Just found this board!!!!

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EmLouise
New Member


Date Joined Mar 2010
Total Posts : 1
   Posted 3/25/2010 4:26 PM (GMT -7)   
Thank God you are hear to listen.  I am just beginning to take in what this is all about.  I'm 59 years old but I've always been extremely active - run with dog 2 miles, walks on beach, ride my horse for hours, garden, stack wood, housework, work full time.  I love and crave an active lifestyle.  But starting last fall, my neck and shoulders started getting so tight and achy I couldn't stand it.  Fortunately, I was working with an awesome massage therapist, who has fibromyl. herself.  I got relief from massages but at $90 a pop, I can't keep that up.  Two days ago I asked my GP about my symptoms.  She touched me at trigger points, light as a fly landing on you and of course I didn't feel anything.  Nope, she said.  You don't have fibromylagia.  Today after work I thought I'd go out of my mind.  My head felt like it was in a vice and too heavy to hold up.  Called massage therapist.   She provided me with some relief.  I'm SO discouraged.  I don't know where to go from here.  Give up all my activities?  I feel like crap so much of the time.  Any way out of this.  (I'm already on effexor and have been for 10 years).  EmLouise

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 3/25/2010 5:45 PM (GMT -7)   
Hello, EmLouise (my daughter's name!)

I'm glad you found this forum. I just found it myself last week, and the people here run the gamut as far as what they do for their pain, what they take for their pain, etc. So someone should be able to help you. I'm not sure if the trigger point test is 100% reliable. I was active myself, (probably not as much as you) until this nasty syndrome got its claws into me, so I know how hard it is to NOT be able to do what you love.
Debbie
 
Diagnosed: Fibromyalgia, Meniere's, mild liver damage, keloid scar tissue (from burn) on back, arthritis, lumbar disc damage, IBS, migraine, herpes
 
Meds: Nortriptyline, Clonazepam,  Effexor, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, calcium + vit. D, vit. C
 
Chiropractic adjustments


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40575
   Posted 3/25/2010 6:08 PM (GMT -7)   
Hello there,

Welcome to the fibromyalgia forum. If I were you, I would talk to another doctor to get a diagnosis. Find one that believes in fibromyalgia and who will handle your pain in your muscles. You could use the extra help right now.

I took effexor for years, I just switched to pristiq. I was on a really high dose of effexor 375mg. So I went on pristiq just so I wouldn't have to take so many pills. It is working for me.

There is a thread called fibro101. It is the second thread on the forum. I think you will find it interesting if you read it. If you get a chance, take a look.

I agree with Debbie about the tenderpoint test. And you aren't always sensitive in the tenderpoints. So if she tested it again, it could be different.

Keep posting and know that we are all here for you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17096
   Posted 3/26/2010 7:30 AM (GMT -7)   
Hi, EmLouise, and welcome!  I'm glad you found us and joined in.  Tender point tests aren't always reliable.  I had one and barely felt anything....but I was also on a ton of ibuprofen and Tylenol!  Now, if that test was taken several days after no medication, they would get a different reading.  But, my doctor knows I have fibro.  The other illnesses were ruled out. 
 
You do need a doctor that understands that.  If by touching a few tenderpoints can rule out fibro, they don't understand this illness.  If all illnesses are ruled out, then you probably have fibro.  That's how I was diagnosed.  Also, fibro waxes and wanes.  If you are having a good day, things don't hurt as much. 
 
I see that Karen directed you to the Fibro 101 thread.  There are links to good information there so be sure to check that out.
 
Don't hesitate to ask questions, either.  We are here to help you.  I'm happy you joined our fibro family and am looking forward to getting to know you. 
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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