Fibro is sure about emotions

New Topic Post Reply Printable Version
27 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 5/15/2010 2:14 PM (GMT -7)   
I made a list of negative emotions that I have felt with fibro and my other issues,
 I went through the mourning of the loss of good health and the acceptance of my
illnesses. There are still times when I do experiance these emotions but I really try to
work on being positive. I'm human so i do have a pity party now and then:)
 
Anger,Anxiety, depression, despair, dissapointment, disgust, envy, embarrassament,
fear, frustration, grief, guilt, hatred, jealousy, misery, pity, rage, regret, sadness, shame,
suffering and last but not least worry.
 
I think it would be unatural if we did not feel these emotions sometimes. For me it is a
everyday process to focus on  the positives in my life, taking one day at a time.
 
How do you make hope and happiness a part of your life?
 
Hugs, Robin
 
 PS edited due to fibro fog


Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

Post Edited (crazykitty) : 5/15/2010 3:46:55 PM (GMT-6)


Sheila1366
Regular Member


Date Joined Aug 2005
Total Posts : 384
   Posted 5/15/2010 2:21 PM (GMT -7)   
Sorry you feel so bad. I can relate. I have had many of the same emotions. I find Fm to be so isolating sometimes.

((((((Gentle Hug)))))))
I struggle with FM,Raynauds Syndrome,gastroparesis, IBS and depression. I trust in God with all things. Been a tough journey and it's not getting any easier but thanks to God and my family I am not alone.


it's a new day
Regular Member


Date Joined Jan 2010
Total Posts : 105
   Posted 5/15/2010 2:21 PM (GMT -7)   

It is really tough.  I really try and be positive and try not to complain.  I don't even like to hear myself complain, muchless anyone else.  Everytime I think I am doing pretty well at accepting this crazy disease something slaps me in the face and I have to start over.  Right now I am wondering how long we can stay in this house.  There is just so much to do.  But one day at a time.  One foot in front of the other.


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 5/15/2010 2:31 PM (GMT -7)   
Robin, I have felt some of those emotions but I never felt embarrassment or shame or any of those that fall in that catagory.  After all, I didn't ask for this.  It just became a fact of my life.
 
First of all, I do have a very strong faith.  That helps me the most.  Add stubborness to that and it's a good combination for this illness.  I'm not about to let it ruin my life.  I know I feel much better looking at the positive things in my life so that's what I focus on.  I have plenty of negative things going on, too, but I turn those over to God if they are out of my control.  I don't fight it.  I roll with the punches.
 
I do have my moments like everyone else and I do have a good cry every once in a while.  But I also have so much to be thankful for that my pity parties don't last long at all.  I'm glad about that because no one comes anyway and I have to eat all the leftovers!  devil
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 5/15/2010 2:32 PM (GMT -7)   
The emotions I listed were emotions I mainly felt before I accepted my illnesses. I
believe I am mainly a positive person but at times can feel the negative emotions.

My question... How do you make hope and happiness part of your life?...is one I ask myself
every morning to help myself have a good day. This pracrice has helped me focus on what
I can do to help myself.

Hugs, Robin


Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

Post Edited (crazykitty) : 5/15/2010 3:49:38 PM (GMT-6)


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 5/15/2010 2:48 PM (GMT -7)   
Robin, I think it is a choice.  We can choose to be happy or we can choose to allow illnesses to overtake our happiness.  I figure I only have one chance at this life on earth so I want it to be a good one.  My choice is to be happy.
 
I never give myself a mental "physical".  I don't check what hurts and what doesn't.  I just take the things that help keep me going and look forward to the new day. 
 
Everyone has negative emotions that try to creep in but I refuse to dwell on them.  I get busy doing something constructive instead of letting the negative emotions drag me down.  That is totally pointless to me.  Sometimes I'm not as successful at that but a good cry usually chases the blues away.
 
Sherrine 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 5/15/2010 2:54 PM (GMT -7)   
Sherrine, I have felt embarrased by my lack of energy especially when my 85 year old
mother in law can work circles around me. Maybe I haven't fully accepted who I am yet.

