Today is National Fibromyalgia Awareness day

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Hischildvalda
Regular Member


Date Joined Feb 2010
Total Posts : 175
   Posted 5/12/2010 3:04 PM (GMT -7)   
This year I haven't seen any notices or ads.  Here in California there are only about three events planned for the 15th.  Is anybody involved in walks, etc.?
1999 Fibromyalgia and all the fun stuff that goes with it came to live with me.
 


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 5/12/2010 5:25 PM (GMT -7)   
No, and I wish there were more going on. But I did something today (just happened to coincide) that made me aware of all I still CAN do; I visited a woman who has ALS. We met in a coffee shop over a year ago - she walked up to me out of the blue, a perfect stranger about my age, and told me she had just been diagnosed. I about fell through the floor because my dad had just died from ALS a couple of months before. It took all this time, but we finally got together, and the horrors of ALS came back to me when I saw all she could no longer do...walk up the stairs...swallow without fear...drive...cook...think about next year.

Then I did my mallwalking and fell back into my car, throbbing and aching (and bellyaching!), but doing it on my own, and thanked my lucky stars. It could be A LOT worse.

With that said, however, I am very glad that awareness of Fibromyalgia is starting to take spread, because it is a *****!
  Achey 
 
  Diagnosed: Fibromyalgia, Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis,   lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
 
Be yourself.  Everyone else is already taken.


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 5/12/2010 10:47 PM (GMT -7)   
Thanks for the reminder. I do know there are some events but they are few and far between. It's another one of those 'silent disorders' partly because you can't see anything on the outside that looks wrong. But on the inside we are in agony. I sent a handful of fibro ribbons to a group in Canada for their celebration and in tern they joined Healing Well. I thought that was a lovely trade.

I also am convinced that if some famous person who had been having an affair with "(fill in the blank") had fibro we'd not only get the word out but we would have some money raised for research. Sure would be nice.

tired Chutz
Gravitation is not responsible for people falling in love.
Albert Einstein

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

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