Need help with med sensitivity

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RoseCrone
Regular Member


Date Joined Aug 2008
Total Posts : 71
   Posted 4/1/2010 12:08 PM (GMT -7)   
For a friend who has fibro, cannot take narcotics, the Lyrica's or other anti-epileptic meds, antidepressants (Celexa, etc) or NSAIDs.  Doesn't know what to do, docs are not much help.  She's saving up for a wholistic doc, but in the meantime, needs help.
 
Anyone out there managing their pain well without any of these meds?  I appreciate any advice!
 
(Not me, I was taking Lyrica, it stopped working, and the best relief for me is from tramadol, roxicet and soma.  Oh, and Klonopin (less anxiety, less pain).   I can't tolerate SSRI, SNRI, or MAO inhibitors -any antidepressant, or most anit-epileptics).  Just started gabapentin yesterday, with doubts.. sad ).  Keep on truckin...
 
Rose
RoseCrone
__________________________
Fibromyalgia, TMJ dysfunction, Myofascial Pain Dysfunction, Chronic Fatigue Syndrome, hypothyroid, bruxism, endometriosis, medically induced menopause (everything removed!), major depression, going through a divorce to top it off!
__________________________
Ultram, Soma, Ativan, Lyrica (on and off), Armour Thyroid, Famvir, can't tolerate SSRIs or NSRIs.


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 4/1/2010 1:21 PM (GMT -7)   
Wish I could help. I'd be in bad shape without my meds. All I can think of is probably what you already know: heat, cold, breathing, stretching. Hope she can get to the holistic doc soon.
Debbie
 
Diagnosed: Fibromyalgia, Meniere's, mild liver damage, keloid scar tissue (from burn) on back, arthritis, lumbar disc damage, IBS, migraine,
 
Meds: Nortriptyline, Clonazepam,  Effexor, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, calcium + vit. D, vit. C
 
Chiropractic adjustments


LRDozier
Regular Member


Date Joined Nov 2009
Total Posts : 29
   Posted 4/1/2010 2:51 PM (GMT -7)   
I don't take pain meds. I worked in a pharmacy for years and saw way to many addicts; I think it scarred me for life. My doctor prescribed Req 49+ which is a prescription strength vitamin. I had my doubts about it, but tried it anyway. It helps with the fog and the fatigue. I love it. The pain is sometimes there, but I have found that it is easier to deal with when I don't have fatigue and fog to contend with.

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 4/1/2010 4:27 PM (GMT -7)   
That wouldn't have worked for me....I had the fatigue and the fog worse before I took any meds! Everybody's different.
Debbie
 
Diagnosed: Fibromyalgia, Meniere's, mild liver damage, keloid scar tissue (from burn) on back, arthritis, lumbar disc damage, IBS, migraine,
 
Meds: Nortriptyline, Clonazepam,  Effexor, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, calcium + vit. D, vit. C
 
Chiropractic adjustments


willowsgrandma
Regular Member


Date Joined Jan 2010
Total Posts : 78
   Posted 4/1/2010 6:02 PM (GMT -7)   
yeah yeah Hi Rosecron! Please give the Gabapentin a chance to work. I took Lyrica with little relief. For a momth I have been taking Savella. My dr. also added Gabapentin 3-300 mg/day. Two weeks ago he upped the Gabapentin to 4-600 mg/daily. The results have been GREAT! I have had 7 days with small amt of pain. I started this pm with some pain...not surprising-it's very cloudy and we expect rain tomorrow. So that explains it. aS FOR YOUR FRIEND, i CAN'T REALLY THINK OF WHAT SHE COULD TAKE. i DO HAVE ONE SUGGESTION THOUGH. i WAS SEEING A pAIN mGT. DR AND CHANGED TO AN iNTERNIST. i AM SO GLAD i CHANGED. i HOPE MAYBE i'VE HELPED A LITTLE. tAKE CARE-YOU AND YOUR FRIEND WILL BE IN MY PRAYERS AS ARE MY FRIENDS HERE AT hw AND AT mdjUNCTION. dONNA eyes turn cool

