was your fibro quick or slow starting?

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okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 5/1/2010 9:19 PM (GMT -7)   
I'm asking because other then my scleraderma and COPD I haven't had this much discomfort. It's like it wasn't there 2 weeks ago and now it's raging. Also it seems like the pain is exhausting me. Even more so then normal. I was wondering about something that hapened last night. I was at the computer and not paying much attention. Well you know when kind of out of no where you feel something like a fly or something land on your arm? Well not giving it a second thought I brushed against my arm below my shoulder and above my elbow. It felt like I got stung by a wasp or something. It was a burning screaming pain like I had never felt. I quickly looked and there wasn't so much as a red mark. The intensity lastest only a min or less but the pain itself is still there if I touch it gently. Is that what fibro is like?  Also I had been to the doctor last week and they put me on cymbalta and soma. I have a home health nurse that comes in every week. The doctor said to have her come by and draw blood. Well she still hasn't doesn't it. My question is if I have been on this medicine for a week before she draws it will that have an effect on how my test come out?  I'm actually about to the point of I can't believe one more thing could be going on. How many people get lupus scleroderma and fibro all in one life time? Is that pretty standard?
Sorry for all the questions. I would love to come here and be supportive to all of you but I am completely ignorant about any of this stuff.
thank you again and  blessings
carol


furosemide,spironel,lisinopril,lortab,azithromyazin,detrol
nexium,temazepam,predisone,plaquenil,propanalol,effexor,citracal,pottasium, vitB,iron,xopenex,advair,spirivia
 
"Consider it a pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance." - James 1:2&3
 

Post Edited (okie) : 5/1/2010 10:23:03 PM (GMT-6)


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 5/1/2010 10:19 PM (GMT -7)   
Hi Carol, I've heard many fibro stories and some will say their symptoms were gradual,
others will say their symptoms came on quick, out of nowhere. My diagnosis was complicated
because I also have mixed connective tissue disease (lupus, scleroderma, RA). Many of the
symptoms of fibro are simular to some autoimmune diseases. Fibro is differant in that there
isn't bloodwork that can diagnosie the disorder.

Fibro pain is sometimes burning pain, needlestick pain, bone crushing pain or allover achiness. People with fibro have bilateral tenderpoints on the upper and lower body. A doctor
can do a tender point exam to help determine if it's fibro. Fibro isn't inflammatory like
lupus. When I was on predisone it helped my lupus pain and inflamation but didn't help my
fibro. I now take Methotrexate for my MCTD. It is not uncommon for people with autoimmune
diseases to also have fibro.

Make sure you read Fibro 101 on top of page one, there is alot of great info Sherrine has
compiled for us. Fibro is crazy for sure, symptoms can change throughout the day and for
many of us fatigue is also a big factor. Like lupus and scleroderma, it is something you do
learn to live with.

I do get that wasp sting feeling you described that is what I referred to as needlestick pain
and the burning pain. I also get that with the lupus but I end up with red marks. I'm not
on Cymbalta but taking Savella and it has helped some. Hope you get some relief!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/2/2010 2:30 AM (GMT -7)   
Thanks Robin, Unfortunately there really isn't a test for lupus either. More hit and miss then anything else. Actually the first thing I did when we spoke the other day was to go back and read fibro 101. Of course considering the fog I could put it on tape and listen to it in my sleep and still not remember it. I'm just so miserable right now. I took a pain pill at 1:30 and went to bed now I got woke up at 4:30 with the same pain. I'm hoping to make it to church but either I suffer with the pain or I walk into church with a glazed look in my eyes. either way is not a god option.
thanks again for the info.
hugs
carol
furosemide,spironel,lisinopril,lortab,azithromyazin,detrol
nexium,temazepam,predisone,plaquenil,propanalol,effexor,citracal,pottasium, vitB,iron,xopenex,advair,spirivia
 
"Consider it a pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance." - James 1:2&3
 


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 5/2/2010 5:16 AM (GMT -7)   
Carol, fibro can be excruciating when you are flaring. I'm in a flare myself right now and
sitting with my bedbuddy. Heat is a fibromites friend. Taking a hot shower or soaking in a
hot bath helps. I know your mobility is limited somewhat, but keeping your muscles moving
is important so they don't get more achy and stiff.