You are one of the most positive, strongest people I have come to know on this forum.
Thank you for being here for us!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 5/15/2010 3:52 PM (GMT -7)   
Thanks, Robin.  You are a very positive person, too.  But,  you don't need to be embarrassed by the effects of your illnesses.  You didn't want this illness or any of the other illnesses that you are dealing with in your life but you are making the best of it.   
 
I find that teaching people about the illnesses that affect you really helps.  I'm always explaining fibro, hearing loss, Crohn's,  ostomy questions, etc.  It does surprise me as to how interested people are about it.  They don't always understand but they realize I have these problems and many want to help.  I used to try to muddle through somehow but now I expain why I can't do certain things.  But, they also know I'm the first one to pitch in with the things I CAN do.  It's really helped my friends and me, as well.  
 
So, try not to be embarrassed.  Your MIL was blessed with better health but you have been blessed with compassion and understanding.  You might be surprised how she would respond with a lesson about fibro!
 
Sherrine  
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


pksmdrag
Regular Member


Date Joined Mar 2010
Total Posts : 72
   Posted 5/15/2010 3:59 PM (GMT -7)   
I just want to say that I am the mother of a teenager with this nasty illness and I feel lots of emotions with this. I think my daughter handles it very well most of the time. At times it just breaks my heart to see her dealing with this. Most of the time we are hopeful. I give you all so much credit for dealing with this.

Kim

Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 5/15/2010 4:44 PM (GMT -7)   
How do you explain it? I usually just say I have a neuromuscular disorder. I don't know if it is exactly accurate, but it is close enough. I never know who will think fibro is a fake illness.
Sue

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 5/15/2010 5:10 PM (GMT -7)   
As I've said before, what bugs me the most is when people toss off a casual, "Oh, you're fine," after I've said I need help with groceries or whatever. Uh, no, I'm NOT fine - that's the point! My daughters say I'm just being silly, people just mean don't worry about it, which I know, but it still irks me!

I guess if I had to pick one overwhelming negative emotion through all of this it would be loss. Loss of so many abillities, so many enjoyments. But I do believe I am able to appreciate little things more now, such as the exquisite sunlight hitting my ceramic pig and wall in a certain way. I am slowed down (boy, am I slowed down) so I see things I might have missed before. There really is beauty all around. And there are good and strong people all around too.

We are where and what we are, period. Go from here.

Of course, I'm someone who has her pain and fatigue pretty much under control. I couldn't have been so positive in the beginning!
  Achey 
 
    Diagnosed: Fibromyalgia, possible Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
 
Be yourself.  Everyone else is already taken.


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 5/15/2010 6:12 PM (GMT -7)   

I feel the same negative emotions we all can't help but have when we're in chronic pain.  For me, I try to find humor in some of the things I do...I very rarely talk about my pain on this forum but the Fog is so challenging and frightening at times I post it and find that I'm not alone.  Most of my friends and family understand the pain but The Fog?  Not so much.  At least I know my fibro family is laughing with me and not at me...that helps.  I mean, how many 'normal' people spray their hair with Pledge???

Huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 5/15/2010 9:06 PM (GMT -7)   
Donna, you spray your hair with Pledge, and I try to shave my legs with a shower squeegee...
and my husband wonders why it takes me so long to get ready in the morning.

I forgot to mention the fog, didn't I? I find humor in the fog too, although I admit it is
scarey at times, sometimes questioning my sanity.


ThankYou all for the hugs, encouragement, understanding, wisdom and the feeling that I'm
not alone in this. Fibro family "gets it." Wishing great days ahead for all of us!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 5/15/2010 10:48 PM (GMT -7)   
LOL Donna,

The Fog, I will admit scares me sometimes. But like you said I also try to find Humor in it. The scary part is trying to remember a number that I should know, like my own, is going to put something in the fridge that doesn't belong, I've gone to put the Pledge in there. LOL When ever I can't find something though I'll look at Mitch and tell him, Well I guess our ghost took it. Now, I have my uncle's Ashes at my house, so now I blame Uncle Bobbie when I can't find something. LOL

The worst part of the fog to is trying to have a conversation and forgetting what you're talking about. I do that sometimes when I"m around Mitch's family. I get so embrassed and then I just say " The Fog has rolled in!"

