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Date Joined Feb 2008
Total Posts : 2
Posted 4/12/2010 8:34 PM (GMT -6)
Well, after several years of tests, I was finally officially diagnosed by the rheumatologist with fibromyalgia. It's been what we've suspected (my main doc and I) for awhile now, and we've been treating it, but it was sort of scary to me to finally get "the diagnosis". I'm sort of having my own pity party right now. I know I need to just move forward, and it could be much worse and blah, blah, blah...but for awhile, I think it's going to be pity party mode. It's difficult to always have to consider every decision when you never had to...and it's difficult to make people understand that everything takes me a lot longer...and...well, you all know.
Anyway, that's a sort of depressing introduction to me. I'm new here...a high school librarian...47 years old...way more used to doing things at a much higher rate of speed. I have a wonderful primary doctor, but I have to work through this sadness. The pain is horrible right now...and that doesn't help.
I am looking forward to reading your posts and advice throughout the forum. It's nice to be here where people will understand and not just look at you with doe eyes when you try to explain why you walk like Quasimodo.
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Date Joined Nov 2008
Total Posts : 5927
Posted 4/12/2010 9:25 PM (GMT -6)
At least you haven't lost your sense of humor! That's a biggie. It is nice to be here....I'm fairly new myself, (my "join date" notwithstanding,) and it has done me a world of good. I'm 55 and have had this odd syndrome for at least 20 years, maybe my whole life. Pity parties go with the territory, I think. Welcome!
Diagnosed: Fibromyalgia, Meniere's, mild liver damage (why?), keloid scar tissue (from burn) on back, arthritis, lumbar disc damage, IBS, migraine
Meds: Nortriptyline, Clonazepam, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
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Date Joined Jan 2010
Total Posts : 52
Posted 4/12/2010 9:45 PM (GMT -6)
Lynn, Hello and welcome to the Fibro family. You have come to the right place for compassion and understanding. Their are alot of caring people that are willing to help you get through this. You are no longer alone in dealing with this illness. As far as the pity party, we have all gone through it ourselves when first being diagnosed with fibro, so go ahead and have a pity party as long as you need to. Depression and anxiety usually go along with fibro because we have to change so much of our lives to deal with the pain. I take cymbalta to help with depression and also go to theropy and it does help.
Are you on any medications? How old are you?
When it comes to Fibro the right meds are very important, and everyone has to find the right combination of meds that help with pain (it is alot of trial and error). Work with you doctor and let him know if the meds are working or if they aren't until you find what works for you. Heat will be your best friend, hot baths, hot tubs, heating pads, warm blankets, bed buddy, help alot. Keep reading and you will learn alot of helpfull information that will help you learn to manage your pain better. When i first found this sight i was in the same position you are in now, after asking questions and reading I have come a long way from where i was. I still have pain, but i have a whole new additude about
this illness and I know you can to in time. I hope you get to feeling better and remember to ask questions, vent, & read, read, read. So glad you found us, we are here for you.
Diagnosed with -FM, Degenerative disc disease, spinal stenosis, arthritis, Lupus., undifferentiated connective tissue disease.
Medications- Plaquanil, 800 Ibuprofen, Lortab, Cymbalta
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