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KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 4/9/2010 6:09 AM (GMT -7)   
I pray that everyone has a blessed day.....tongue
 
A friend of my spoke with her mother her does have fibro, among other things, she said it sounds like fibro and I really needed to find a doctor who would listen to me.   She also told me her mother dealt with it for 3 years until finally she found a doctor that could help.
She said the longer I let it go the worse it can get.
 
I think the doctor has a hard time believing that I can have so many problems through my body......I'm also questioning the spasms in my higher back area and neck tightness isn't due to the "slight bludging disk"....if I was a doctor I would have answers rofl.
 
 
I do have more questions:
 
1.  One day at the bank in drive thru I had my arm resting on the window sticking out, pain shot through my forearm.....lift my arm up it was gone put it down again on window same pain.   Now I been to the bank since then, haven't had that happen again.  This is why I feel crazy when I talk to the doctors....
 
 
2. Pain in the stomache anyone?
 
 
3. Yesterday had a pretty good day, I was tired through and trying to get a headache, which I have today....except when I went to bed last night, my hip had searing pain.  Also my hands were like ice but my face very warm.....
 
4. The other night once again laid on the couch my legs just hurt, then I would get spasms in the left one, then in the back, then the hip would hurt. 
 
5. At times playing ball with the kids, catching the ball will send pain through my fingers and hands.......
 
 
Do you see what I mean,  so many things going on......I have been to several doctors heard several reasons why this could be happening.   I have heard depression (love that one, hee hee), low elctrolites (sP).  Forgot the aging thing, shocked
 
One more question, can Fibro run in families....our family history is very little but I have a sister who has pains in her legs they can't find a reason for.  My mother has also had many health issues too.  Nothing diagnosed.
 
Thank you all and God bless......

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 4/9/2010 6:36 AM (GMT -7)   
Hi Kellie...
 
I think that's what makes fibro so unique and hard to dx.  So many different kinds of pain that come and go, without warning or for any particular reason.  I have had the 'shooting pain in the arm' thing, just from resting it on the arm of a chair.  I also have the lovely searing hip/leg pain at night.    I don't understand it because I rarely have that kind of pain when I'm up and walking.  Some people wake up with the crippling pain...mine hits me at night.  I feel like my entire body is on fire.  I DO think it runs in families.  My mother was never dx'd with fibro but I cannot remember a day in her life when she wasn't asking someone to rub icy hot or some other anelgesic on her back and shoulders and she complained about leg and arm pain for years.  Her doctor finally put her on paxil telling her it was all depression...uh, no.  Plus the paxil did nothing for the pain. 
 
Stomach pain, yes...headaches, oh yes.  You are not alone!
 
Donna
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil


KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 4/9/2010 6:44 AM (GMT -7)   
Thanks for the reply.......I remember my mother locking herself in her room because of bad headaches.....she's stubborn, I do remember in the 90's they thought she had lupus. It came back as negative.


That's me I do have slight pain off and on through the day, at night it's worse. At times I feel normal and I'm praising (forgot how to spell that, good grief)  God for no pain.....lol. Then I question myself going maybe it's all in my head.

I was actually thinking of taking the Lexapro yesterday thinking maybe that will help....then I realized I homeschool my kids and needed to be focused....rofl.

Have a blessed day........((hugs))

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 4/9/2010 7:16 AM (GMT -7)   
Kellie...this is just my opinion and others may disagree with me, but unless you are extremely depressed, I'd put the Lexapro away.  I took it for two years for fibro, and after deciding it did nothing but make me a mindless drone, weaned off.  Plus, if you are on any kind of NSAID for pain, it will make you bleed easily.  Even though I withdrew slowly I am still going through withdrawal symptoms...brain zaps and crying jags.  It is a potent SSRI, has a short half life and from what I read on their own site, it can take a year or more to get out of your system once you go off.  Never ever again...not me.  Fibro with all of it's symptoms is a walk in the park compared to this!
 
I know others have had success with SSRI's and SNRI's but they aren't the answer for everyone so...just think about it!
 
Donna
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 4/9/2010 8:00 AM (GMT -7)   
Hi Kellie, fibro is crazy in that it can present itself in different forms of aches and pains. The
worst for me is the allover bone crushing achiness that makes my limbs feel like lead. That's
the way I feel when I'm flaring. Needle stick pain and tingling can come out of nowhere and last
from seconds to hours. Sometimes my skin will feel like I'm sunburned and will feel bruised
allover. On bad days, Flexeril (cyclobenzaprine) a muscle relaxer really helps.

Exercise helps me, I only feel worse if I'm sitting too long. I don't know what I would do without
my heating pads or bed buddie and if I didn't have a tub to soak in. Heat helps bigtime!!!!

Fatigue, fog and headaches are another part of fibro that you learn to live with...and you do
learn. When you live with pain, it becomes part of you and you almost get used to it. I have
found how appreciative I am of the good days, something I used to take for granted.

I still have fun, and I try not to let anything interfere with that. I have alot of living to do in
this old bod!!!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 4/9/2010 8:26 AM (GMT -7)   
Kellie, I agree, the randomness of the pains and weird body sensations can drive you crazy if you let them. Now that I've had an MRI of my back, I try to just not think about them, let them come and go and live a moderate life. Don't know what else to do!
Debbie
 
Diagnosed: Fibromyalgia, Meniere's, mild liver damage (why?), keloid scar tissue (from burn) on back, arthritis, lumbar disc damage, IBS, migraine
 
Meds: Nortriptyline, Clonazepam, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
 
Chiropractic adjustments

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