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council lady
Regular Member


Date Joined Mar 2010
Total Posts : 137
   Posted 3/30/2010 8:23 AM (GMT -7)   
I am still in the process of getting "diagnoised",  will be going to a rheumatologist a week from today.  I have always a "bad" back, but last year (jan 2009) it decided enough was enough,  I couldn't walk across the room,  of course I went to the doctor and did the physical therapy thing(  it made it worse) and did chiropractor  (did not help)  and used vicodin and tramadol and hydrocodon,  I was finally able to stand up straight and walk across the room in May, and then i kept adding, walking a block, etc.  but once in a while it would flare up, but I also noticed at that time that if I bumped my arm or leaned on a wall, or my cat walked across my leg, I felt like I was brusied whever the contact was.  Well this past month it went from ok to bad with the chronic pain in my back,  exhaustion (which I have had for a long time)  not being able to sleep at all at night,  Restless legs, burning, tingling, all over my body,  I still work 40 hours a week in an office and can manage the pain most of the time without taking anything during the day.  although it can be very fun to try and type with both hands achey and feels swollen and just plain hurts.  (I do use a heating pad for my back in my office)  but it is the exhaustion that kills me at work.    until my rheumy appt I am taking cyclembenzine and zolpidem at night to help me sleep,  sometimes it works, sometimes it doesn't.  I take warm baths before I go to bed, and read a book.  even after a relatively good nights sleep I am still exhausted (yes, I know that is one of the symptons)  but any tricks for me to try at work to combat that feeling?  I munch on junk food trying to wake up and once in a while will have a pop in the mornings,  but I do try to limit it to one pop (in the afternoon) for the whole day.  any help is appreciated.  also I am suppose to walk 3 miles on May 1st with my daughter who has MS,  and right now with my back flaring up, I am lucky to make it 1/2 mile.  (sorry this is so long)
 
Diane

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40573
   Posted 3/30/2010 12:04 PM (GMT -7)   
Hi Diane,

Welcome to the HealingWell Fibromyalgia forum. We are so happy that you joined us, but sorry that you have fibro.

There is a thread called fibro101, it is the second thread on the forum. Check it out when you get a chance. There are a lot of coping skills and exercises that you can do sitting down. I think you will find it to be a wealth of information. So when you get a chance slide over there and take a look.

I have what is called a bed buddy. It is a tube with rice in it that you put in the microwave to heat up. It goes around your neck and really helps relax the muscles with the moist heat. I got mine at Walmarts pharmacy. You might want to get one. I find my shoulders and neck hurt a lot and it really takes the tension out.

You will find that there are a lot of wonderful members here on the forum. And best of all, you will find that you are not alone in this. It helps to have others that understand what you are going through.

Good luck with the rhuemy. I think you will feel better once you get a diagnosis. At least then you will know what you are up against for the most part. Fibromyalgia is full of surprises.

I hope that you have a good day. Take care, keep posting.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 3/30/2010 12:12 PM (GMT -7)   
Hi Diane welcome to the home of friendly fibromites. There sure are alot of people
here with bad backs, myself included. I did the chiropractic route, PT and finally back
surgery. I have DDD so I still have back issues.

Waiting for a fibro dx often takes some time. There are other conditions that have many
of the same symptoms of fibro, they have to be ruled out. You will probably have some
blood work done along with a tender point exam.

You are already using heat to help you and that is a good thing. Exercise is good too.
I am a walker and it really helps me with the stress and keeps my musles moving.

Sorry to hear your daughter has MS. I do hope you will be able to do the walk with her.
I did a walk for MS back in 1994 and walked 9.2 miles. It is hard to believe now!

I am taking Savella(SNRI) daily and I use a muscle relaxer for flares.

Try to do some gentle stretching through out the day. Be sure to check out fibro 101
on top of page one. It is a wonderful resource for us. Make sure you bring a list of symptoms and questions for your rheumy. Hope your appointment goes well.

Glad you joined us, keep us posted ! There are lots of friendly people here who are
really understand!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 3/30/2010 8:29 PM (GMT -7)   
Hi Diane!

And welcome to the Fibro Family! I hope you get an answer to your pain when you go to the rheumatologist. It's likely fibro but until you get the 'official' dx I guess we can't actually say you have it ...but!...lol When I first joined I read and read and read pages of posts in here and that in itself was so very helpful to me. I wasn't alone any more and there were people all around me who cared and understood what I was feeling. I think you will find this for you too.

I also checked out books from the library on fibro. You do have to be careful what you get because there are always shysters waiting to convince you that they have "the cure" for fibro. As we all know there is no cure but there are a lot of good treatments to help with the symptoms. There is not one thing that works for everyone but among the different options you can usually find something that will help. First on my list is a great doctor who you can work with and suits your lifestyle. The rest is daily living after that...IMHO.

Keep in touch and also come join our daily Koffee Klatch. It's a bit of fun in each day. Plus on Thursday nights we have a Chat Night in the chronic pain Chat Room. There will be a post about it on Thursday mornings. Hope you can make it!

Chutz
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 3/30/2010 10:09 PM (GMT -7)   
Diane, I'm sorry you're suffering so much.  Physical therapy made me worse, too.  Like others said, until you have a diagnosis all you can do is what you can do.  I managed to inflame my back and butt a few minutes ago just walking ( not carrying, not dragging!) a little end table that weighs about a pound for the distance of, oh, about 10 feet.  It try to laugh at the absurdity of it all and right now I can.  But when you are in agony as it sounds like you are, it's no laughing matter.  As for the walk with your daughter (how old is she?) it would be great if you can, but if it's going to flare you up worse, I sure wouldn't.  I hope you get relief soon.
 
 
Debbie
 
Diagnosed: Fibromyalgia, Meniere's, mild liver damage, keloid scar tissue (from burn) on back, arthritis, lumbar disc damage, IBS, migraine, herpes
 
Meds: Nortriptyline, Clonazepam,  Effexor, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, calcium + vit. D, vit. C
 
Chiropractic adjustments


council lady
Regular Member


Date Joined Mar 2010
Total Posts : 137
   Posted 3/31/2010 11:00 AM (GMT -7)   
thanks everyone for the replies.  My "regular" doctor has done all the blood work/tests several weeks ago and he did mention the fibromyalgia which is why he is sending me to the rheumy.  I live in the midwest in a town of around 8,000.  My daughter will be 30 this year and has had MS for 5 years.  Now a question-  when you have the burning in your legs does taking a warm bath help it at all?  I couldn't imagine stepping into a warm bath last night with both legs burning after a "small walk"  It feels like I've been sunburned all over.  Ice would have felt good to me.  But today is a good day,  just a little burning in the thighs and stiff/pain in the shoulders and neck.  So I've been trying to do the neck rolls and trying to relax my shoulders while sitting at work. 

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 3/31/2010 11:29 AM (GMT -7)   
It is amazing how with Fibromyalgia so much of the pain moves around with no apparent rhyme or reason. I've got my areas which are always bad, but sometimes pain will come out of the blue and go back into it.
Debbie
 
Diagnosed: Fibromyalgia, Meniere's, mild liver damage, keloid scar tissue (from burn) on back, arthritis, lumbar disc damage, IBS, migraine, herpes
 
Meds: Nortriptyline, Clonazepam,  Effexor, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, calcium + vit. D, vit. C
 
Chiropractic adjustments


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 3/31/2010 6:01 PM (GMT -7)   
Council lady, a warm bath does help with my burning sensations, it relaxes my muscles.
Before you start walking, do some gentle stretching. Be sure to start out slowly and
increase your distance gradually. Pace yourself and be careful not to overdo.

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

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