Which came first???

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Forum Moderator

Date Joined Nov 2008
Total Posts : 5927
   Posted 4/26/2010 11:13 PM (GMT -6)   
Hello all,

Something I posted on another thread made me want to look into this deeper - so of course, I want to know if any of you had a similar experience, since you have become one of my daily "saving graces!" :-)

How to make this long story short? I'll try - when I was 13, I leaned up against a stove I'd just lit skull and started reading. The result was me on fire, 3rd-degree burn, skin grafting surgery - it was a big deal which changed my life. Ok - I've often thought this may have been the the trigger for my fibro.

BUT - did I do this BECAUSE I was already having fibrofog??

So my questions are 1) can you remember when your symptoms started?

2) can you pinpoint the stressor that did it?

3) does anyone else remember being especially "foggy," even as a child? Because I sure as heck do, and not just from that one incident. I'd really appreciate any feedback.

Post Edited By Moderator (Chutz) : 4/26/2010 11:38:04 PM (GMT-6)

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 4/27/2010 12:35 AM (GMT -6)   
Hi Achy,

I can remember some of the same back pains when I was as young as 7. I had to practice piano 30 minutes each day and I would get this burning sensation next to my shoulder blades. Mom said I was faking to get out of practice but it was real pain and intense too. I loved the piano too.

But I also remember when the fibro symptoms really started. The first inklings were after I'd gotten through a nasty divorce and still lived in fear of that creep. My leg muscles would hurt when they shouldn't have. I attributed it to being out of shape since I had returned to college. Then as I got into my senior year college work I began to notice my mind just wasn't working like it used to. There was always tons to read but if it was a topic that wasn't too familiar to me or I wasn't interested in I found it exceptionally difficult to comprehend what the words meant. I would start a paragraph and by the time I got to the end I had no idea what the beginning said. It got so bad at times I couldn't make it through a sentence. By the end of the sentence I had forgotten the beginning.

So, how did I ever graduate?...lol I just had to work harder than others to remember things. It was a horrid struggle I kept to myself. This was in the early 90's when my youngest kids were in their teens. It wasn't until a few months ago that I even revealed this to my hubby and doctor. From there on it was down hill fairly rapidly with increasing pain. But in 2000 I lost my oldest son very unexpectedly and that ramped up the pain over the next 2 years. I was stubborn and refused help from our wonderful family doctor. But when the pain got so bad I couldn't function I gave in and admitted I couldn't fight it any more. I'm stubborn like that but am sure glad I was able to have such a great medical team on my side.

So that's about it...

ps.... I added a title so more people would offer their thoughts.
Gravitation is not responsible for people falling in love.
Albert Einstein

(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

Post Edited (Chutz) : 4/26/2010 11:38:37 PM (GMT-6)

Forum Moderator

Date Joined Apr 2005
Total Posts : 17061
   Posted 4/27/2010 5:56 AM (GMT -6)   
I was watching TV when fibro hit.  I had had plenty of stressors in previous years but things were going smoothly at this time.  My muscles and joints started hurting...all of them....within a 45 minute period.  So, I'm not sure what happened.
I dealt with mild fog but when my husband died suddenly the fibro fog hit, big time.  I was crying frequently because I honestly thought I was getting Alzheimer's.  There were times that I had absolutely no recollection of doing things.  Anyway, I saw my doctor and he told me it was fibro fog.  It was all the stress that I was going through.  I was much relieved but the fog has stayed with me.  Oh, I was never foggy as a child.  I had a wonderful mind and could remember everything.  Not any more! 
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Mar 2010
Total Posts : 60
   Posted 4/27/2010 6:48 AM (GMT -6)   
WOW! I don't think I've ever thought about when my symptoms first started - at least not going waaaaaay back like that. However, looking back, I've always been a "sickly" child (at least that's what my mother called me). But, thinking about this, I was probably 10 or 11 when I had an unexplained "episode". I remember being in tremendous pain, achey and flu like. I lost my appetite and was bedridden for 5 weeks. Despite numerous tests the doc never found anything wrong with me and my mother chalked it up to "hypochondria". (yeah, I had a real 'nice' mom)! Anywho, throughout my teens and 20's I would have these unexplained episodes. I also had a bout of Parvovirus in my mid 20's. Then the episodes seemed to disappear, completely! Until I was about 37 or 38. Then I became bedridden again. I was in excrutiating pain, fatigued beyond belief, could barely walk and experienced great breathing difficulties. The docs were thinking on the lines of MS or Parkinsons. Both were ruled out. And here I am, 46 years old, with similar symptoms from childhood, and a diagnosis of FM. I didn't start experiencing "fog" until a few years ago. Or at least I think it was a few years ago. LOL!

Regular Member

Date Joined Mar 2010
Total Posts : 78
   Posted 4/27/2010 7:20 AM (GMT -6)   
My mom is always telling me that she can remember me going halfway up the stairs and then asking her what I was going up the stairs for at 4 years old.  I don't remember that but its a miracle if I can really remember key moments in my childhood like that.  I know my symptoms were really noticeable at about 15 when I was dancing with the music loud and the next day I could barely get out of bed.  I shifled my feet hunched over to the bathroom and that was it.  My mom had to bring my meals to me because I didn't dare do stairs.  I think this, fibro, was always there because I was a pretty active child so I fell on my butt a lot hurting my tailbone, lowerback, hands and wrists, everything.  I surprisingly never broke a bone, but what my sensitive points are is my lowerback on down and my hands, feet and wrists are on a slightly different level now.  Things didn't start getting bad until I was 18 and found out that I couldn't go to college for motorcycle mechanics and fabrication because my hands were getting too bad.  I could have figured this all out sooner because my knees cracked when I sat down on the floor at 10 years old.
I can't answer if that was fibro fog that played a part in your 3rd degree burns, but I'm always trying to remember words halfway in a conversation all the time.  idea    Its blissful at work when someone asks me to repeat something from 2 weeks ago.  I hope this helps your research of the issue!
Other occupations: heartburn fighter, migraine massage therapist, fibromyalgia trainer, sinus plummer, allergic vet, weather girl and jar pickles loosener.

Translation: I have heartburn, IBS, fibromyalgia, migraine-like headaches, sinus issues, allergies to cigarette smoke, perfume and animals, sensitive to weather-body heat issues and possible RA in hands, wrists and feet.

Regular Member

Date Joined Sep 2009
Total Posts : 122
   Posted 4/27/2010 8:11 AM (GMT -6)   
My first symptoms was the Fibro Fog. I've been told my whole life to "pay attention" or snap out of it. I couldn't pay attention or I would have but times have changed since then. I'm 53 yrs old and back then they just sort of chalked everything up to being "growing pains" or not paying attention. The aches came right after I was taken off a TCA antidepressant and put on an SSRI. TCA's tend to help with pain but are more difficult to get started on. However, it REALLY helped with the pain.

This is no Social Crisis... Just another Tricky Day (The Who)


Regular Member

Date Joined Apr 2010
Total Posts : 382
   Posted 4/27/2010 9:27 AM (GMT -6)   
Hmm, maybe when I put the bananas in the freezer........
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