Early Fibro & Is Fibro a disease that is eligible for disability?

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moeZy
New Member


Date Joined Nov 2009
Total Posts : 14
   Posted 5/7/2010 7:59 PM (GMT -7)   
Did anyone not have all trigger points in their early fibro flares (first few real flares)? I have been to the dr. only twice. I know I have fibro, I have a vast majority of far-flung symtpoms but I have all the trigger points only when some are pressed really hard. I am not a hypochondriac. My brother has had it for 15 years. Trouble is, they won't diagnose me yet.
I also wondered if fibro qualifies for disability if it gets too bad. I honestly don't know how some of you on here hold down jobs.

moeZy
New Member


Date Joined Nov 2009
Total Posts : 14
   Posted 5/7/2010 9:02 PM (GMT -7)   
I see another thread from two days ago answering some questions about the trigger points. However, I want to know if the disease progresses after the first few flares into having worse symptoms, such as more/worse trigger points. Everything I feel changes and varies so much. Thanks for your time & info!

SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 5/7/2010 9:16 PM (GMT -7)   
Flare severity really depends a lot on what is going on in your life. It depends a lot on stress levels as well. Some people are able to get disability, but it takes a while. Some give up because they are denied a couple of times. The reason you most likely have not been officially diagnosed yet is because there are a lot of tests that have to be done to rule out everything else. I would read the Fibro 101 thread. It might help. I wish you luck, and keep us posted on what is going on.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind. Dr. Seuss
 


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 5/7/2010 9:34 PM (GMT -7)   
Hi, MoeZy, My flares vary in pain type and intensity. The length of flares will differ too,
so will the fatigue factor. With most of my flares I get what I call "bone crushing" pain.
Sometimes I will experiance burning pain. Other times needle- stick pain that I get in
my extremities.

There are differant triggers for flares too. Some are caused by weather changes, some
caused by overdoing or being stressed. Fatigue can be overwhelming at times. There
are also times when flares seem to come out of nowhere. My initial flares were not as
intense as the ones I have experianced since. We are all so differant that there is no way
to predict what type of flare you might experiance. Moist heat does help with the pain
and exercise is wonderful for the fibro body and mind!

If you haven't already, checkout fibro 101, second thread on page one. There is some
great info for the fibromite.

There are those with fibro who are on dissability. I'm sure someone will be along to
answer those questions. Good Luck to you!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


ziplocked87
New Member


Date Joined May 2010
Total Posts : 11
   Posted 5/8/2010 3:08 AM (GMT -7)   
Short answer: you don't hold down a job. Long answer: you fight uphill to prove your value until you get to a point where you can convince your employer to treat you differently--for example, reaching a point where you work from home or 3 days a week. There is some disability for those with FM, but be aware that small businesses are exempt.

Also, I'm not sure what you've learned from your brother's experience, but be careful about doctors pushing meds. The research isn't "there" yet, so basically any treatment right now is highly experimental.

Remember the advice to not succumb to peer pressure to do drugs? Well, it still applies--even if you're an adult and the pressure is coming from your employer or doctors, etc and even if the drugs are legal.

Also, even though a lot of drugs considered "safe" or not addictive, they can cause horrible withdrawals and side effects. It's a lot to go through especially when the drugs will not provide relief.


GL

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 5/8/2010 7:03 AM (GMT -7)   
Hi MoeZy,

I held down a job for over 15 years as my Fibro went from manageable to needing medical assistance to "I can't do this anymore". I have other health issues besides the Fibro, so it wasn't JUST Fibro causing problems for me, but it made everything else difficult because treatments and physio for other problems would cause major flares for me.

I can't honestly say if I've noticed a difference in the number or strength of my flares as I've aged. I'm 48 now and have had symptoms of Fiibro since I was 15. I'm probably more aware of my flares now as I understand them better. My life situation is different now too. I was a single mom in my younger years, so my focus was on kids and job and bills and such, and I was probably better at burying the pain, or gulping a handful of Tylenol, to just keep going. After the kids left home, I could focus on "me", and I probably became more aware of when I was having a flare.

