Any Advice for headaches?

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shannahsmom
Regular Member


Date Joined Jan 2010
Total Posts : 87
   Posted 4/4/2010 2:52 PM (GMT -7)   
I think the hardest part of having fibro is these headaches I get. They start with my shoulders stiffening up then my neck and up to the base of my skull. Then it will turn into the most horrible headache, where all I can do is lie down and try not to move my head. Most of the time the worst of it only lasts a day and I get some relief after I've slept through the night but it lingers for days even weeks sometimes. Sometimes getting bad again where I lose another day to lying in bed all day because the pain is so bad. I was wondering if anyone has any advice on heading these off before they get to the headache point, when it is just my shoulders and neck getting stiff?
Shannahsmom
Fibromyalgia DX Dec 2009, bilateral epicondylitis, IBS.... stay tuned more to come I'm sure.
 
No one is in charge of your happiness but you.
Don't take yourself so seriously, no one else does.
What other people think of you is none of your business.
Life isn't fair, but it's still good.


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40565
   Posted 4/4/2010 3:06 PM (GMT -7)   
I use a bed buddy. I don't know if you are familiar with them. You can get them in the pharmacy at Walmarts and sometimes they are found in sporting goods. But they are a tube with rice in it. You put it in the microwave and then wrap around your neck. It relieves the tension in your neck and shoulders therefore taking away the headache. We also have sinus cavities in the back of our heads and it helps with that. Another thing I use is peppermint oil that you can get most likely at the healthfood store. I got mine at a salon that had natural products. The peppermint oil really opens you up.  Also try light massage to the area that hurts.  Sometimes all you need is circulation.

I hope that this helped some.

Hugs, Karen


  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Hopi1
New Member


Date Joined Apr 2010
Total Posts : 4
   Posted 4/4/2010 3:30 PM (GMT -7)   
I have Fybromyalgia too & I get exactly the same headaches. I can't plan a thing. I just saw my Doctor and he thinks they may be migraines. Once all of the muscles in my upper back, shoulders and neck tense up I then get blurred vision. The doctor just prescribed Zomig Rapimelt. You put a pill on your tongue not under it. The headache was gone in 20 minutes. But this medication is very expensive ($97.29 for 6 tablets) so you should have a drug plan. The Doctor also told me to go out and buy a herbal medication called Butterbur. He said it doesn't have to be the most expensive brand out there and it is a very clean herb. He said no one he knows has ever experienced any bad side effects from it. The doctor said the cheapest brand of Butterbur is fine. I couldn't find a bottle of just Butterbur. I found a bottle of Butterbur with Feverfew brand name NOW. The doctor told me you have to take the Butterbur for 3 months for the herb to take effect. As I just started the Butterbur it is too soon to say if it is going to help but as your headaches sound just like mine I thought I would pass on this information. If you put Butterbur into Google you will see how and why it works to prevent headaches. Let's hope!!

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40565
   Posted 4/4/2010 3:57 PM (GMT -7)   
Hi Hopi1,

I wanted to chime in and welcome you to the fibromyalgia forum. I am so happy that you have joined us. I have never heard of butterfur, but it sounds good. I use herbals when I can afford them, and supplements. But I still use my share of medications to go with. I hope that you had a wonderful Easter. If you feel comfortable with it, start a thread of your own to introduce yourself. If you don't want to that is okay too. Just know that you are welcome to.

Best wishes to you

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 4/4/2010 7:24 PM (GMT -7)   
Gentle stretching, yoga horizon stretch, put a tennis ball on the floor or against the wall and rub out some of the knots, ice and/or heat. Heat always makes my migraines worse, so it depends on the type of headache. Caffeine helps, too. Maxalt is a good medicine for migraines and muscle relaxers help too. When it gets too bad, I use percocet.
Sue

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 4/4/2010 9:41 PM (GMT -7)   
Hi and I thought I'd add a bit to this conversation. I had no idea what Butterbur was either so did some reading. It's known by many names and I did recognize a couple of the others but had no idea it was used as an herb and what the uses were. Here's some information from WebMD.