One thing when you do have fibro with lupus or scleroderma, it is easy to assume it is one
or the other that is flaring. I think I can tell what is going on but it is possible to have
everything flare at the same time. One thing can trigger another. You know your body better
than anybody and if you feel something not quite right, call your doc and ask.

You also started Cymbalta. I know when I started taking Savella, it took over a month
before it kicked in for me, but I was getting slow gradual doses.

Sending gentle hugs and prayers
 
Carol, just a thought... added muscle pain and achiness could be a result of a side effect
from the Cymbalta.

Robin


Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

Post Edited (crazykitty) : 5/2/2010 6:51:19 AM (GMT-6)


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/2/2010 7:12 AM (GMT -7)   
Thanks Robin, hey I just read all the things that are wrong with you and it sounds like me! I wouldn't wish it on anyone but I havn't seen to many people with the same problems before. Well I'm gonna try to get to church for an hour anyway. I just wish they had cushions on the pews. setting on wood and standing and claping is kind of rough.
have a great day and thanks again.

God bless
carol
 
 


furosemide,spironel,lisinopril,lortab,azithromyazin,detrol
nexium,temazepam,predisone,plaquenil,propanalol,citracal,pottasium, vitB12 ,iron,xopenex,advair,spirivia,soma,Vitamin D, cybalta
 
Dx lupus, scleroderma, pos. fibro, high blood pressure. COPD, need left lung transplant. cervical cancer survivor, osteoporsis.
 
"Consider it a pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance." - James 1:2&3
 

Post Edited (okie) : 5/2/2010 8:17:07 AM (GMT-6)


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 5/2/2010 9:28 AM (GMT -7)   
Carol, it sounds like you are having a really bad flare.  We get these and they can last a short time or even months.  Usually it's about a week.  I would get flares in the summer that lasted the whole summer but so far so good.  It's warm here now and I'm still doing alright but I did start taking more vitamin D3 and that might be helping.  Time will tell.
 
My fibro came on quickly.  I went from feeling fine to being in extreme pain in a 45 minute period while watching television.  I didn't have a clue what was happening except I was suspecting rheumatoid arthritis.  The pain was on both sides of my body and started in my toes.  It worked up my body until it hit my elbows.  You know how painful it is to hit the nerve (funny bone) in your elbow?  Well, both elbows did that, with the intense shooting pain (like electrical shocks) and they didn't stop for over two weeks!  I couldn't do a thing, couldn't eat, sleep, cried constantly, pictured myself with prosthetic arms, and I couldn't think straight.  It is really frightening when stuff like that happens and you don't have a clue what is going on.  You can conger up sooo many horrific things, can't you!
 
It seems like many of the fibromites have autoimmune problems.  Just about everything I have is autoimmune-related except fibro.  They say it isn't inflammatory but I wouldn't stake my life on that.  This is just my opinion.  I do hope they get to the bottom of this soon. 
 
I rarely get the burning pain but my skin is very sensitive.  I got a new nightgown last week and had to return it.  It had a very fine mesh behind the bodice and it felt like sandpaper on my skin.  I'll sometimes feel like there is a bug crawling on me but there is nothing.  I'll also get the feeling that a drop of water is running down my leg and there is none.  Fibro definitely is a weird illness!
 
I can't help you about the blood work.  I don't take any of that.  I'm trying to stay as "natural" as possible but I do pop ibuprofen and Tylenol like M&M's!  shakehead    But that's better than some of the other things.  I do have Vicodin in the medicine cabinet.  It's my safety blanket.  I've never taken one yet because I know that fibro pain waxes and wanes and that the pain will settle down in a while.  But, the Vicodin there for an emergency and it gives me peace of mind.
 
