Anyone have this with FMS?

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Klambert1
Regular Member


Date Joined Mar 2010
Total Posts : 342
   Posted 4/2/2010 5:58 AM (GMT -7)   
Hello,
Thanks for your previous replies to my earlier post. I am new here, and though it hasn't been confirmed by my md yet, I think I have fibro. (I go in May)
Anyway, I was wondering if anyone has symptoms like this?
My symptoms get worse as the day goes by. If I sleep good, I wake up (still in bed) and feel no soreness or tender points as bad, if any. As soon as I get up and move around I have muscle soreness...esp in my thighs and stomach..and I can feel the tender points then really good.
If I tighten my muscles and touch the tender points it hurts worse. Anyone's hurt worse when you tighten your muscles?
One more thing, do your tender points in the same areas hurt everyday? I have ones that do, but sometimes I feel new ones or maybe ones that don't flare up until its bad. Like yesterday, my whole back muscle hurt, down into my hip bones into my legs..(felt like I overworked myself in gym) and I had a tender spot on my back shoulder blade....and this am its gone. I also have one right where my purse straps go over my bone on the shoulder...sometimes that aggrivates it.
Thanks for all of your help! I am glad I found this website!
(oh..also sometimes I get a flushed feeling and my face feels rashy..and I get hot..not old enough for menopause sym..hehe)
God bless,
Karenwink

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 4/2/2010 6:58 AM (GMT -7)   
Hi Karen, I can't remember if I have welcomed you yet or not so welcome. That sounds like fibro to me. Usually, neck pain and headache is what drives me out of bed too early every morning but besides that I do usually feel less pain in other parts of my body in the mornings and the more I do during the day the worse it gets and I have the bad pain in the evenings. But there are exceptions to that rule depending on the weather etc. This time of year with the ever changing weather I hurt all the time.
 
If I get really upset I can feel my muscles contract and it's like they lock like that for a long time and not even xanax relaxes them, I haven't tried muscle relaxers for a long time so don't know if that would help. I try not to let things upset me that much but you can't always prevent stress.
 
From the base of my skull down to my tailbone is the worse area for me the shoulders, shoulder blades are the worse. When my DH rubs my back he will hit tenderpoints I didn't even know was there til he touches them and I about jump out of my skin they are so tender. I have some huge ones on my upper arms and they do hurt whether being touched or not. Some times tenderpoints are worse than other times, it depends on how you have used your muscles etc. Mine have really multiplied over the years but they don't for everyone.
 
I do get massages that help with the knots or tenderpoints in the muscles but they are light massages. If I have one too deep I pay dearly for it for days after. I feel I really need one but I have been sick so it's been a few weeks. You have to have a therapist that has been trained in fibro or you can end up in a world of pain.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


Klambert1
Regular Member


Date Joined Mar 2010
Total Posts : 342
   Posted 4/2/2010 8:01 AM (GMT -7)   
Hi Marlee,
Thanks for your reply. I feel the same sometimes when DH rubs my back or sides. I remember when he would grab my leg playing and it would hurt so bad..and at the time I didn't know about FMS and I thought it was just him being to strong playing around, but it was probably a tender spot. I know I have been going through alot of stress last year over my job. It was getting to the point where I hated to go to work. (maybe stress and my degenerated disc (which is ruptured) has brought it on) My symptoms started 2 years ago around Thanksgiving or Christmas. I felt the tender spots in my belly and put it off as pain from pants..gaining 5 - 10 lbs. Then this year I thought is was something called nerve entrapment syndrome (there is a medical term for it)...but now that my gastro md mentioned FMS..I have been learning about it and it sounds like my symptoms. My tender spots aren't in the 18 that determine if you have fibro. or not, maybe just one to three. But my thighs, stomach and back are sore almost everyday. I get this annoying!! little pin pricks all over my body, some hurt, but mostly it's aggrivating.
I used to be a RN on the floor working 12 hr shifts, since my back has been really bad I took a different position, so I sit 8 hrs a day. Boy..the tender spots in legs and around hips hurt then. I get up and walk around every hr or so.
Anyway..wish my md appt was sooner!!
Thanks again,

Karen

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 4/2/2010 8:24 AM (GMT -7)   
Hi Karen and welcome to our family. You sound like a typical fibromite to me.

