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Date Joined Dec 2009
Total Posts : 387
Posted 3/31/2010 3:49 PM (GMT -6)
I spoke with my dr and she thinks that it could be the fibro and not medication changes. I called my rhummy and she said that it sounds like the fibro and to try advil. If that doesn't work to see her soon. Maybe I am misunderstanding her but this seems like she is starting or is diagnosing me as having fibro What do you think? I am happy and sad at the same time: Happy that I might have a diagnosis, sad that it sets limitations on me and it means that it is a lifelong condition. Crazy huh. My primary also thinks that what I am feeling is also part of my depression/anxiety. I have had a crazy three weeks planning three birthday parties, and wanting to do a million things then I had a crash and burn hr of frustration/anxiety/and crying into the next day. I also have three children under age 10. I want to be there for them so I want to get a handle on this but I don't know if I am ready to accept this...how do I accept this?
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Date Joined Jul 2009
Total Posts : 4796
Posted 3/31/2010 4:14 PM (GMT -6)
Lisa, I think it is hurts to be in pain and not to have a diagnosis and difficult when you
finally do get one. The important thing is getting your symptoms treated and learning
to live with whatever you have. It does take time to fully accept an illness, but in time
you do. Learning to do what you can do to limit your pain is a must. I'm big on delegating.
Ask others for help when you need it. Take time for yourself whenever you can.
I know this is a difficult time for you. We all have been there waiting and wondering.
Hope you can get some rest and pain relief.
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid. OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
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Date Joined Apr 2005
Total Posts : 17209
Posted 3/31/2010 4:29 PM (GMT -6)
Lisa, my children were 8, 10, and 12 when I came down with fibro. Plus, I had been sick with Crohn's disease since they were babies. But, they are all grown now and tell me what a great childhood they had. I was always home and there for them when they needed me. That is what is important to children. I would go to their games, take a comfy lawn chair, and rest and enjoy the moment. You can handle stuff like that. Just learn to pace yourself. You will be surprised at all you can do. Also, the more you move, the better you should be with your pain. You'll be tired but take breaks during the day.
How do you accept fibro? Well, do you have any other choice? If you have fibro, you will have to accept it and learn how to control the pain and pace yourself. You can have a full and enjoyable life with fibro, too! I know that I have. I have not let fibro rule me. I am in charge of fibro. I figure out how to work around it to do the things I want to do. Last December I walked through Fantasy Land at Walt Disney World from 9 AM to 6 PM. I rode a ton of rides, including Splash Mountain, and had a blast...and I'm no spring chicken either! Sure, I was pooped for several days, but I did it. I'm stubborn and refuse to let fibro have the upper hand.
I'm sure you will do just fine, too. So, try not to worry about
it. Take one day at a time and you will be surprised how much you accomplish.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
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Date Joined Sep 2007
Total Posts : 41062
Posted 3/31/2010 6:44 PM (GMT -6)
Sherrine is right, you pretty much have to accept fibromyalgia, it will be with you for the rest of your life. Unless they find some cure or something in the meantime.
But I want to tell you that I have mine managable now. It can be done. With the right protocol for you. And you will find it. It might take a while, but it will happen.
Some people take medications, some exercise, some take supplements. Different things work for different people. So be expected to feel like a guinie pig. It is all trial and error, but it can be done.
Have you checked out the thread fibro101? You will find that we all know how you feel. We really do understand. Reading that brings a lot to light. There is a wealth of information in that thread. So if you haven't already checked it out, I recommend it.
I hope that you feel better soon. Keep posting, it is good to get things out.
Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies
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Date Joined Nov 2008
Total Posts : 5940
Posted 3/31/2010 8:05 PM (GMT -6)
I had young kids too when my fibro started. It is hard, but as you learn what you can do and what to avoid, you should have an easier time of it. (Not that it can't suddenly up the ante on you, but in general, you get a feel for your own situation and your own body.) Good luck.
Diagnosed: Fibromyalgia, Meniere's, mild liver damage, keloid scar tissue (from burn) on back, arthritis, lumbar disc damage, IBS, migraine,
Meds: Nortriptyline, Clonazepam, Effexor, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, calcium + vit. D, vit. C
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Date Joined Jan 2010
Total Posts : 1097
Posted 3/31/2010 8:18 PM (GMT -6)
I'm sorry you're in the place where it looks like a diagnosis has been made...it sorta feels like a point of no return, doesn't it? If Fibro is what your doctor(s) think you have, then yes...you are basically facing a lifelong condition. Like anything else, Fibro symptoms can come and go, or you could experience one set of symptoms today and then feel something completely different the next day.
The best thing you can do in my opinion is accept that life is likely going to be different than you previously imagined. That doesn't necessarily mean worse...just different. As you try out different treatments, such as pain medication, massage, heat, exercise, physio, etc. you will find the things that help you and start coming up with ways to make your life easier.
Start tracking the things that cause your pain to flair up. Once you have a better idea of those triggers, you can start to develop ways of managing. Maybe it means pacing yourself during the day, so you can go to a school play, or play outside with your kids. Maybe you get them to help you with laundry by putting items in the washing machine or dryer under your supervision. There are lots of ways to get your family to help out...the goal is to NOT feel guility about
what you can't do anymore. In fact, i think the overall goal in any chronic condition is to not feel guilty period. You didn't ask for this, and it's unfair, etc. but it is what it is and you have to find ways to cope.
Talk to your doctor about
medications that might help. Get some of the magic bags you can microwave for instant heat backs. Plan out breaks in your day. Ask for help when you need it Things will hopefully get easier over time, but it does take time.
We're always here to listen to rants and venting....and we all have shoulders to lean on. We're all there and we "get" it. Hang in there and someday, this will be you typing a message to someone newly diagnosed.
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine plus Vitamin D and Multi-Vitamin daily
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