"BUTTERBUR
Other Names:

Blatterdock, Bog Rhubarb, Bogshorns, Butter Bur, Butterburr, Butter-Dock, Butterfly Dock, Capdockin, Exwort, Flapperdock, Japanese Butterbur, Japonica petasites, Langwort, Pestwurz, Petasites, Petasites flower, Petasites hybridus, Petasites offi..."

Butterbur is an herb. People use the leaf, root, and bulb to make medicine. Some butterbur preparations contain chemicals called pyrrolizidine alkaloids (PAs), which can damage the liver and cause other serious harm. Only butterbur products that are certified and labeled “PA-free” should be used.

Butterbur is used for pain, upset stomach, stomach ulcers, migraine and other headaches, ongoing cough, chills, anxiety, plague, fever, trouble sleeping (insomnia), whooping cough, asthma, hay fever (allergic rhinitis), and for irritable bladder and urinary tract spasms. Butterbur is also used to stimulate the appetite. Some people apply butterbur to the skin to improve wound healing.

PRECAUTIONS:

Some butterbur products may contain pyrrolizidine alkaloids (PAs), and that’s the major safety concern. PAs can damage the liver, lungs, and blood circulation, and possibly cause cancer. Butterbur products that contain pyrrolizidine alkaloids (PAs) are UNSAFE when taken by mouth or applied to broken skin. Broken skin allows chemicals to be absorbed into the body. Do not use butterbur products unless they are certified and labeled as free of PAs.

PA-free butterbur products are POSSIBLY SAFE for adults and children when taken by mouth appropriately. PA-free root extracts seem to be safe when used for up to 16 weeks in adults. There is some evidence that a specific PA-free butterbur extract (Petadolex, Weber&Weber, GmbH & Co, Germany) can be safely used in children who are 6-17 years old for up to 4 months.

Not enough is known about the safety of using PA-free butterbur products on unbroken skin. Don’t use it.

PA-free butterbur is generally well tolerated. It can cause belching, headache, itchy eyes, diarrhea, asthma, upset stomach, fatigue, and drowsiness. However, it seems to cause less drowsiness and fatigue than cetirizine (Zyrtec). Butterbur products might cause allergic reactions in people who are allergic to ragweed, marigolds, daisies, and other related herbs.
Special Precautions & Warnings:
Pregnancy and breast-feeding: Taking butterbur by mouth is LIKELY UNSAFE. Butterbur preparations containing pyrrolizidine alkaloids (PAs) might cause birth defects and liver damage. Not enough is known about the safety of using butterbur products that do not contain PAs during pregnancy or breast-feeding. Don’t use it.

Allergy to ragweed and related plants: Butterbur may cause an allergic reaction in people who are sensitive to the Asteraceae/Compositae family. Members of this family include ragweed, chrysanthemums, marigolds, daisies, and many others. If you have allergies, be sure to check with your healthcare provider before taking butterbur.

Liver disease: There is some concern that butterbur might make liver disease worse. Don’t take it."


Always consult your doctor when you decide to use OTC or other medications as they might interact with something that has been prescribed. I'm not picking on this product but this is a general safety factor for all of us.

Chutz
Gravitation is not responsible for people falling in love.
Albert Einstein

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Hopi1
New Member


Date Joined Apr 2010
Total Posts : 4
   Posted 4/4/2010 10:45 PM (GMT -7)   
Thank you for welcoming me Karen.

Regarding the Butterbur I never heard of it before either. That's why I thought it was important to post the information given to me by my doctor. Here is another link:

http://www.butterburresearch.org/

Butterbur Herb Background

For many centuries the Butterbur plant (Petasites hybridus) was traditionally used as a herbal remedy for conditions like pain, fever and spasms. Already the Greek physician Dioscurides used butterbur leaves to treat skin ulcers. Today, butterbur is mainly used for migraine prevention, but also for treating headaches and asthma. Pharmacologically active substances of butterbur are sesquiterpenes like petasin and isopetasin. The butterbur plant also contains liver-toxic pyrrolizidine alkaloids, which are removed by a special patented treatment and only marketed under the name Petadolex®.