I'm really sore when I first wake up in the morning. My muscles are stiff and achy. Before
I can get up I have to spend at least five minutes doing slow gentle stretches. The change
in weather especially cool and damp weather really affect my muscles. When I'm flaring
I do take a muscle relaxer, cyclobenzaprine and it does help.

Exercise is a must for me, I'm a daily walker and it does help with my muscles getting
tighter. Deep breathing exercises help relax my muscles, so that is part of my routine
too. Heat is wonderful in helping those muscles relax too. Our tenderpoints are so very
sensitive that the more relaxed we are the better!

Glad you joined us!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 4/2/2010 9:24 AM (GMT -7)   
 
Hi Karen,
 
 
Welcome, sure does sound like Fibro. I'm pretty much right along with Marlee on the pain starting at the base of my neck and down my spine. Shoulders are always tender and when it's bad my legs and hips will chime right in. My new addition is my fingers and feet.
 
Yes, when I tense up it is so much worse. I remember not too long ago thinking I was going to get into a car accident when DH was driving, I guess I tried to brace myself and was so tensed up, luckily no accident, but I was in a lot of pain several days after.
 
I wake up sore also, the more I stay in bed, the worse it is. I wake up, go down stairs to let my dog out, take my meds and then a nice hot shower by the time I'm out, I usually feel a little better.
 
Hot and cold my temps regulate all the time.
 
 
Hopegirl... 
 
Taking it one day at a time.... 


Klambert1
Regular Member


Date Joined Mar 2010
Total Posts : 342
   Posted 4/2/2010 10:37 AM (GMT -7)   
Hi Robin and Hopegirl,
I guess I'm opposite haha, I usually wake up ok, but then get sore when I start walking around. Sometimes I feel feel a quick pain in a tenderspot and touch it and it's gone. But these are the ones I don't usually feel everyday. Around the hip bones are sore too!
My pain is not as severe as others here. I don't know if it's a mild case or just starting to take effect. I am guessing the more you use a muscle group the worse the pain is in that area. Ha..if I sit indian style and put my elbows on my legs (sorta like your leaning over to read) I have them right there in that spot and those two hurt!
I called my rhuem. office today to see if they had a spot that was earlier than May 18. She said I was on the list..but no cancelations yet. :( but I will try again in a week to see.
My only other problem is that I do not like taking pills. I am not a pill person..lol. This may be a problem. I will take 800mg of motrin (which does not take ALL the pain away) or tylenol for headaches. I'm just funny with pills. Shoot...tylenol will put me to sleep. lol Oh..I have taken xanax and clonazapam? sp? for anxiety. But it's so rare I think the last one I took was last summer before I went to kingsdominion to keep up with my teen on the rollercoasters..lol!
great chatting with everyone!
Karen

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 4/2/2010 8:28 PM (GMT -7)   
Karen,
My pain also usually gets worse toward evening, depending on what I've done that day. I agree that tensing up your muscles is one of the worst things you can do. Also reaching or straining for something (at least for me.) If I were you, I would really scale back on the workouts. I don't mean that you shouldn't keep moving and stretching, but listen carefully to your body. I didn't. When I first had symptoms, I kept doing Nautilus because I didn't know any better (20 years ago I'd never heard of Fibromyalgia) and lifting and carrying my toddlers, and everything else I had always done. Pretty much every night I was in tears, flat on my back with heat or ice and just incredible pain. Now at least it's usually within parameters. Hope you can see a doctor soon.
Debbie
 
Diagnosed: Fibromyalgia, Meniere's, mild liver damage, keloid scar tissue (from burn) on back, arthritis, lumbar disc damage, IBS, migraine,
 
Meds: Nortriptyline, Clonazepam,  Effexor, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, calcium + vit. D, vit. C
 
Chiropractic adjustments


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 4/3/2010 6:50 AM (GMT -7)   
Karen, I have a problem with taking new meds since fibro cause I have had so many bad reactions to them. Most everything I am on I was on pre fibro. Plus my whole digestive system is a lemon and so many meds cause me stomach problems, I get gastritis from vitamins. I am going to talk to my doc Mon about trying another pain med cause the vicodin seems to cause more anxiety or it's in my head that it does. I will start out with the tiniest amount first to see what is going to happen when I start a new med. Thankfully, my GP and rheumy are both understanding about this. They don't have to worry about me becoming an addict. I would rather not take any narcotics but the pain seems to get worse all the time and this ever changing spring weather has really been hard on my body.
 
