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Date Joined Oct 2009
Total Posts : 21
   Posted 4/15/2010 9:04 AM (GMT -6)   
My daughter is 17 and has had pain through out her body since she can remember. We started going to doctors when she was 12. Some say it could be fibro others say no way. It continues to get worse with every day. I am so scared for her the pain is so bad. She hurst everywhere. The pain in her legs can get so bad she can not stop crying then it will move to somewhere else on her body. The pain can last a long time or just a few short minutes. She is sensitive to the touch so bad that even a drop of water can make her cry. She has so many pains I can not list them all. Over the past year the pains have increased to where life is hard. She has new systems lately she is having a hard time breathing. She has rash looking areas  on her body when she is in warm water. The rash will fade after a while. Warm and cold water is painful.
She has no reflexes in her arm and little in her legs. the doctor is running another nerve conduction test on Monday. I can not take watching her hurt so bad. It is killing not being able to do anything. Does this sound like Firbo or something else....

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Date Joined Nov 2008
Total Posts : 5927
   Posted 4/15/2010 10:19 AM (GMT -6)   
Wow, this sounds awful. I'm so sorry for what you're both going through. Fibro can be very painful, but then so can many other things. Wish I could help you but I'm no expert....probably others here are more versed in different conditions. I sure hope someone can find a way to help her soon.
  Diagnosed: Fibromyalgia, Meniere's, elevated liver enzymes (why?), keloid scar tissue (from burn) on back, arthritis, scoliosis, lumbar disc damage, IBS, migraine
  Meds: Nortriptyline, Clonazepam, Darvocet as needed
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Date Joined Apr 2005
Total Posts : 17060
   Posted 4/15/2010 10:34 AM (GMT -6)   
Have you had her thoroughly checked out for Lyme disease?  That has many of the same symptoms as fibro.  You would want lab work sent to Igenex lab in Palo Alto, California.  They are supposed to be the best at diagnosing Lyme. 
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 40405
   Posted 4/15/2010 10:40 AM (GMT -6)   
I am so sorry for all of what your daughter is going through. Have you checked out the fibro101 thread? It has a place with a list of symptoms that you might want to look over.

The pain from fibro can be hurendous. It can make you hurt so bad. I hope that your daughter gets a diagnosis soon and finds out what is going on and how to treat it. Keep posting and let us know what is up.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Oct 2009
Total Posts : 21
   Posted 4/15/2010 10:43 AM (GMT -6)   
We have an appointment on Monday. They have tested for so many things. I will ask about the lime disease.
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