Just stick with us and don't hesitate to keep the questions coming.  We can help give you a handle on this illness.  I have lived a very full and enjoyable life in spite of fibro and  you can too.  You will find what helps you control the pain and you will learn to pace yourself.  Meantime, try to relax.  Stressing over this will make the pain worse!  Keep your great attitude and look forward to each new day because it could be a great one!  If it isn't, you know you can make it through one day.  That's how you face fibro successfully...one day at a time.
 
Hope you are having a better day today!
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 5/2/2010 10:33:58 AM (GMT-6)


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 5/2/2010 1:36 PM (GMT -7)   
Carol, my fibro came on gradually. It reached a peak after I'd had my 3rd baby at age 34. This pregancy was much more painful and exhausting than my 1st 2 were. A couple of weeks after I had my daughter by C-Section I ended up in the ER because I felt like my kidneys must be on fire. My back was always my worst area. And, of course, the schedule you have to keep with a new one doesn't help anything. That's when my pain spiraled out of control. A chiropractor was the first one to believe me and to help (a couple of years later,) and shortly after that I found my wonderful doc and started to put Humpty kind of together again.

I do sometimes get the random pains you talked about, and they are definitely no fun. Not too often, though. I hope you get some relief from your new meds.
  Achey 
 
  Diagnosed: Fibromyalgia, Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis,   lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
 
Be yourself.  Everyone else is already taken.


Stillstriving
New Member


Date Joined Apr 2010
Total Posts : 6
   Posted 5/2/2010 4:34 PM (GMT -7)   
Friends, I've suffered with fibromyalgia for 15 years. I've had every weird surgery and treamtment imaginable ,and nothing ever helped UNTIL A FEW WEEKS AGO. Has anyone tried the new medication made just for Fibromyalgia named "Savella?" It's been like a miracle drug to me. Lyrica was just a joke. But this stuff honestly has helped tremendously! It's brand-new on the market and no pharmacy had it....it had to be ordered and took a while to get it. Ask your doctors about it. If you're like me, anything is worth a try if it will help ease the pain.

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 5/2/2010 7:06 PM (GMT -7)   
Thanks! Will ask about it, for sure.
  Achey 
 
  Diagnosed: Fibromyalgia, Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis,   lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
 
Be yourself.  Everyone else is already taken.


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40603
   Posted 5/3/2010 6:38 AM (GMT -7)   
I am not sure about my fibromyalgia. It seemed to start with me picking up the flu. I was so sick that I lost two of my teeth. They just got loose all of a sudden and I had to have them filled. I kept working, but was feeling the fatigue and pain. It took a long time for a diagnosis. And a surgery on my shoulder. It just never got better. So it was kind of quickly, but subtle. I just know that I have never been the same since that flu. And I caught it at the doctor's office of all places.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/3/2010 9:56 PM (GMT -7)   
Hi everyone, I just wanted to thank you all for posting back to me and sharing your experiences. I have wanted to get back to each of you personelly but my brain is pretty foggie today. I've been crying a lot. I tried to get to a rheumy about my (possible) fibro but two weeks ago all the ones that are really knowledgable in my state quit taking medicare 2 weeks ago. I have military insurance but they are secondary and I have medicaid and they are 3rd. So if medicare doesn't pay part neither will the rest of them. I just want to thank you all and assure you that I am reading everything you took the time to write and I truly appreciate it.
God Bless
carol
furosemide,spironel,lisinopril,lortab,azithromyazin,detrol
nexium,temazepam,predisone,plaquenil,propanalol,citracal,pottasium, vitB12 ,iron,xopenex,advair,spirivia,soma,Vitamin D, cybalta
 
Dx lupus, scleroderma, pos. fibro, high blood pressure. COPD, need left lung transplant. cervical cancer survivor, osteoporsis.
 