I still though get angry at the pain, and at feeling helpless sometimes. But I work through it. And I remind myself God wouldn't have given me this if he didn't think I was strong enough.

I'm most happy though when I see the children I watch each and everyday. I now have a couple of children that are Autistic. And it is so great watching them. My pain is nothing compared to what these children and their parents have to deal with each day.

Veronica
DX Fibro 12/31/07   Guess I can put the rest dx
PSTD  Bi Polar 2/04  Depression most of my life  IBS
RX Amitriptylin 25mg
 
God gives doesn't give us more than we can handle. So this too shall pass.


steppingstone
Regular Member


Date Joined Apr 2010
Total Posts : 372
   Posted 5/16/2010 12:09 AM (GMT -7)   
I find that the fog is sometimes the worst part for me. On really bad days, it can take me forever to fix a meal, because I will walk across the room, and forget what I was doing, walk back to the stove, then remember, etc. I also will forget what I am saying in the middle of conversations. Or worse yet, I will occasionally say something that doesn't make sense.

Veronica, I also take care of children in my home. The other day, I was watching a little girl who is 18 months old. She seems to have entered the "terrible two's" early, tantrums and all. I was changing her wet diaper, and she was having one of her tantrums (she doesn't like to hold still). This continued for a minute while I was picking up and putting her wipes and diaper cream back into her bag. Suddenly, the thrashing stopped, and she looked at her bag and yelled, "STOP!". I suddenly realized that I had started to put her wet diaper into her bag, also.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 5/16/2010 8:04 AM (GMT -7)   
Oh, the fog.  I've done so many stupid things and have forgotten so many important things.  I write everything down now or it's lost forever.  I'm more fortunate than you younger people.  I'm in my 60's and my friends are getting forgetful now so NOW they understand what I've been going through!  wink
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 5/16/2010 8:14 AM (GMT -7)   
Steppingstone that was great. I haven't done that yet. Although, I have forgotten to pickup dirty diaper only for a second. I forget the childrens names once in awhile. I try to fix lunch at night so that the next day it's a little easier on me.
But then there's times I foget my own name. LOL

All od a sudden I'll say something and B/f will look at me like I've lost my mind because it has nothing to do with the conversation that we are having at the time.

Sherrine, Mitch laughs at me cause I'm always making a list to go to the store, but if not I forget things to get. But then there are time I have the list and still forget things. LOL

Veronica
DX Fibro 12/31/07   Guess I can put the rest dx
PSTD  Bi Polar 2/04  Depression most of my life  IBS
RX Amitriptylin 25mg
 
God gives doesn't give us more than we can handle. So this too shall pass.


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 5/16/2010 8:38 AM (GMT -7)   
Veronica, I have my desk calendar and a Daytimer in my purse and write every appointment, lunch out, party, etc. on it and I don't do anything without referring to it in the morning.
 
I especially love it when I make a long grocery list and  forget to take it with me.  mad I never can remember what was on it.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


steppingstone
Regular Member


Date Joined Apr 2010
Total Posts : 372
   Posted 5/16/2010 10:31 AM (GMT -7)   
Sherrine, I am constantly forgetting my grocery lists after I write them down. On occasion, they make it to the car with me, but I forget to put them in my purse. I will think that I have left them at home, and will shop, thinking that I remember what was on the list. When I return to the store, I will discover the list, and will have part of the items on it, and a lot of things that aren't!