This special butterbur extract has anti-spasmodic and anti-inflammatory properties as demonstrated in pharmacological and experimental systems: it regulates calcium channels and inhibits the synthesis of the enzymes lipoxygenase and cyclooxygenase.

Efficacy and tolerability of the special butterbur root extract was demonstrated in two randomized, double-blind and placebo-controlled clinical trials with more than 300 adult patients and in one open trial in 108 children and adolescents.
Butterbur Plant - Links

* Healthy.net
* WebMD.com: Butterbur for migraine headaches
* BNET.com
* DrWeil.com
* PCC Natural Markets Health Notes
* WebMD: Herbal extract may help prevent migraines

shannahsmom
Regular Member


Date Joined Jan 2010
Total Posts : 87
   Posted 4/5/2010 7:44 AM (GMT -7)   
Thank you everyone for all your advice. I should have mentioned that I have tried a bed buddy and it doesn't help, I've even tried ice packs and a combination of alternating the two. Stretching and even massage therapy doesn't seem to get those muscles to let go and relax at this point it seems like I have to just let it run it's course. I see my doctor in a few weeks and I'm going to ask him about the Zomig but I'm not sure if I want to try butterbur after reading the info. Thanks again :)
Shannahsmom
Fibromyalgia DX Dec 2009, bilateral epicondylitis, IBS.... stay tuned more to come I'm sure.
 
No one is in charge of your happiness but you.
Don't take yourself so seriously, no one else does.
What other people think of you is none of your business.
Life isn't fair, but it's still good.


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40565
   Posted 4/5/2010 7:55 AM (GMT -7)   
Shannahsmom,

I like your signature. It is interesting to ponder. Have you tried meditation? It is a good way to relax your muscles and focus on your breathing. I use it to go to sleep at night. But I find the shoulders are the hardest muscles to relax. I hope that you find what works for you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Hopi1
New Member


Date Joined Apr 2010
Total Posts : 4
   Posted 4/5/2010 11:50 AM (GMT -7)   
Shannahsmom:

Good luck with the Zomig, it does work for me. I hope it works for you too.

I will take the Butterbur for the 3 months and I will pop back in to let you know if it works. I am not worried about the herb. I know it has been cleaned of the bad stuff. But it is going to be a slow go and I am very glad I have the Zomig to take for that 3 months. I need to find a preventative medicine for migraines as life is passing me by. I think I've had just about every type of headache known to mankind! But I'm still smiling!

All the best,
Hopi1

Fybromyalgia, Arnold Chiari Type 1 Malformation decompression surgery 1993. Chronic Fatigue Syndrome, Hypothyroid, Scoliosis, Kyphosis, Compression Fractures of T4, T5, T6 and the beat goes on!

Orlo
Regular Member


Date Joined Dec 2008
Total Posts : 139
   Posted 4/6/2010 9:16 PM (GMT -7)   
Sahannahs mom,
I get the exact same headache almost every day. I understand your pain. The only thing that will even remotely help me in the situation is the Tramadol I''m prescribed. It doesn't help with any other pain, but I really helps me. I think it may be a migrane medication, but I know it's used as an analgesic as well. I hope you find something that gives you relief!
Fibromyalgia: 2008

Effexor 150 mg, Flexril 5 mg, Gabapentin 600 mg


louise47
Regular Member


Date Joined Feb 2010
Total Posts : 138
   Posted 4/7/2010 3:26 PM (GMT -7)   
I used to have the same type of headaches they were aweful!!!! I went to the neurolagist and he said they were a form of migrains and since my BP was high he put me on verapamil it works for both. That was in December I have not had one since. THANK GOD!!!!

Hopi1
New Member


Date Joined Apr 2010
Total Posts : 4
   Posted 4/9/2010 1:01 PM (GMT -7)   
Hope 1 here:

Many of you have brought up the upper back and muscle pain. I have arthritis in my spine and I get the terrible pain in the muscles of my upper back and neck too. I take Celebrex when I get the burning pain in my upper spine & muscles. I don't take Celebrex often because I've read all of the warnings. But I have to tell you when I take the Celebrex for a couple of days it not only gets rid of the burning pain in my spine and muscles it gets rid of the terrible headaches too. It is the only time I am headache free. It makes me wonder if we are getting the headaches from the inflammation in our muscles & spine.

