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katbmom
New Member


Date Joined May 2010
Total Posts : 6
   Posted 5/11/2010 5:25 PM (GMT -7)   
Hello!
 
My name is Kathy and I live in Lexington, Ky.  I am in my forties and was diagnosed with fibromyalgia nine years ago.  about six years ago, I ended up having to quit my job as a Registered Nurse because the pain and fatigue became too much to deal with.  I have never made it back to work.  I have, however, learned to manage my fibromyalgia symptoms to a large extent through natural means.
 
The past few days I have had a cold and since we've been out of town and I've not been watching my diet closely, I am a bit sore and fatigued today.  The last exacerbation I had with my fibromyalgia was when I painted a room in our house.  That evening I was very sore and tired, but was fine again the next morning.  I totally believe the VOC's in the paint caused my mini-relapse.  Anyway, I am always looking for ways of improving my health, not only with fibromyalgia but overall.
 
I am looking forward to getting to know you all!
 

Please Read forum rules...especially rule # 4. 

Post Edited By Moderator (Sherrine) : 5/12/2010 11:31:07 AM (GMT-6)


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 5/11/2010 7:14 PM (GMT -7)   
Hi Kathy and Welcome!

It sure doesn't hurt any of us to eat as best we can and try to 'manage' this disorder. But for some of us 'managing' means trying to walk and only having a mild headache each day. Don't mean to sound discouraging but fibro is a mighty strange bedfellow. For some people the fatigue is overwhelming with moderate pain. Others have pain that is near childbirth and don't have the sleep issues. We're all so different.

I'm glad you have found a regime that works for you. It will be nice when they have a definitive cause so a true cure can be found. That's what I'm praying for.

Chutz
Gravitation is not responsible for people falling in love.
Albert Einstein

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 5/11/2010 7:29 PM (GMT -7)   
Welcome, Kathy!
 
I've only been here a few months (despite my join date) and it's helped me so much.
Tonight my problem is that I got a computer virus and so missed out on all the threads for the last 4 days.  I know I'll never get to catch up on everything and everyone, and it's really frustrating me.  (I disabled my popup-blocker to search for cheap airline tickets...real smart!  shakehead )  Never again.
 
Sometimes I can trace my flares to a cause, and sometimes not at all.  My husband always says, "someday they'll invent a pill and you'll be cured..." 
  Achey 
 
  Diagnosed: Fibromyalgia, Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis,   lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
 
Be yourself.  Everyone else is already taken.


katbmom
New Member


Date Joined May 2010
Total Posts : 6
   Posted 5/11/2010 8:23 PM (GMT -7)   
Hi Chutz,
 
Thanks for the welcome!
 
I agree... there's no rhyme nor reason to this disease.  I was one of those with the moderate pain and overwhelming fatigue.  Or maybe I could just handle the pain better than the fatigue (or blow out my liver with pain meds;)).  I feel blessed to be doing as well as I am since for several years, I did little more than lie on the couch.
 
 

Please stop posting to the web site that you are a distributor to.  It is against forum rules.

Post Edited By Moderator (Sherrine) : 5/12/2010 11:32:41 AM (GMT-6)


katbmom
New Member


Date Joined May 2010
Total Posts : 6
   Posted 5/11/2010 8:29 PM (GMT -7)   
Hi Achy & thanks for the welcome!
 
I am rarely able to trace my flares either.  It just happened that I hadn't had a flare in several months and then suddenly I had one the evening after I painted that room.  Maybe I'm wrong and it had nothing to do with the paint, but even if it didn't, VOC's can't be good for us.  I really expected that flare to last a few days like before, but thankfully I was back to normal the next day.
 
By normal, however, I don't mean that I am at the same level I was before I was diagnosed with fibromyalgia.  I still have issues if I overdo, and I still don't believe I could handle a nursing job.  I just mean I feel well enough to enjoy life again, and I am very thankful for that.
 
I hope you'll be able to find a regime that helps you feel better.  Yes... we should all pray for a cure, but I don't plan to stop looking for my own cure in the meantime.

Please take the link off your signature.  It is against forum rules. 

Post Edited By Moderator (Sherrine) : 5/12/2010 11:59:15 AM (GMT-6)


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 5/12/2010 7:04 AM (GMT -7)   
Welcome Kathy, we are glad to have you with us. But as everyone says, not glad you have fibro. This is a great forum and I have learned so much from the wonderful people on here. I suffer with alot of pain and some fatigue but don't have trouble with sleep like alot of members here do. The headaches affect me more than the fibro some of the time, unless I am in a flare or have over done it (which I guess causes me to flare?) So I know that fibro can be very different for everybody. I was shocked to see that alot of our members can manage the pain without prescription pain meds, I don't have any kind of life without my meds. I am a single Mom of 5 and cannot just stay in bed and let life go on without me. I am one of the lucky ones who has a Doc that believes we all deserve to have some quality of life and therefore manages my pain. Well, I've rambled enough, once again welcome to our family!
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 5/12/2010 7:25 AM (GMT -7)   
Hi Kathy and welcome to our fibro family! I have checked out your website and it is
beautifully done. You surely know that Faith and a positive attitude goes along way in
helping with fibro. I totally agree! It is important to believe you can help yourself. Our
lives are not over. We can still be happy!

I am so glad you have joined us! Do check out fibro 101 if you haven't already, it is the
second thread on page one. Sherrine has compiled lots of good info for the fibromite!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 5/12/2010 10:37 AM (GMT -7)   
Katbmom, when you joined, you agreed to abide by our forum rules.   Read Rule #4 and take the link off your signature.  You are a distributor of the product on the site so you have vested interest. 
 
You are most welcome to stay here and enjoy this wonderful forum with our great members, but we all must abide by our forum rules.  Thanks!
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 5/12/2010 12:00:52 PM (GMT-6)

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