Does anyone else have PMR?

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Regular Member

Date Joined Apr 2010
Total Posts : 72
   Posted 5/5/2010 1:16 PM (GMT -6)   
I am still on a search for a doctor that will listen to me but I did see a new primary last week after bing left in the lurch when my last primary went on early materninty leave.  Her practice left me out in left field with nothing for pain.
I do have an appointment with a new rheum next Wednesday and hopefully, he will listen to me.
This new primary thinks that my symptoms sound more like Polymyalgia Rheumatica and I don't know what to think.
Does anyone know anything about this?

Forum Moderator

Date Joined Apr 2005
Total Posts : 17059
   Posted 5/5/2010 5:11 PM (GMT -6)   
Hi, Suzbop!  I really don't know a lot about it but I did the Google Custom Search that can be found at the top of the forum on the right hand side.  This search shows all the threads that have been discussed on HealingWell.  I typed in the name and quite a few threads have been about this illness.  Here is one of them.  Hope this helps.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

New Member

Date Joined Apr 2010
Total Posts : 17
   Posted 5/5/2010 7:55 PM (GMT -6)   
I feel for you, having also been set adrift with a change in doctors. Hopefully they'll get something worked out.

Regular Member

Date Joined Mar 2010
Total Posts : 72
   Posted 5/5/2010 8:19 PM (GMT -6)   
Hi Suzboop - I think I might have some info for you in regards to PMR.  I visit this forum because my teenage daughter was diagnosed in February with fibromyalgia. Two years ago my joints swelled up and I could hardly get out of bed. I was 43 years old at the time. I went to a rheumatologist who ran some blood work. My sed rate and c-reactive protein were very elevated. My aldolase level was elevated too which only meant that my muscles were involved. Its usually the elevated sed rate, not able to raise your arms above your head, and can't get out of bed (have to roll), plus all the muscle pain that points doctors in the PMR direction. The average age of onset is 70 years old. Many doctors won't diagnosis this if you are under the age of 50. One way they confirm the diagnosis is to put you on prednisone (usually about 20 mg per day). You will get dramatic relief within a couple of days. I could climb the stairs within 6 hours of taking the prednisone. A few months later I was also diagnosed with rheumatoid arthritis. He said I had both. PMR usually goes away for most people (not all) within 2 years. Most people are on prednisone for the whole time. Some never get off a low dose of it, but manage ok. The medical profession doesn't really understand PMR so you will read conflicting info on it. Some say its inflammation in the muscle others say it is referred pain from inflammation in the larger joints (hip, shoulder, and neck). If you have PMR prednisone (the standard treatment) will give you alot of relief. Prednisone will not do anything for fibromyalgia. Good luck and keep us posted.


Post Edited (pksmdrag) : 5/5/2010 7:22:36 PM (GMT-6)

Regular Member

Date Joined Apr 2010
Total Posts : 72
   Posted 5/6/2010 8:07 AM (GMT -6)   
Thank you all SO much for your info. At this point I am so confused and I appreciate your concern and kidn word.

Kim - I feel for you (literally!) and Sherrine - I'll take a look at that link - I've been reading a lot online about it but I'm even more confused now. And HTG - thanks so much!

solar powered
Veteran Member

Date Joined Nov 2007
Total Posts : 538
   Posted 5/6/2010 10:30 AM (GMT -6)   
Hi Suzboop. A member of HW who is on the chronic pain board was just diagnosed with PMR and has posted about it. Maybe you can check it out if you get the chance.
If I can laugh at it, I can live with it.

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