I have spoken to people where Celebrex does not help them at all. I know everyone is different. But it does help me.

I have to thank you all for listing the drugs you are taking. If the Zomig I am taking wears off or does not work on a long term basis I have made up a list of the drugs you have listed.

Let's hope future medicine can help us all out more than this. I mean like real soon! This is an awful ailment to have to deal with. It really affects your life.



Fybromyalgia, Arnold Chiari Type 1 Malformation with decompression surgery Oct. 1993, Laminectomy of C1 Vertebra, Compression Fractures of T4, T5, T6. Dislocated Jaw left and right side. Hypothyroid, Arthritis & The Beat Goes. I lose track of everything.

blessedwith3boys
Regular Member


Date Joined Jun 2010
Total Posts : 36
   Posted 7/11/2010 10:44 AM (GMT -7)   
I don't have a diagnosis or a bed buddy but I use a heating pad.
I've been diagnosed with anxiety and panic attacks.
My symptoms are......backache, severe headaches that Tylenol and Iboprofen won't touch, problems concentrating and problems remembering stuff, constipation, sleep disturbances, I tire easily, sometimes weakness,sometimes aches and pains,more heart palpitations lately too,  Im sure there is more but it's hard to think. Zyrtec for allergies and sometimes a nasal decongestant.
 
I take Paxil and sometimes Ativan for my anxiety. Over the counter I take a multivitamin, stool softener, a vitamin B supplement when I remember, AZO yeast when I remember. I think I've given up on Tylenol and Ibuprofen but have turned to Aleve, pain patches, pain creams, and my best friend my heating pad.


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 7/11/2010 1:35 PM (GMT -7)   
Accupressure. Accupressure is administered by accupuncture, but in a different and less painful approach. The accupuncturist takes these bead things with tape and tapes them in your ears, where thousands and thousands of nerves are located. Anyhow, he/she puts them in your ears (so they can put it on the nerve that needs the most relief) and when a person is in pain they just reach up and pinch their ear and the bead thing. It actually works too. I've done it. And I love it. I don't like accupuncture, but I love the accupressure.
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


Sheila1366
Regular Member


Date Joined Aug 2005
Total Posts : 384
   Posted 7/12/2010 1:25 AM (GMT -7)   
My daughter has migraines several times a week and we give her 3 ibuprofren and 1 benadryl, it helps.
Fibromyalgia,arthritis,raynauds syndrome,gastroparesis,IBS,depression,severe costochondritis
 
God and Family is my life.


livenlaugh
Regular Member


Date Joined Dec 2009
Total Posts : 387
   Posted 7/12/2010 5:19 AM (GMT -7)   
I suffer from years of migraines. I use a bed buddy, hot showers sprayed on the neck and shoulders and Liquid Advil. That helps me out. If not, the dr prescribed muscle relaxants that help me out tremendously. I don't like to take meds so it takes alot for me to take meds. That is my downfall because it gets me into trouble. Hope that helps.
Lisa

GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 7/12/2010 7:33 AM (GMT -7)   
The very first post describes my headaches perfectly, even hubby agreed and he doesn't have too much sympathy.  He thinks I can work through them as he has NEVER had a headache.  If he did he would think it was a brain tumor smhair   he is a hypochondriac.
 
My doc sent me to a neurologist for "migraines"  The neuro said they were cervical headaches and sent me to a pain clinic.  The pain doc did not believe in fibro and came right out and said he could not make me pain free and I am too active for it to be a problem.  I say B.S.......I go back to my regular doc on the 19th to see if he will give me anything for the headaches.
 
I'm still looking so I can't add anything constructive, just wanted to give some of my story.
 
Denise
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR/cleared),  disc problems in neck, depression, anxiety & stress, cervical headaches, porphyria-PCT, IBS
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 

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