.  I buried them both in '08 and miss them terribly. 
 
I feel like I'm growing old myself way too fast and there's nothing I can do about it.  I try to walk as much as possible, but now my feet throb and burn after just a few minutes, and if I go a little too far (some days as little as 5 minutes) it can mess up my whole body.  If I lift and move an object that's a few ounces too heavy, (like a quart of milk) the same thing happens.  Unexpected bumps or dips in the road while driving can do it, too.  My whole left side gets sore and tight, in fact, probably 90% of my pain is on the left.  I have some lumbar wear and tear, but nothing that "should" keep me from being active.  PT always just sends me into flare after a week or 2.   
 
The chiropractor, every few weeks, still helps me feel more aligned for awhile - until my next tighten-up.  But I'm never even close to pain-free.
I've been on Nortriptyline for sleep for 18 years (25 mg),  Klonopin (.5 gm) also for sleep for 2 years, Darvocet 650-100 as need - more and more often, and now Effexor 35 gm. in the morning for 3 days.  Have recently also tried Tramadol (gave me chest pains) and Aleve (nausea).
 
I'm REALLY glad to have found this place and people who will understand what I'm talking about, instead of saying, "Oh, you're fine!"  rolleyes   
Debbie


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 3/19/2010 6:57 PM (GMT -7)   
Debbie,
Glad to see you here where people understand your pain. One of our members said something really profound about fibro. He said "It's a life sentence but it's not a death sentence." Sometimes it's so difficult to just keep going but I find that the more I try the more I can do. I've been sitting around doing taxes for the last few days and ooooEEEE am I stiff and sore!?!?

Read back in the posts and you'll learn lots of ways we have learned to help ourselves. And there is a wealth of information in the "stickies" (Fibro 101, etc.) at the top of the posts. Read and learn, post and share. We will listen.
~ Jeannie
Moderator for Fibromyalgia and Diabetes


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 3/19/2010 9:47 PM (GMT -7)   
Hi Debbie and I'm so glad you have shared your story and decided to join the Fibro Family!

Like Jeannie said, we are always here to listen and share any way we can. By everyone sharing it will help all of us live better lives. Fibro isn't something doctors can do much about. Unfortunately some do nothing and most of us have see at least one and some have seen many doctors in this category. I'm glad you found someone who listened to you and understood what you were saying about pain. IMHO, that's 90% of the battle.

Most doctors treating fibro do try using a very light dose of antidepressant. It helps a lot of folks reduce their pain levels by raising the seratonin in the brain. It helps some, others not. That's one of the frustrating things about fibro also. I'm very lucky to have a great doc who believes in quality of life. Our deal is I'm supposed to try my best to lead a good life, have fun along the way and enjoy each day as it comes. His part of the deal was to keep me as pain free as reasonable and possible. We'll never be totally pain free and that's a hard prospect to deal with. But if we just take it day by day we can have a wonderful life in spite of fibro.

Warm hugs,
Chutz
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 3/20/2010 11:15 AM (GMT -7)   
Thanks guys, yes it's so true, we have to have the attitude that the glass is half full and keep moving, or we are in BIG trouble.

On the other hand, if we get too cocky and stop being careful on our good days, we dig ourselves into a deeper hole...and "too much" keeps changing! On the other hand, every day is truly a new adventure!!

Have a great weekend,
Debbie

Fibro, Menieres, Scoliosis, Keloid scar tissue and Disc damage
Debbie


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 3/20/2010 1:25 PM (GMT -7)   
Hi, Debbie, and welcome!  Oh, I know about the little knocks, bumps, lifting.  Just  carrying in a ten pound bag of potatoes can cause me problem.  But, I keep doing it!  If I stopped, I'd get so that I couldn't do it.  Period!  Pretty soon, I wouldn't be able to do anything.  So, I just do what I need to do.  I try to pace myself the best I can.
 
I'm a widow and am by myself so if things are going to get done, I have to do them.  I end up doing things I never thought I could do!  Today, I spent four hours trimming my pygmy palms!  Now, if I thought it was going to take that long, I would have put it off or even hired someone to do it.  But, I didn't and I was able to do that myself.  Sure I'm tired.  Sure I'm in pain.  I'm always in pain.  So, since I'm going to be in pain anyway, I live my life the way I want to.  You really do have to keep moving.
 
The only time I've been pain-free in 23 years is when I was hospitalized for another problem and was given morphine injections.  Otherwise, pain is part of my life and I've learned to accept it.  I don't like it but things could be worse.  Yesterday I had to go to the mall.  My daughter wanted a pair of jeans for her birthday that no one carries!  shocked   Well, I spent several hours going from store to store.  Finally I gave up and was heading towards the exit thinking about how much I hurt and my feet were throbbing.  That's when I saw a woman with a friend.  The woman was on crutches, had very thick shoes, and had to kind of swing her hips to help her legs move forward.  Her steps were probably no more than six inches!  She was walking through the mall, smiling and chatting with her friend!  That's when my pain didn't matter at all.  I began thanking God that I could walk without assistance.  I know you know this stuff, too.  But, that really put my day in perspective.  I probably won't ever complain that I hurt when I walk from now on because I will remember that woman.
 