I have been lucky to find a combination of pain medications that help me manage. Unlike ziplocked, I believe that if drugs are what you need in order to function, and you're not opposed to taking them, then go ahead and get them. I hate sitting on the sidelines watching life pass me by, so I get in there are participate in stuff, knowing the price I'll pay. I pace my life as best I can so I can get adequate rest. It doesn't always work, but my meds allow me to function somewhat better than without.

I did make the choice to go on disability at work, so I can devote time to my treatment and classes at the Pain Centre I am a patient at. It also allows me time to rest when I need to (usually several times during the day), which is of huge value to me. I hope to return to work at some point - right now, the company I've been with has no position for me (my group merged in with another just before I left and my position was eliminated. My boss encouraged me to go on disability, so they don't lose me as an employee and they will hopefully be able to find or create a job for me when I'm ready to go back). I've received amazing support from work, from my doctor, and from my team at the Pain Centre. The paper trail up to receiving disability was easy to manage with the help of my med team - but I am in Canada and my disability coverage is thru work, not thru the government, so that probably made a difference.

I don't know if this answers all/some of your questions, but feel free to ask more if you need to. Hope you're having a good day today.

hugs,
Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


moeZy
New Member


Date Joined Nov 2009
Total Posts : 14
   Posted 5/8/2010 6:34 PM (GMT -7)   
Thanks for all the info. I absolutely hate going to doctor's appointments, so I don't go unless things are pretty bad. I'm a nurse...ha! Go figure. I will definitely have to change jobs if I were to get too bad.

ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 5/15/2010 9:58 PM (GMT -7)   
I was Dx a couple years ago and as long as I keep my stress down I do alright. I watch children so I don't feel as stressed out I think as some on here that go to work out of the home. Weather has a lot to do with my pain level I've noticed along with how long I"m on my feet. I have found that sleeping most the day on Sat. and sometimes Sunday is great for me since I watch a child until 11:30 pm Mon-Fri.

I agree with watching what meds. you take and try not to take them unless you need them.

Veronica
DX Fibro 12/31/07   Guess I can put the rest dx
PSTD  Bi Polar 2/04  Depression most of my life  IBS
RX Amitriptylin 25mg
 
God gives doesn't give us more than we can handle. So this too shall pass.


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40601
   Posted 5/17/2010 11:50 AM (GMT -7)   
Hi MoeZy,

I think we all flare differently. Each of us individually has different things that trigger our flares. Some of stress, some of us over doing it, an illness, etc... And I think that the degrees of our flares are different. Some of us get more fatigue and others more pain. Me, I can handle the pain, but not the fatigue. I just hate that exhausted feeling. But I have always had a high pain tolerance so I can deal with that. I am usually always at a 3 or 4 on a scale of 1-10.

I take medications to help combat fibromyalgia. That seems to work for me. Plus gives me the energy to move around which helps. So always try to move around and stretch periodically to keep your muscles from getting stiff.

As for the disability. It can be a long haul, but yes, there are some people with fibro who have gotten it. I don't know if they had any acompanying illnesses though to go along with it. Me I was denied over some technical stuff and the judge said that my pshchiatrist wasn't credible. I think it was crazy, but last year I did manage to work some so I am happy with that. At least I know I can do it. It wasn't easy, but I made it none the less.

I hope that you are having a nice painfree day. Keep posting and let us know how things go.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


deb in indiana
Regular Member


Date Joined Aug 2005
Total Posts : 387
   Posted 5/17/2010 12:26 PM (GMT -7)   
Karen the judge turned me now also he said my doctors and i weren't credible so i got pissed come to find out the judge wasn't no good he only honered 20% of his cases so i reapplied filied a law suit went all the way to federal court got a letter the other day i shouldn't got denied the first time and they are giving me back pain to 2004 when i first file so please don't ever give up i was ready for the nut house but i kept fighting good luck and have a good day Deb
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