"Consider it a pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance." - James 1:2&3
 


@rianna
Regular Member


Date Joined Mar 2010
Total Posts : 78
   Posted 5/4/2010 3:12 AM (GMT -7)   
When my fibro started I was 15 and dancing to a new CD while the parents were out shopping.  The next day I'm in so much pain and soo tired.  I felt so old and fragile that I didn't go out with my friends and hang out.  From then on it was moving steady.  Not really slow or fast.  At 16 I went to a doctor to see what was wrong because I've been able to crack my knees since I was 13 and she lead me and my parents around by the nose.  I stopped going shortly after.  When I graduated from high school I noticed towards graduation and up until now that my pain has gotten worse and I decided not to go to college because I know me and my body and knew going to college, part time or full time, was not for me.  Now I'm on amitriptyline and not feeling the little constant aches as much, but the flares ups are much worse when they do come.  Although since about last september or even july my hands(now) feet and wrists have been hurting to grip, push, shake hands, be on my feet for more than at least an hour and nothing that I use to relieve my fibro pain helps.  Not even aleve.  I do too get those sensitive spots on my skin that that putting on a shirt hurts or sleeping is interesting when the spot is on my inner knee and I lay kitty-whompis when I move to get comfortable and can't because I have to lift my knee and move.  So it sounds like you're having a big fibro flare up and its giving you a hard time.  A couple of things I can recommend is advil before bed on a full stomach because I usually wake up in a lot less pain and I hope you will too.  Then there's the microwave heat pack that I swear by.  It's called Thermipaq and my husband got it for me at Target ($20.00?) one day when I was just in so much pain at work and at home and didn't have a good heat source for my shoulders.  He got the one that is for shoulders and it comes with a strap and I cheat sometimes and strain the strap around my hips and use it for my lower back while I work or do house chores.  I would recommend heating it for 45 seconds and not the minimum 1 minute it says because as far as I know of us fibromites we can't handle extreme heat.  That heat pack on a minute in the micro feels like I'm steaming off my flesh and I rather like my flesh where its at! smilewinkgrin    Otherwise talk to your doctor and he should get to trying the pressure points on your body that diagnose fibro.  I hope you feel better and don't be afraid to talk to us about worries of extra support on this fibro journey you may need.
 
@rianna
Other occupations: heartburn fighter, migraine massage therapist, fibromyalgia trainer, sinus plummer, allergic vet, weather girl and jar pickles loosener.

Translation: I have heartburn, IBS, fibromyalgia, migraine-like headaches, sinus issues, allergies to cigarette smoke, perfume and animals, sensitive to weather-body heat issues and possible RA in hands, wrists and feet.
 
Scotland the Brave!


JEANINET
New Member


Date Joined May 2010
Total Posts : 1
   Posted 5/11/2010 2:28 AM (GMT -7)   
Hi Carol. I have to say mine came on pretty quick. I got in a car accident and a very short time afterwards, the diarehia started, pain and brain fog. It was noticed about a month after the accident.. after many doc appointments, kept feeling like the flu and lots of work lost, i have been diagnosed by four different doctors. At this point a year and three months later, ready to file for disability. I am having problems walking, and bad brain fog. I need my mind to work. As for me, it is progressing fast. I have always been a very active person. I refuse to get depressed and try to keep my mind on the good things in life..good luck.. ps. has anyone else developed fibo after an accident?

Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 5/11/2010 3:43 AM (GMT -7)   
Hi. Mine came on quick too. I had my fourth surgery where I got diagnosed with Crohns and it was like I never healed from the surgery. I just got more and more pain. I was scared that they screwed it up or something. It took a long time it seemed to get diagnosed with Fibro. But I also didn't have insurance when I had the surgery. So, I had to wait for my husband's insurance to kick in, then I went to this doctor that I trust. He sent me to a quack the first time and I said he needed to send me to a different RA which he did. He even sent me a list of other RAs I could go too. This second one spent an hour and a half working with me. He diagnosed fibro, took X-rays, and did a blood work up to check for thyroid issues and such (the first RA didn't even manipulate my limbs and spent 15 minutes with me). So it came on after my last surgery and hasn't left me since. I will say that I have an incredible reaction to medications now though. I just don't react the way I'm supposed to to any medications. It's the weirdest thing about this DD.
27/f
Allergies and Asthma my whole life: OTC Wal-Zyr D 12-hour
Depression after surgeries and illness of 2003.
Crohns Dx'd: February 2008: Pentasa
Fibromyalgia Dx'd: July 21, 2009: Lyrica, Cymbalta, Hydrocodone, Prenatal Vitamin

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