Best Place to live with Fibro?

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hondablondie
New Member


Date Joined Mar 2010
Total Posts : 1
   Posted 3/25/2010 6:02 PM (GMT -6)   
Hello Everyone,
  Has anyone else researched the best place to live with this horrible disease? I have tried Florida...way too humid, tried NC but the winters are getting worse and the cold is so painful. I have heard out West where the climate is more dry and even is better. Has anyone made the move to see if it helped? I am so tired of being in pain that I would move just about anywhere!! Also, has anyone wondered why there is no help for people with this disease? I have honestly been thinking about starting a Foundation to help families with this. I believe everyone has the right to enjoy life to the fullest and just because we aren't all wealthy shouldn't make us suffer! If they could just spend a week in our bodies and feel the pain than they would understand our desperation for a solution!! Thanks for letting me vent and any input is greatly appreciatedblush
hondablondietongue

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 34144
   Posted 3/25/2010 8:14 PM (GMT -6)   
Hi Hondablondie,

and welcome to the fibromyalgia forum!!!

I am glad that you have joined us. I hear that New Mexico is good climate for fibromyalgia. But I have never lived there. I do think that it is better without humidity. But I live in Michigan and believe me, the humidity and the cold are bad.

I hope that you feel better soon. If you get a chance, check out the thread called fibro101. It is the second thread on the forum. It has a lot of useful information in it and you can learn a lot. I like your idea of a foundation. There are so many people that could use some help and resources. Take care, keep posting.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 3/25/2010 8:21 PM (GMT -6)   
Hi Hondablondie, Welcome to the forum. Wish I had answer for the perfect place to
live with fibro. We have members who live allover and it seems like there isn't a
a perfect state to live. I have lived in Wisconsin, Michigan, Tennessee, Georgia and
presently living in Arkansas. Winters up north are unbearable for me. I do better in
warmer climates. This winter here it was cold and damp and that = flares.

Be sure to checkout fibro 101 second thread on page one. It is a wonderful resource
for us fibromites. I hoping there will be a cure for fibro oneday. There are many research
studies being done and they are learning more about it everyday. I haven't given up
hope and hope you don't either.

This is a wonderful forum, lots of caring and supportive members. We are family here,
and understand pain. You can vent here anytime! There's always someone who cares!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


GSDgirl
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Date Joined Mar 2010
Total Posts : 1286
   Posted 3/25/2010 8:33 PM (GMT -6)   
Hi and welcome, I have never researched the different areas but it would be pretty hard to move.  I would be taking a kennel, 5 German Shepherds, 2 horses, a pony and who knows how many chickens.
 
Pittsburgh weather actually stinks but I am comfortable on our little farmette with 15 acres and a log house, our dream place and investment.  When we are too old we can sell and get a patio home tongue
 
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR),  disc problems in neck, depression, anxiety & stress
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day, soma, fioronal, tramadol, zoloft.
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6047
   Posted 3/25/2010 10:23 PM (GMT -6)   
The best place to live is where you are loved and cherished. You are going to hurt no matter where you live. And the reason that there is no "help" for this disorder is because the studies on fibro are only a decade old. If you want to see what's being done in serious research you can visit the website on the University of Michigan's medical teaching site. Dr. Daniel Clauw has been one of the foremost researchers in the area of Fibromyalgia, CFS and other related pain disorders.

The more you understand fibro and the pain, the better care of yourself you can take. But as of now, there is no cure or complete removal of pain... just improvements and better ways of coping.
~ Jeannie
Moderator for Fibromyalgia and Diabetes

Post Edited (Jeannie143) : 3/25/2010 9:27:54 PM (GMT-6)


puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 689
   Posted 3/26/2010 12:06 AM (GMT -6)   
Hi hondablondie. I moved from the midwest to southern california. The weather is usually pretty warm/hot here and dry. That is much better than the rain, snow and thunderstorms. My fibro is really bothered by weather changes. In the Missouri area where I lived the weather could change dramatically in a day, which would bring on a major flare and/or migraines. However, now that I have been here for a while I find that I am bothered by temps in the 50's and 60's. I freeze at these temps. And wind storms also bother me. But, this is still better than the minus zero temps we would sometimes have in the midwest. The really hot summers we have are not a problem for me. Hope this helps.
Puppylover
 
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


RedDiane
Veteran Member


Date Joined Jun 2007
Total Posts : 905
   Posted 3/26/2010 2:57 PM (GMT -6)   
I think the best place to live is Hawaii, or any other place that basically has the same weather every day all year long. I was in Hawaii for three weeks a while back and felt better than I have in years. It is outrageously expensive, though. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


aligee
New Member


Date Joined Mar 2010
Total Posts : 2
   Posted 4/8/2010 1:49 PM (GMT -6)   
I use to live in Wisconsin and the climate was horrible. The constant pressure changes and humidity made my pain way worse. I now live in Colorado and am doing amazing! Though it is a colder climate than most states (up in the rockies anyway), I find that the extremely low humidity, lack of oxygen and/or pressure changes have done wonders for me. I also no longer need an inhaler for exercise induced asthma! Not to mention it's beautiful and there's so many things to do outdoors to stay active. We are also the skinniest state in the US! The closest fast food to me (Breckenridge) is a good 20 minute drive. We are all about eating healthy, staying active, and being well in your mind, body, and soul!

