A journal entry I just found

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lostnomad
Regular Member


Date Joined Mar 2010
Total Posts : 60
   Posted 4/20/2010 5:39 AM (GMT -7)   
Before I was diagnosed with anything I kept a journal about my pain and fatigue.  Who would have thought I'd end up with this diagnosis?  But after reading the entries......hmmmmm!
 
3/9/09
Somewhere in the middle of the night I woke up in incredible pain.  My body and muscles were rigid - like I had 100 EMG machines hooked to me, going at once.  Everything hurt, even my brain.  I managed to fall back to sleep sometime later only to wake feeling like I'd run a marathon.  I hurt everywhere and have zero energy.  I'm praying for a very quiet day.  So far though, I don't think it's going to be that way.  Ron (my boss at the time) had a meeting here and it appears Tom (one of the GM's) is taking the day off.  I'm having a bit of difficulty walking.  My gait is like I'm stuck in staccatto and I'm off balance.  I've had to catch myself more than a dozen times so far. 
 
It's now almost noon and I've just had the opportunity to catch a bite - frosted flakes and milk.  I'm immediately sick to my stomach.  Don't know if it's the milk or the hurried way I had to eat.  Whatever the cause I think I'll head to the restroom.
 
4/1/09
Another morning I've awakened to a tremendous amount of pain.  Two weeks now and the pain is increasing in intensity and body parts.  I can barely move my arms from the pain.  I took 4 Advil last night but it didn't even take the edge off.  My stomach is raw.  No matter what I eat or drink it upsets my stomach.  I'm either plagued with nausea or diarrhea - no inbetween.  Don't know if this may be a side effect from the Singulair but I'm not finding anything to explain the pain.  Funny how that one little word can wreak havoc and have so much control over your life.  OK!  Shoes just came off.  My feet hurt - alot!  I've also had a return of my cough.  Not hacking, just annoying.
 
I just had lunch.  My temp is up.  It's been spiking the last couple of days.  Don't know what's up with that.  My feet are even more painful despite the fact I've been elevating them when possible.  I'm trying to find a pattern or maybe a cause for all this.  So far though I'm stumped.  Nothing has changed.  Also noticed a slight sore throat - maybe from post nasal drip.  I feel like if I could get a really good stretch going - really good - it may alleviate some of the pain.  To accomplish this though I would need a medieval "rack".  That's how much stretching it feels like I need.  I just can't discern where the pain is.  Muscles, bone, fat?  I don't know.  Perhaps a hot bath?  Again, it's pain that isn't being alleviated by anything.
 
==It sucks that this journal is nothing but a document to how horrible I'm feeling==
 
It's almost bedtime.  I'm fighting sleep.  Still in pain and no way to help it.  At this point I think the shower is calling me.  Then maybe I'll head to bed.  Don't expect much sleep with this amount of pain.
 
It sucks that no one understands what I'm feeling.
 
 
I'm sure each of you ladies could have written any of these entries.  It reads like a page from Fibro 101.

yo-yo
Regular Member


Date Joined Aug 2009
Total Posts : 159
   Posted 4/20/2010 9:44 AM (GMT -7)   
Oh, yes, I DEFINITLY could have written that!  Interesting you have the part in there about the cough---when I flare, as it progresses, I get a cough.  Also the slight sore throat that comes and goes.  I really related to the part about trying to find a pattern or a cause.  Still after 35 years I find myself doing the same thing in the throes of a big flare!
Yo-yo 

harleybluz
Regular Member


Date Joined Sep 2009
Total Posts : 122
   Posted 4/20/2010 12:41 PM (GMT -7)   
It sucks that no one understands what I'm feeling.

Man, I can relate to that more than anything else. It's a bit lonely when you know something is wrong but you don't look sick. No one believes you. Is Nauseas part of this too?

This is no Social Crisis... Just another Tricky Day (The Who)

 


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 4/20/2010 8:21 PM (GMT -7)   
I get the sore throat thing, too. And crotch pain. And, if I get the tiniest crack in the top of my fingertip, it can wake me in the middle of the night. Sensitive Everything Syndrome.
Debbie
   
    Diagnosed: Fibromyalgia, Meniere's, elevated liver enzymes -?- keloid scar tissue from back burn, arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraine headaches, skin cancer twice on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
 
Be yourself.  Everyone else is already taken.


lostnomad
Regular Member


Date Joined Mar 2010
Total Posts : 60
   Posted 4/21/2010 6:14 AM (GMT -7)   
I notice when I'm in a heavy flare I get nausea - sometimes very severe. At first I didn't see a pattern but once I really started paying attention, OH YEAH, it's related! And crotch pain? I get that too! However, I NEVER linked it to FM because it didn't have a pattern to it. It just came and went no matter what. But I guess it is FM related. (Guess not everything falls into patterns).

Last week I cut the end of my finger. While it was a semi-severe cut, the pain was off the charts. It's almost healed but the pain still persists. FM related?? Looks like sensitivity overload. UGH! FM SUCKS!

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 4/21/2010 9:43 PM (GMT -7)   
Yes, it does!! Our nervous systems just seem to be out of whack. There oughta be a law or something...
Debbie
   
    Diagnosed: Fibromyalgia, Meniere's, elevated liver enzymes -?- keloid scar tissue from back burn, arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraine headaches, skin cancer twice on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
 
Be yourself.  Everyone else is already taken.

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