For mommy 921, new member with questions...

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getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40573
   Posted 5/12/2010 1:00 PM (GMT -7)   
My two and half year old daughter's sed rate came back yesterday (tested a week ago) at 80. She had been battling virus after virus with a pretty steady fever for the past 4 to 6 weeks (she'd get better for a couple days then catch something new and be sick again). All other tests that the doctor looked at (urinalysis, blood work) came back normal. We just got a chest xray done today and that came back normal. She's been feeling 110% for the past week now -- no fever, no other cold or flu-like symptoms -- but still worried sick. My husband's grandmother has chrones and M.S.. His younger brother (same mother, different father) was diagnosed with mild JRA five years ago (and has since pretty much fully recovered). Now we play the waiting game. I guess I'm just posting on here for some feedback or some support. Worried sick, but she seems like she's feeling the best she's ever felt!! Was the sed rate just an indication of the viruses? We're getting the sed rate retested this friday, hopefully it will have gone down.

P.S. I just happened upon this site today. If I should repost this in a non-fibromyalgia forum please suggest where. I had never even heard of a sed rate until yesterday when we heard it was high... just feeling a bit lost and needing some encouragement. Thanks!
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 5/12/2010 2:05 PM (GMT -7)   
Getting by,
I'm also a victim of JRA. I came down with it when I was 7, my Dad was 7 and my nephew diagnosed when he was 2. My
granddaughter is 5 and complaining her feet hurt and it's where it's hits most of us. Back then I don't think they even knew
about sed rates. My nephew is now in his early 30's but was put on 18 baby aspirin a day and it went into remission. My
sister was told it could come back at any time. Good luck with your daughter.....it's hard to see them so young hurt so bad.

Nana Monster

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 5/12/2010 2:06 PM (GMT -7)   
Hi, and welcome!  Things are always far more frightening when it is happening to our child, isn't it?!!  A sedimentation rate shows if there is any inflammation in the body.  Usually other tests are run at the same time.  A viral infection can cause a high sedimentation rate, from what I've read.  I'm not a doctor but I hope you can relax a little.  Your child has been fighting a virus, you said, and this could be all this high sedimentation rate test is showing.  Everything seems to be coming back fine. 
 
I remember when my first child was getting sick all of the time.  She was just a few months old and she had to have a gamma globulin test.  THAT frightened me.  Then there was the time my youngest, four years old at the time, was hospitalized for over a week with a temperature of 105 degrees and she had a stiff neck.  She couldn't even hold Tylenol down so they had to put her in tepid baths to bring the fever down.  They ran all the tests and couldn't find a problem so I just signed papers for her to be sent to a children's specialty hospital and also signed for a spinal tap.  Before all of this came to pass, the doctor found the problem....strep!  They ran all tests but strep because her throat wasn't sore or red!  He did it as a last resort.  She was back home running around like crazy in three days. 
 
So, things can look bad but there could be a simple explanation.  Just try to calm down and follow doctor's orders.  I'm glad she is acting her "normal" self.  That is a great sign!  Let us know how the retest goes, okay?  We really do care.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40573
   Posted 5/12/2010 2:35 PM (GMT -7)   
Hi Nana,

This isn't about me, I started this post for mommy921 because she posted on another thread and I was afraid nobody would notice the post. But I am sure that she values your input and thank you for responding. You are such a sweet person.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


mommy921
New Member


Date Joined May 2010
Total Posts : 3
   Posted 5/13/2010 8:53 AM (GMT -7)   
Thank you so much for reposting this!  And thanks for the encouragement.  My mind has been racing but I'm just trying to stay positive and assume it WAS just the virus she was fighting that elevated the rate.  We are retesting this friday at 4.  Am very hopeful for a back-to-normal result.

mommy921
New Member


Date Joined May 2010
Total Posts : 3
   Posted 5/19/2010 9:23 AM (GMT -7)   
Just wanted to let yall know that my daughter's sed rate came back at a 5 after re-testing. So it looks like everything is A-OK!! Thanks for the support. Phew, what a relief!!!

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 5/19/2010 9:32 AM (GMT -7)   
I'm sooo happy for you!  Thank you so much for letting us know.  Now, go enjoy the summer with your daughter!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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