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5493
   Posted 4/8/2010 2:36 PM (GMT -6)   
That's interesting, I'm a Colorado native and find that I feel better (less pain and fatigue) when I'm at a lower altitude and more humid climate. No one-size-fits-all answers when it comes to fibro! Having said that, though, when I moved back here from Wisconsin, I did have a nasty "moldy"(!?) ear infection and mold had grown on the insides of our house in the WINTER!
Debbie
 
Diagnosed: Fibromyalgia, Meniere's, mild liver damage, keloid scar tissue (from burn) on back, arthritis, lumbar disc damage, IBS, migraine,
 
Meds: Nortriptyline, Clonazepam,  Effexor, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, calcium + vit. D, vit. C
 
Chiropractic adjustments


WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 4/8/2010 7:37 PM (GMT -6)   
California, maybe Arizona, Texas, or New Mexico.

I lived in a dry region of California for most of my life. The pain didn't really start until I moved to a wetter region of California and began pushing myself to run and work out really hard, then got better when I was in a drier region of Texas, then much much worse again when I moved to a colder climate.

Fibrofusion
New Member


Date Joined Jul 2014
Total Posts : 1
   Posted 7/23/2014 11:15 PM (GMT -6)   
Hi Hondablondie,

Wish I knew a place we could move to, but unfortunately I don't. But I do know of a really good fibromyalgia newsletter you might find interesting. I subscribe to it too. It is http://www.fmcpaware.org/

Ljm2014
Regular Member


Date Joined May 2014
Total Posts : 371
   Posted 7/24/2014 12:03 AM (GMT -6)   
Barometric changes drive me nuts...and its been a changling summer..wet...on vacation is desert areas...i have felt my best.. But my kids are not there....so....

You know i get a lot of help from alternative medicine things...like therapies and acupuncture...some things not covered by insurance... I would like drs to be more pro active in ways to help our comfort levels...not a cure... But at least make the patient feel better...and if insurance companies would cover the feel better things it would save them money in the long run....

Rockon
Regular Member


Date Joined Mar 2013
Total Posts : 217
   Posted 7/24/2014 1:36 AM (GMT -6)   
Lisa Petrison had to do a lot of camping (as have others), and she has some useful sites. At locationseffect people can report good and bad environmental experiences. Many people have gotten sick from poor jobs of mold remediation. I'm guessing the ME/CFS group is more affected than the fibro group, but its hard to say, cuz I don't think large numbers of us have experimented. We may not be as desperate...the QOL can be much worse with ME/CFS. Plus they have had Dr Shoemaker putting effort and testing into the mold issue for them. (Shoemaker protocol)

http://locationseffect.proboards.com
If you google locations effect you'll also see her site Paradigm Change. Sometimes she collaborates with others on interesting articles. I friended the facebook page so I don't miss Lisa's articles.

At HealClick several people have done shorter tests of extreme mold avoidance, to try to predetermine if a change would help. It's a very controlled experiment, if done right. Lisa (& others) has laid out the strict mold avoidance guidelines on a HealClick thread, and one person there did her successful experiment at Mercy Hot Springs,CA, where Lisa worked for a while. I had been looking around for a new place and in reading I came to learn that oil and gas drilling releases a lot of methane. I briefly considered Farmington NM, and was told by someone I originally met here that it has drilling. On a recent drive thru NM I got very sick 26 miles east of Deming and was somewhere in AZ before I was well again. I just emailed her about it since she had warned me...and she said to stay away from Lordsburg, NM, too. There is a long thread at HealClick about some cities for avoidance.
https://www.healclick.com/posts/8103-mold-avoidance-location-effect-where-to-live

Post Edited (Rockon) : 7/27/2014 9:02:11 PM (GMT-6)


Ljm2014
Regular Member


Date Joined May 2014
Total Posts : 371
   Posted 7/24/2014 2:10 PM (GMT -6)   
We are sensitive to so many things ...

Brudisdog
Regular Member


Date Joined Nov 2013
Total Posts : 40
   Posted 7/25/2014 2:49 PM (GMT -6)   
hondablondie,
Welcome to fibromyalgia forum! GREAT QUESTION, I've also heard that for chronic pain, the hot, least humid states were best to live in. I live in NE Ohio and the weather here is a large factor in my "daily" pain levels.
If you find the "best" place to live with Fibro, please let us all in on your secret!

Also want to give SHOUT OUT to Jeannie 143 for posting message (If you want to see what's being done in serious research you can visit the website on the University of Michigan's medical teaching site. Dr. Daniel Clauw has been one of the foremost researchers in the area of Fibromyalgia, CFS and other related pain disorders) above.

I thought that it was a really good video to watch, it's over 1 hr long. I didn't exactly agree with "everything" said but, it was educational. Thanks.

Brenda

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15071
   Posted 7/25/2014 6:04 PM (GMT -6)   
Brenda, this is a very old thread...started in 2010. I will be locking is when people stop posting this time. But, if you go into Fibro 101...the first thread on the page...you will fine an interview with Dr, Clauw that you might find interesting.

Okay. I lived in NE Ohio for 28 years and did have more pain but loved the area anyway. I now live in Florida and absolutely love it. Sure there is heat and humidity...for a few months. This is my worst time with fibro because of the humidity and the afternoon rains we usually get...but this only lasts a few months. Come September, it's fabulous. Our winter months usually have a low in the 40's or 50's and daytime temperatures are usually in the mid 70's. I can walk outside all year, swim and just be active and the sunlight makes me very happy.

Soooo, I think it depends on the person and if they give a climate a chance. The original poster hated Florida. I look at Phoenix, Arizona, where many think they want to live, and it was having severe flooding a week or so ago because of all the rain. And I just saw on the news, in a different part of Arizona, they had a huge dust storm that blanketed a city. I think I will put up with humidity for a few months. LOL We have chronic painbut we can enjoy life no matter where we live.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 7/26/2014 7:54:24 AM (GMT-6)

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