HTG
New Member


Date Joined Apr 2010
Total Posts : 17
   Posted 4/2/2010 7:53 PM (GMT -7)   
Can she take NSAIDS? I'm getting along with excedrine migraine (it's a combo of NSAIDS), hot, cold, showers, breathing, and not much support from doctors. It's not ideal, but I'm keeping afloat for now.

ob1pooky
New Member


Date Joined Jan 2010
Total Posts : 8
   Posted 4/2/2010 9:46 PM (GMT -7)   
 I have had some luck with vitamin D3.  I just increased it to 5000iu from 2000iu and have noticed a difference after about three weeks. Someone this evening said I had that look in my eye like I used to have.  That was the nicest complement to say to me.  It also made me realize that I did feel better.   We live in a world of  pain, fog and ourlives are so selfcentered that we will even take for granted the times that we do feel better.  I realize that it can be short lived because with fibro it can change from day to day. 
 
Different medications work for different people and  day to day is different.  Everyday you need to stretch and do something that gets you moving.  I feel the worse when I lay around.  But again,  it is easier is write this that to do it all the time.  When you know there is going to be a weather change prepare yourself by either stretching more, exersize or take something for your discomfort before it gets bad.   I had been taking Lyrica but stopped it because of the side effects and the fact that it was not helping me with the pain.  I really hoped it would work.  Thankfully for some people it does. Cymbalta has so far been the best.
 
Good luck
 

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40573
   Posted 4/3/2010 12:05 PM (GMT -7)   
Has she tried the malic acid/magnesium yet? There is some information about it on fibro101 I do believe. It would be worth checking out, I know that it has helped me.

Best wishes,

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Tink42
Regular Member


Date Joined Apr 2010
Total Posts : 42
   Posted 4/3/2010 1:23 PM (GMT -7)   
I tried lyrica, among other meds and pain meds and none seem to help much with my Fibro, But one day I went to see my Dr and I normally seen one, but on this day I seen the other Dr as mine was away. He told me he had a theory that alot of ppl with Fibromyalgia tend to have low to low normal thyroid tests, So he gave me a script for Pig thyroid as it closely matches humans, I was willing to give it a try, well not only did it give me ample energy, i found I didn't hurt much after taking it awhile, and on the days I forgot to take it, I felt it. However with that being said.. The good ole FDA took it off the market, But maybe there is something that will compare to it out there, I haven't got to see that Dr again, since they stopped making them, but I have apt next week to go talk to him
42 yr Female
Dx'd with Crohn's 03/31/10, Fibromyalgia 97, Allergies since birth, Anxiety 06, Depression 97, IBS 00,
Endometriosis 01,Anemia since teen years, Osteoarthritis 00, Diverticulosis 07.
Just started Prednisone 20mg, Imuran 50mg x2


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40573
   Posted 4/3/2010 3:02 PM (GMT -7)   
Tink,

I hope that he can help you again. It is too bad that they took it off of the market.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


RoseCrone
Regular Member


Date Joined Aug 2008
Total Posts : 71
   Posted 4/3/2010 7:05 PM (GMT -7)   
Tink-You can get the pig Thyroid from a compounding pharmacy (Wellness Pharmacy is where I get mine).
To everyone else thanks for the advice! I always know I can come here and get great ideas that are pretty easy!
RoseCrone
RoseCrone
__________________________
Fibromyalgia, TMJ , MPD, CFS, hypothyroid, bruxism, endometriosis, medically induced menopause (everything removed!), "clinical" depression and anxiety
__________________________
Ultram, Soma, Klonopin, Lyrica (on and off), P- Thyroid , Famvir, can't tolerate SSRIs or SNRIs and most AIMs.  Recently added Roxicet (Ultram tolerance and maxed on dosage).  Trying gabapentin as of 4/1/10.


