I am so sorry your daughter is having all of these problems. It is bad enough when you are an adult but kids should be out having fun.
If I recall correctly, she was diagnosed with fibro, right? If so, we might be able to help. I'm not a doctor, but I'll give you my thoughts. The tightness in her chest and breathing problems could be one or both of these problems.....anxiety and costochondritis. Anxiety can cause a myriad of symptoms. I used to have a medical book that I loved reading but then I started "taking on" the symptoms of the illnesses I was reading about! I threw the book away. Anxiety just makes everything worse. I'm sure she is stressed out with what is happening to her, too.
I have costochondritis. It feels like a tight band around the chest and ribs and you are sore. Sometimes it is hard to breathe. There is a link all about it in Fibro 101, so check it out. It might make total sense once you read that. My doctor has me taking ibuprofen with food for that.
Is your daughter doing gentle stretching exercises and gentle exercises in general? If she is just sitting or laying, her pain will be greater and she will be stiff as a board. I know she doesn't want to exercise because it hurts, but, if she goes slowly and does a little more each day, she should get stronger and the pain should let up some. Walking and swimming are the exercises of choice for me. Both are gentle but good for fibro. Many here like yoga, too.
I get massages. This helps keep the circulation flowing which, in turn, helps with the pain. Plus, this will help with fatigue. She needs to keep the blood oxygenated and massage and exercise helps with this. I had a massage last week. It has been cold here and I have not exercised as much as usual. Consequently I was dragging. After the massage, I had far more energy and got "back in the grove" and am feeling much better. This might be happening to your daughter.
You want a good massage therapist...one who understands fibromyalgia. Here is a link to a site where you can find a good massage therapist in your area if you are interested. These people have to take courses every year in order to be in this organization. I always go to people that continue their education and keep up to date on techniques. That goes for my medical doctor, too!
Attitude plays a part in this picture, too. A positive attitude really does help. Taking one day at a time is good. Fibromyalgia will wax and wane. So, I look forward to each new day with anticipation because I could be feeling better that day. If not, I can handle one day and will look forward to the next. I plan my life and work around fibromyalgia.
See if she wants to come on the forum. That might help her, too. We have had teens as young as 13 on here and we are definitely family friendly. It might do her good to hear from people that are going through what she is going through...and hear it first hand.
I hope she starts to feel better soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
Post Edited (Sherrine) : 3/22/2010 1:21:31 PM (GMT-6)