Having a tough time

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Sheila1366
Regular Member


Date Joined Aug 2005
Total Posts : 384
   Posted 5/13/2010 5:47 AM (GMT -7)   
Been a really tough time. Not only am I having pain but I am feel so tired and sick. The pain just hits in places all over my body that I think, how could that hurt too. Like this morning, my forearms were hurting. Why? None of this makes sense to me. I have been hurting so bad in my chest and in my back right over my kidneys. I think, surely there must be something wrong with my heart or my kidneys but I remember that I have had all this checked out before and they were fine. I could go to the dr. but what can she do for me. She won't give out pain medicine which is the whole point for seeing her. I don't understand why dr.'s won't treat pain. I am so overwhelmed can you tell. Thanks for listening to me complain.

KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 5/13/2010 5:52 AM (GMT -7)   
Praying for ya........((hugs))

Mary41
Regular Member


Date Joined May 2010
Total Posts : 74
   Posted 5/13/2010 6:57 AM (GMT -7)   
Why wont they give you pain meds?

Sheila1366
Regular Member


Date Joined Aug 2005
Total Posts : 384
   Posted 5/13/2010 7:04 AM (GMT -7)   
My reheumy. said she wouldn't give out pain meds. other than ultram,lyrica and flexeril. She even made me sign a paper stating that if I was to get pain meds. I would have to let her know. Being stupid I signed the paper thinking that everyone has to do this inorder to get treated. Since diagnosed with FM I have never been given any medication that has helped. I am frustrated. I was thinking of seeing a new gp this week and asking for pain medicine but it seems that dr. just don't want to treat pain. I don't understand. All I know that I hurt and nothing is helping me. Oh me.
I struggle with FM,Raynauds Syndrome,gastroparesis, IBS and depression. I trust in God with all things. Been a tough journey and it's not getting any easier but thanks to God and my family I am not alone.


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 5/13/2010 8:14 AM (GMT -7)   
What is it with some doctors?? I guess they hear the word "narcotic," and automatically go to "addicted," and then probably, "lawsuit." That's just dumb. I have Darvocet in my arsenal and I would sure hate to be without it, but a prescription of 30 lasts me several months. I tried all 3 of the drugs you mentioned, and they didn't work for me for more than a few weeks, and flexeril didn't do squat but make me hyper-aware of my heartbeat. Everybody's body works differently - surely they understand this?

Of course, they do have to be careful with interactions with whatever other meds you're taking. Could that be a factor?
  Achey 
 
    Diagnosed: Fibromyalgia, possible Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
 
Be yourself.  Everyone else is already taken.


pksmdrag
Regular Member


Date Joined Mar 2010
Total Posts : 72
   Posted 5/13/2010 8:56 AM (GMT -7)   
Hi Sheila - I am sorry you are having a tough time. Can you switch doctors? I don't have any experience with a Pain Management Clinic, but is that an option? Shortly after my mother had a major life altering stroke she was in a lot of pain. She was in one nursing home for some rehab and the pain was so bad. The doctor wouldn't change her medicine. The day after I got her out of that nursing home I took her back to her physiatrist (rehab doctor). He changed her med and that mad everthing tolerable. I hear that sometimes the Pain Management Clinics sometimes treat the pain as if its all in your head but I have heard of other ones who have had good experiences. Anyway, I wish you well.

Kim

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 5/13/2010 9:18 AM (GMT -7)   
Oh Sheila, I am so sorry you are in pain and it's not being treated. How incredibly frustrating that must be. Are you taking any of the three meds you mentioned that they will provide?

If not, try using a combination of acetaminophen and ibuprofen together....they work well as a team to manage pain. Take the maximum dosage allowed and try and rest as much as you can. Use heat to help relax you and if you can, plug in your iPod, get comfy and listen to some meditation or "spa" music. These things may help to relax you so the pain lessens.

I hope you are able to get some relief and soon. I agree that searching for a new doctor might be good, especially if your rheaumy isn't going to help you manage the pain the way you need.

take care, and know that we're thinking of you.

