So confused!!!

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Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 4/28/2010 8:16 PM (GMT -7)   
So um . . . this is kind of embarassing . . . but gosh, I could use some insight!!
 
I have been feeling better and not having a flares all of the time.  Background:  I started using my cane when walking more than just around the house or office because I discovered that when I used it, I could walk further with  less pain.  Ok . . . The nature of the university campus where I work forces me to park a 10-minute walk away on most days.  (note - this would not be 10 mins for non fibro peeps).   So after several months I feel stronger and decide to park 10 and a half minutes away!  But on that day I have a flare and the extra half a minute back to  my car is killer.  But . . . I rest and feel better again.
 
So today I am thinking to myself "I will start parking upstairs next week and stop using my cane and stop using the disabled parking and will not renew my temp placard."   To practice, I walk 4 blocks to Farmer's Market to check on my students who are there and 4 blocks back and do not use my cane.  Of course, now I am in a lot of pain.  So I hobble the 10 minutes (actually longer cuz of the pain) to my car.  Now my hips are burning.
 
I have bursitis which I am trying to strengthen myself so it goes away, but strengthening is hard when stamina is low cuz of fibro.    Hips are burning and fibro is flaring and I feel awful!!!  To top it off, I forgot my meds this morning. 
 
So how do I figure this out . . . I thought "I am better so I don't need to use my cane."  (y'know, I don't feel sexy with my cane . . .).  But I think my thoughts were wrong.  It should be "I feel better because I use the cane."  Or it should be, "this is fibro, who knows how I will feel from one minute to the next.  Tomorrow I will stand on my head for an hour and be on top of the world and the next day I will scratch a mosquito bite and be thrown into a flare.
I am so confused!!!
Sue

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 4/28/2010 8:26 PM (GMT -7)   
Welcome to the wondrous world of fibro, Sue! I am also one who when I feel better I feel I can do what 'normal' people do. And like what happened to you, I feel miserable after one of these stupid experiments...lol I don't see this ending any time soon. We just need to remind ourselves to not go wild when we have a few minutes of feeling almost 'normal'. Confused? Well, you sure have a lot of company, girlfriend!

Warm and gentle hugs,
Chutz
Gravitation is not responsible for people falling in love.
Albert Einstein

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(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 4/28/2010 9:22 PM (GMT -7)   
Sue, I can so relate!! Sometimes what puts me over the edge is cat poop. No kidding, it's one of the last things I do at night - go downstairs, feed the 2 cats who live there, clean their litter box, and carry up the little paper bag of poop, which is in no way even remotely full. If it feels heavy AT ALL, I put some in another bag for next time and I'm ok.

Sometimes, though, it's hard to tell what's too heavy. I find out when I get to the top of the stairs. We're talking probably the difference between 12 ounces and 14 ounces, but that difference can mean a night of relative comfort or one of nagging pain.

As Chutz said, you have a lot of company!!
  Achey 
 
  Diagnosed: Fibromyalgia, Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis,   lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
 
Be yourself.  Everyone else is already taken.


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 4/28/2010 9:36 PM (GMT -7)   
eyes   Actually, I just went into the kitchen to see if I was in the ballpark and nope, I wasnt, I must have been dreaming....carrying more like 8 (!!!) ounces up the stairs can do it to me. 
 
Is anyone else this incredibly sensitive in this way?  (I mean, when it comes to weight specifically?)  Sometimes I really can't believe this myself!  It's not that I'm actually weak, it's just that it sets off the pain.  This is definitely my biggest problem with fibro.
  Achey 
 
  Diagnosed: Fibromyalgia, Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis,   lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
 
Be yourself.  Everyone else is already taken.


HappyCat
Regular Member


Date Joined Apr 2010
Total Posts : 71
   Posted 4/29/2010 7:54 AM (GMT -7)   
I love coffee. But it hurts to lift that coffee EVERY day, the only difference is how bad it hurts. Left hand, right hand, makes no difference. I find that very sad, but I'm getting used to it as time goes by.

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 4/29/2010 10:08 AM (GMT -7)   
Sue, there are moments and even a day or two that I am almost convinced that my body is
"normal". Last night I actually ran (if you can actually call it running) in the airport so I wouldn't
miss my connecting flight back home. I don't know how I did it, but today my body is telling
me it was a mistake. I hadn't moved that quick in years and thought it was a miracle. Later
today I'll walk to get the kinks out, but now I'm content to just to sit and rest with my bedbuddy.

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 4/29/2010 10:30 AM (GMT -7)   
I guess we can see this as a good thing with fibro. Some disorders you don't get good days so when we have good days it's like a surprise gift.
 
Fibro is very strange from one day to the next and things that made me hurt yesterday may not bother me at all today or vice versa. It makes planning anything very difficult and I use to be a planner and scheduler.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


yo-yo
Regular Member


Date Joined Aug 2009
Total Posts : 159
   Posted 4/29/2010 10:38 AM (GMT -7)   
Oh, yes Marlee.  A good day is "like a surprise GIFT"!  I'll try to remember that phrase.
Yo-yo

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 4/29/2010 11:46 AM (GMT -7)   
Sue, I think the key to your confusion was you forgot your medication.  If I forget to take my medication, I will be in downright misery.  Consequently, I don't forget it very often.  I can be doing really well, forget to take it at the regular time and two to three hours later I'm limping and aching. 
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 4/29/2010 9:39 PM (GMT -7)   
Robin, I have done that before.  Sherrine, I think you are right.  I probably should not have tried to practice walking when I had forgotten meds.  Marlee, you are right - good days are really nice.  I like the idea of thinking of them as a gift.  Achey I am the same way sometimes.  When it is a really bad day, I cannot stand to even wear a necklace.  The weight is too much for me.   And Chutz, thanks for helping me not feel alone! 
 
Thanks everyone for the encouragement and enlightenment.  Today I parked very close.  There are only two spots close to my office and today I got one.  Last week I added 10 minutes of cardio a week to my workout, so I did that tonight.  It is different from the walking from the parking garage to my car because that I do slowly!  ;)   Baby steps of building up do work better.
 
I am still thinking about the placard.  I use it less than before (except at work every day because of the stairs).  But there are still days when I need it at the store.  My doc keeps giving me temp ones.  It is either invalidating or a testament of the fact she expects me to get stronger and not need it anymore.  It will be a year and a half or two years since I first started getting them.  Haven't decided if I should ask my doc for a perm one or just keep getting temp ones and hope not to need them anymore.
 
Sue

TressiaN
Regular Member


Date Joined Jan 2010
Total Posts : 52
   Posted 4/29/2010 10:53 PM (GMT -7)   
statgeek, If it were me i would keep the placard. Just because you have it doesnt mean you have to use it, but if you have a really bad day you will be glad you have it.
 Diagnosed with -FM, Degenerative disc disease, spinal stenosis, arthritis, Lupus., undifferentiated connective tissue disease. 
Medications- Plaquanil, 800 Ibuprofen, Lortab, Cymbalta 

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