Tink42
Regular Member


Date Joined Apr 2010
Total Posts : 42
   Posted 4/4/2010 12:13 AM (GMT -7)   
RoseCrone, I was able to get it once from there, but when I called them back this last time around they said they wasn't going to be getting anymore of it either. Not sure where your at but here in Az can't find anyplace that has anymore
42 yr Female
Dx'd with Crohn's 03/31/10, Fibromyalgia 97, Allergies since birth, Anxiety 06, Depression 97, IBS 00,
Endometriosis 01,Anemia since teen years, Osteoarthritis 00, Diverticulosis 07.
Just started Prednisone 20mg, Imuran 50mg x2


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 4/5/2010 4:39 PM (GMT -7)   
Rose,
I'm glad to see someone else going herbal. Other than the occasional darvacet I'm off dr drugs now. I got so sick and tired
of taking them. One time I had a flare so bad I took 4 darvies and 3 flexoril and it didn't touch the pain. Now I'm on herbals
I don't have most of the problems. I've had arthritis for 49 years (I was 7 when it started) and was diagnosed with fibro about
10 years ago. I've done the gambit of meds for both problems. I have knee and sciatic issues from falling once at work and the
other on ice but I keep on trucking. I've only been to the drs twice in the last year and a half but need to go with the knee thing
soon and it's getting hard to drive my stick shift. If you need any herbal advice get in touch.....
Nana Monster

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4643
   Posted 4/5/2010 10:56 PM (GMT -7)   
Like a previous poster ob1pooky, I got some relief from upping the D3. I asked for the test when I was getting some other blood work. My level was only 18 after this awful winter. The formula for increasing it is 100 units D3 for every 1ng you are low. For me that was 4000 units to get to 58. New normal level is 50 to 80 I have read, used to be only 32. If I work in the sun I only take half the dose.
I also take Neurontin (gabapentin). I was wondering if it was doing anything, so I stopped it for a day and found out, oh yes, it does help. Since it makes me sleepy, I take it with my tramadol, which has the opposite effect.
Alcie
 
 


RoseCrone
Regular Member


Date Joined Aug 2008
Total Posts : 71
   Posted 4/7/2010 5:47 PM (GMT -7)   
It is amazing how much I learn everytime I get on healingwell! And I am really thrilled to be able to help my friend with suggestions from here :)
NANA I will be in touch!
I should update my signature, I am also up to my elbows in vitamins, minerals and other supplements (some herbal), aside from the prescriptions. Trying to get more exercise but between being hard to just do it, I do not feel better after and I can only keep up something that does not seem to help for a little while! I am gardening a little (cleaning up, that is).
By the way, my friend can't take NSAIDs either HTG.
Don't know if she tried the malic acid thing yet.
Tink I goofed. It is Women's International Pharmacy (WIP) that compounds the pig thyroid. (I use Wellness for something else). I just had a refill sent to me about 2 weeks ago from WIP. They call it P-thyroid. Of course you need a prescription.

The tramdol/gabapentin relationship makes sense, in the AM I take them together. I am happy to say so far side effects are manageable. I don't think I am at a therapeutic dose though. My doc may have me increase next time I see her so we'll see about getting to a dose that does something. Something good, that is!
Again, thanks and hugs to all who are helping!
Rose
RoseCrone
__________________________
Fibromyalgia, TMJ , MPD, CFS, hypothyroid, bruxism, endometriosis, medically induced menopause (everything removed!), "clinical" depression and anxiety
__________________________
Ultram, Soma, Klonopin, Lyrica (on and off), P- Thyroid , Famvir, can't tolerate SSRIs or SNRIs and most AIMs.  Recently added Roxicet (Ultram tolerance and maxed on dosage).  Trying gabapentin as of 4/1/10.

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