hugs,
Pam
Conditions: Fibromyalgia, Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


blubyrd50
New Member


Date Joined May 2010
Total Posts : 10
   Posted 5/13/2010 1:37 PM (GMT -7)   
Sheila,
I can totally identify with what you're feeling this morning. One of the hardest things for me is the pain and disturbing sensations that have no explanation. Last night I was up late with chest pains. And like you said I know that my heart's ok, had an encephalo cardiogram a few years ago that showed everything is okay besides a PVC (premature ventricular contraction). But it still worries me. And I know doctors think that because they tell you that the pains you are having are not because something is wrong with your heart/kidneys/bladder etc. that you should just "get over it". But pain is a signal from your body that something is wrong, right? I mean, that's the whole point of pain; your body is saying "hey, you need to pay attention to me!". So you're stuck in this position where you have this constant back ground noise of your body sending you signals, and you're supposed to learn to just ignore it. Which I am good at doing some of the time (I've had the pain for about 15 years now, steadily getting worse), and other times I fail completely and I can't stop thinking and worrying about what feels like an impending heart attack or kidney failure and it put's me into a tailspin as I go to that place in my mind where I think "they'll find me dead of a heart attack at 31, and then they'll realize they had it wrong!". Pain is a vicious enemy to have to fight on a daily basis, I always say that it is absolutely demoralizing!

And you're right it's NOT just the pain (so many people who don't have fibro don't realize this); it's feeling totally sick; l compare it to when I was a child and you wake up and you know you have the flu and you cant go to school. It's a whole body thing. It doesn't make any sense! I have found a few doctors and theories that seem to get it right (I'm a biologist so for years I've been researching possible fibro causes and treatments) but usually they just have what seems to be a piece of the puzzle; we are still waiting for a comprehensive explanation and an effective, affordable and widely available treatment.

I am overwhelmed with you. It's not just the debilitating symptoms, it's those symptoms plus the fact that the people in my life (including my doctors) have no idea what's going on. Sometimes I actually wish I had MS or Lupus or any disease that is understood to the point that the community makes accommodations for sufferers. I'll share something that gives me hope: "In the early days of polio...before a blood test was developed, some physicians intimated that the children on iron lungs were simply having a psychosomatic illness, The same thing occurred with Lupus, even though many women died of the disease. Indeed, relief came for lupus sufferers only when a blood test was developed. The same thing is now occurring with CFS (Chronic Fatigue Syndrome) and fibromyalgia. Fortunately, the CDC and the National Institutes of Health, the two main governmental agencies responsible for CFS and fibromyalgia research, are now getting more serious about making it clear to physicians that these are very real and devastating syndromes--and not simply psychosomatic. The CDC is spending millions of dollars in advertising to help correct mis-impressions about CFS and to educate both physicians and the public about how real and devastating these syndromes are. The recognition is coming just in time, as the prevalence of these syndromes is skyrocketing." (Jacob Teitlebaum M.D.) That puts it in perspective for me: maybe we're not suffering pointlessly. Maybe we are the poor warrior souls that have to endure an illness in the time before medicine has an answer. It takes extra ordinary courage. But imagine that day in the future when science finally discovers the cause and we get the respect we deserve! Let's all keep our hopes up and focus on making that day a reality in whatever ways we can! And Sheila, thanks for complainingcool, Jules

blubyrd50
New Member


Date Joined May 2010
Total Posts : 10
   Posted 5/13/2010 2:06 PM (GMT -7)   
Sheila I just posted a thread about my experience with pain meds and my doctor, you might want to check it out "A Rant: pain meds and health care professionals!"
Jules

Sheila1366
Regular Member


Date Joined Aug 2005
Total Posts : 384
   Posted 5/14/2010 5:36 AM (GMT -7)   
Thanks everyone. Today is no better. Back,chest and ribs really hurt. Hurts to take a deep breath. I think I will go to the dr. There maybe some inflamation in my chest. I'm not coughing at all. Something has to be done. Just so tired of this. Nothing I can do to get away from this pain. As soon as I wake up and step one foot out of the bed it all starts all over again. Each day getting worse. It hurts to sit back in a chair. I use a heating pad and it helps some.

I am just full of complaints this morning. Just not ready for another with pain.
I struggle with FM,Raynauds Syndrome,gastroparesis, IBS and depression. I trust in God with all things. Been a tough journey and it's not getting any easier but thanks to God and my family I am not alone.


blubyrd50
New Member


Date Joined May 2010
Total Posts : 10
   Posted 5/14/2010 11:57 AM (GMT -7)   
Sheila I think you should go to the doctor, just to make sure nothing new is going on and to see if there's anything they can do for you. Good luck, I hope you find relief soon.

P.S. when you have a minute check out the thread about the Ribose powder. It's been really helpful for my muscle pain, better than the hydrocodone because it seems to stop the pains before they start, like it actually treats the problem.

ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 5/14/2010 1:00 PM (GMT -7)   
I hope you find the answers to your pain. Huge Soft Hugs go out to you.
Veronica
DX Fibro 12/31/07   Guess I can put the rest dx
PSTD  Bi Polar 2/04  Depression most of my life  IBS
RX Amitriptylin 25mg
 
God gives doesn't give us more than we can handle. So this too shall pass.

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