I could not sit for 8 hrs or lay for 8 hrs. I have a laptop on a laptop table and I'm sitting on the comfy couch. If I had to sit in an office chair to be on the computer I wouldn't be on it near as much. I have to sit indian style most of the time cause my feet don't touch the floor, short legs, and if I have them down it pulls on my back and makes it hurt worse. It's rainy here today and I have already sit here about as long as I can this morning cause my hips and back are hurting. I will get up and do some laundry and whatever else that I see that needs to be done. I am going to take it easy this morning and conserve my energy cause I have great grandson's first birthday party this afternoon so I need my allotment of energy for the day for that. That's the way it is everyday for me, I have to plan so I use my energy on what needs to be done and work and rest in shifts to deal with the pain.
 
My DH use to grab my leg right above the knee playing and I would say ouch and thought he was too rough but if he did it to one the kids they had no reaction so he thought I was a wimp. Well, I think fibro was long in the making for me and I had tender spots long before it became full blown fibro. Now, I can't lay with my knees together for any length of time or they start hurting. So I wasn't being a wimp.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 4/3/2010 10:31 AM (GMT -7)   
Wow, me too, I have to sleep (always on my right side) with a folded-up towels between my knees or I feel the knee bones and it doesn't feel good. Sit and stand, walk and stretch, lie and sit....
Debbie
 
Diagnosed: Fibromyalgia, Meniere's, mild liver damage, keloid scar tissue (from burn) on back, arthritis, lumbar disc damage, IBS, migraine,
 
Meds: Nortriptyline, Clonazepam,  Effexor, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, calcium + vit. D, vit. C
 
Chiropractic adjustments


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40572
   Posted 4/3/2010 11:16 AM (GMT -7)   
Hi Karen,

Most of my pain is in the neck and shoulders, though the hips and legs come into play too. My tender points that are the worse are on my back too. I remember when the doctor gave me a test, I had no clue as to what she was doing at that time, I about come off of the examining table when she touched me there. Wondering what the heck was that...

Have you ever tried a "bed buddy"? It is a tube filled with rice that you heat in the microwave and put around your neck. It really feels good and helps relax the neck and shoulder muscles. When you get pain, you tense up. When you tense up, you get more pain. So it can be a viscous cycle. But the bed buddy really does help and they are only about, shoot, I can't remember what it cost. I know it wasn't more than 20.00. You can make one too. Take a long tube sock. Fill it 3/4 the way with long grain cooking rice (not minute rice) and tie a knot in the other end. You don't even have to sew to make it.

I hope that you start to feel better soon. You will notice that fibro waxes and wanes. One minute good, the next not so good. But you can survive, you get use to a slower pace of life and living one day at a time. Take care, keep posting.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Klambert1
Regular Member


Date Joined Mar 2010
Total Posts : 342
   Posted 4/5/2010 7:15 AM (GMT -7)   
Marlee,
I reading your post and I noticed that you put that your HD would grap your leg and it would hurt..my question is how long did it take for your fibro to become full blown? I was just wondering if I will stay like this or will it become worse or "full blown" too. Right now I have more tenderspot pain when touched, and the muscle around those spots are sore to touch. Every once in a while I will have sore muscles without applying pressure or touching them. What I have now hurts but is not to bad. I can kind of deal with it. I haven't gotten to that point where I have to sleep with pillows, or it's so bad that I can't do anything. I guess my md will tell me if this is the beginning of fibro or if I have a mild case.
I think the fatigue for me is worse that anything right now, but if I get a good nights sleep and rest, my tender spots are not as noticable.
I guess it if was going to be full blown it would be right now..because my symptoms started about 2 years ago.
anyway, thanks for all of your help!!
God Bless,
Karen
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