Is the first symptom partial facial numbness?

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Milley
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Date Joined May 2010
Total Posts : 4
   Posted 5/12/2010 7:20 PM (GMT -7)   

Last year I was living life as normal, happy and pain free, when I woke up to the right side of my face being numb. Then started a progressive list of symptoms that became worse every day such as arm pain, leg pain, shoulder pain, numbness, tingling, muscle twitches, and muscle weakness. Doctors ran MRI and blood work and found nothing. Some said anxiety or depression (although I don't agree because besides dealing with pain I was fine) and a some said Fibryomyalgai. Most were rude and unhelpful. I did not work for two months. After four months I improved to about 80% better.

 

about two weeks ago my identical twin sister woke up with the right side of her face numb. She then stated to have the exact same symptoms as me. She has the arm pain, leg pain, muscle twitches, and nerve pain.

 

Does this sound familiar to other people? Does it sound like fibromyalgia?

 

Thank you for your help.


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 5/12/2010 7:24 PM (GMT -7)   
have you been checked for LYme disease?
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


Milley
New Member


Date Joined May 2010
Total Posts : 4
   Posted 5/12/2010 7:31 PM (GMT -7)   
No lyme disease in my state. No postive tests expect CRP.

Chutz
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Date Joined Jan 2005
Total Posts : 9090
   Posted 5/12/2010 10:37 PM (GMT -7)   
Hi Milley!

Glad you came to ask questions. Many of your symptoms can be associated with fibro but also they can be attributed to other disorders. The numbness and tingling would be frightening and I'm surprised none of the doctors had a clue. It's sad when they think it's all in the patient's head when sometimes they just don't know. But then to have your sister come up with the same exact symptoms is very telling to say the least.

Have you tried a university/teaching hospital? You can see doctors there who won't give up and are on the leading edge of the medical field and research. In the Fibro 101 thread there's a link to many of the places around the world where you can go. Here's the link so you don't have to hunt for it.... en.wikipedia.org/wiki/List_of_university_hospitals It would be worth the drive.

Also, have you seen a rheumatologist? They are most often the ones who diagnose things like fibromyalgia even though it's generally thought to be a central nervous system disorder. When it was less understood fibro was considered in the rheumatic disorders.

I sure hope you find an answer soon!
Chutz
Gravitation is not responsible for people falling in love.
Albert Einstein

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(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Sheila1366
Regular Member


Date Joined Aug 2005
Total Posts : 384
   Posted 5/13/2010 6:11 AM (GMT -7)   
I never thought about the connection til now. Way back when all this started I had numbness in my face. I was told it was bells palsey.
I thought stroke. Had MRI and seen a neurologist. Everything checked out fine. I was told stress....stress is the answer for everything. Now...full blown FM.

I think your sister needs to be checked out for sure to be sure that everything is ok.
I struggle with FM,Raynauds Syndrome,gastroparesis, IBS and depression. I trust in God with all things. Been a tough journey and it's not getting any easier but thanks to God and my family I am not alone.


Eli38
New Member


Date Joined Apr 2010
Total Posts : 5
   Posted 5/13/2010 6:13 AM (GMT -7)   
Hi Milley... I had the same symptoms a little over 2 yrs ago. I had good days, but more bad days. After numerous dr. appts, and even more tests (mri's, mra's, echocardiogram, 2 stress tests, lots of ct's, and even more blood work...etc) i was finally diagnosed with Addison's. My face and left side tingles when my b12 is low. Maybe u should see an endo, and have ur adrenals tested.

Eli38
New Member


Date Joined Apr 2010
Total Posts : 5
   Posted 5/13/2010 6:18 AM (GMT -7)   
Oh...My face does the same thing also. I have been told it was bells also, but 3 cases of bells in 9 months????? This happens alot to me because my immune system is so meesed up (Addison's is an autoimmune thing), so I am always catching whatever bug is going around, and it takes me 3 times as long to get over any illness. I hope i have helped a little.  I am open to any questions u may have.

Milley
New Member


Date Joined May 2010
Total Posts : 4
   Posted 5/13/2010 4:25 PM (GMT -7)   
Thanks for all the information. What is the best thing is knowing I am not alone and it is all not just in my head.

merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 5/13/2010 4:46 PM (GMT -7)   
milley there is lyme is every state!! I think hawaii is questionable, bu t have talked to lyme positive people from Hawaii.

If you need the data I can get it for you. Please dont blow this off. Only 50% of people remmeber a tick, bite or rash! I never did.

good luck
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


Milley
New Member


Date Joined May 2010
Total Posts : 4
   Posted 5/13/2010 7:17 PM (GMT -7)   
Thank you. The doctors in Montana will not even test me for Lyme. I told them I was in Arizona, Texas, and California last year too. They don't care. I tried to find someplace to test for it myself, and I everyone where I go I need a doctor's order. I am not sure what to do at this point, but thank you.

merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 5/13/2010 7:41 PM (GMT -7)   
good luck
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


angel 12
New Member


Date Joined Dec 2014
Total Posts : 1
   Posted 12/22/2014 6:15 AM (GMT -7)   
I read where one lady said she got partial numbness on her right side of her face.I do too.Fibromyalgia affects your whole body & your life.
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