So, keep on truckin!  I'm so happy you have joined our fibro family and am looking forward to getting to know you.  I hope to hear more from you soon.
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 3/20/2010 1:41 PM (GMT -7)   
Hi Debbie, We understand the pain because unfortunately we all feel it, somedays are
definately easier than others. On the bad days, I will allow myself to feel bad for a short
while then pick myself up sometimes with the help of my fibro family. This is a great
place for understanding, caring and encouragement!

Take one day at a time!!!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 3/20/2010 2:02 PM (GMT -7)   
Sherrine, wow, a 10-lb. bag! I'd love to be able to do that! You have given me hope: maybe the sky won't fall if I push it a little more. It must be hard, living alone. Does it make your pain level increase a lot if you really use your muscles more? I was into Nautilus back in the 80s and loved feeling in shape, (and moving furniture!) but unfortunately, for the last 25 years, the less I do, the better I feel. But maybe it's time to try again.

I hate feeling out of it from drugs but my doctor says go ahead and be as active as I can and take the Darvocet regularly for awhile if necessary (I hope it's not.)

I know what you mean about seeing someone worse off...it does make me count my many blessings, although sometimes I identify so much with that person and I feel so sorry for them that I swear it stresses my body more!

Thanks everybody for the warm welcome! I'm looking forward to getting to know you, too. Happy Saturday!
Debbie
Debbie


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 3/20/2010 2:27 PM (GMT -7)   
Debbie, you can get more strength back.  You just have to start out slowly and work your way back.  You don't want to feel so weak.  That is not good.  Yes, we do feel better if we don't use the muscles, for the most part, but it's about the worst thing we can do!  We'd get so we couldn't do much of anything!  Gentle exercise is very important.  I walk and swim as my exercise.  Plus I take care of my home...even steam cleaning the carpeting.  I love gardening and do that too, but I did hire someone to keep the lawn mowed and the pool chemicals in balance.  The chlorine is heavy and brushing the sides of the pool kills me, so I have hired a company to do that. 
 
But, I do everything else.  I'm glad, too!  All this is exercise and helps keep me strong.  I'm nearly 63 years old and just go for it.  In December, I spent 9 hours walking throught the Magic Kingdom, riding rides, and I even went down Splash Mountain!  I've been patting myself on the back for that for nearly four months!  turn But, I didn't know if I could do it but I tried and succeeded.  When we were entering, my son asked me if I wanted a wheelchair.  I told him No.  I figured I could sit on a bench while my son and daughter walked around.  But, I didn't need to do that.  Oh, I was pooped when I got home, but I'm still smiling and I have the most wonderful memories of that day that will never leave me. 
 
So, keep thinking positively!  If you tell yourself that you can't do something, then you can't!  But, if you tell yourself that you will try to do something, I just bet you will be surprised all that you can accomplish!  But, as I said before, pace yourself.  Work into it.  Then, enjoy your life.  I've had a full and enjoyable life in spite of fibro and I plan on having many more good years, too. 
 
Ask your doctor about possibly taking malic acid/magnesium supplements and vitamin D3, too.  These have helped me with pain and fatigue.  Many with fibro are deficient in these vitamins and nutrients.  My doctor didn't think the malic acid would help me but he said it wouldn't hurt me so I tried it and they have helped me a lot.  Some of our members are getting relief with these, too.  There are links about them in Fibro 101.
 
The weather is getting nice so get outside and enjoy it!  Start with a short walk and just really enjoy the scenery and the clouds and the critters you see.  You will feel better for it and  you are helping your body, too.  Let me know how it goes!
 
Sherrine  


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 3/20/2010 5:08 PM (GMT -7)   
Hi Debbie and welcome to the family. Some people seem to get worse with time and some don't. I do believe that traumatic events in our lives can put us in a downhill spiral.
 
I get very angry at fibro and that gives me drive to prove it isn't going to get the best of me. Yeah, some days it kicks my tush big time. I may lose some battles but I haven't lost the war against fibro and don't plan on it.
 
We share inspirational stories to show each other there are many people out there that would think fibro was a walk in the park compared to what they go through in life and have a smile on their faces like Sherrine said.
 
It is 30 degrees colder here today than it was this time yesterday and that is very hard on the fibro bodies but a little northwest of here they are getting snow and all we are getting is rain at the moment anyway.
 
Heat is always our best friend, relaxation, distraction and a good doc.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium

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