Veronica, I have forgotten the dirty diapers too, but fortunately, that is something that I notice pretty quickly. I have a six year old girl that I watch who constatly follows me around of evenings, critiquing everything that I do. So I know that if I "space out" too far, she will bring me back to reality pretty fast. She is pretty sharp, and if anything seems just a slight bit out of line, she calls me on that. She will say, "Chris, why is this here?" or "Why did you do that?". Bless her heart. There are times that she has me ready to tear my hair out, and other times that I thank Heavens for her (she's just what I need). If I say something that sounds strange, she will correct me. My husband and I have been together for so many years that if I have a foggy episode and say something weired, then correct myself, he says, "I know what you meant." The scarey thing is that he usually does!

I have tried to fix lunches in advance. However, I have a 19 year old son who stll lives at home, along with a 13 year old daughter. They both eat constantly. If I fix food in advance, it disappears! One day during the winter, I had just one child here for lunch. I started to fix a quick lunch for him. Just then, they announced over the radio that schools were going to be dismissing early due to inclement weather. I abandoned lunch and loaded the little boy up to go pick my daughter up (the school is just 5 minutes away). I happened to think that my son would beat us home, and would probably be in the kitchen, eating whatever he could find, before we returned. Sure enough, when we returned, lunch was gone, and I had to start all over again!

Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 5/16/2010 10:42 AM (GMT -7)   
Today I tried THREE times to wash one load of clothes! the first time I forgot to put the clothes in and the second time I forgot to close the lid and it went through the cycle filling up and emptying water and doing nothing else! hahaha
Sue

kathydownunder
Regular Member


Date Joined May 2009
Total Posts : 447
   Posted 5/16/2010 1:07 PM (GMT -7)   
I have one quesion what is a grocery list I go to write mine down then forget what I am going to do. My daughter when she is not working likes to go with me so she can make sure I get what I really need! Yep I buy things I never really need junk as my daughter calls it. Not junk food just junk.
Don't you just love the fog.
I get really embarresed by doing this. I hate a lot of things that go with this ilness.

kathy

steppingstone
Regular Member


Date Joined Apr 2010
Total Posts : 372
   Posted 5/16/2010 3:07 PM (GMT -7)   
Kathy, It's great that your daughter will go with you, and keep you from buying what you don't need. My daughter is 13, and a real shopaholic. I mean a real packrat. If we go to the Dollar Store for something, the cart will be filled with meaningless junk-cheap trinkets, jewelry, etc. that she has put in. Her room is usually a disaster. Sometimes I wonder how she walks from the door to her bed. Her dad is a milder version of the packrat. He is an auction junkie. He will go on Sunday afternoons, and come home with a load of stuff. Sometimes it's great-nice things that we really can use. But sometimes it's junk. I seem to wage a constant battle with the clutter. Sometimes when I'm home alone, I will go through the house, pitching some of the more meaningless stuff away. I usually fill up a couple of bags. The sad thing is they usually don't miss it! My daughter cannot bear to throw anything away, so she would have a fit if she knew.

Sue, your post is so funny because I did the same thing as you did today! I had been cleaning, and walked into the laundry room to change over a load. I intended to put another load in, but got distracted after putting the first load in the dryer. I went in to check about half an hour later, and realized that the washer was empty. I put some of the clothes in the washer, and decided to check and see what was in the bathroom hamper that could be added to the load. I got distracted again, and did not remember the load of laundry setting unwashed in the washer until I read your post and it reminded me! Thanks to your post, the clothes are finally getting washed. Now, if I just don't forget to move them into the dryer!

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 5/16/2010 4:45 PM (GMT -7)   
I can relate about the battle with clutter! about 15 years ago, when my kids were young, I actually had a secret storage unit (small) that I took some of their stuff to. I'd periodically rotate it. They never noticed!
  Achey 
 
    Diagnosed: Fibromyalgia, possible Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
 
Be yourself.  Everyone else is already taken.


steppingstone
Regular Member


Date Joined Apr 2010
Total Posts : 372
   Posted 5/17/2010 12:00 AM (GMT -7)   
Achey, that is a great idea! We live in a humongous older home with a two car garage, so there is really no excuse. My husband has the garage so crammed full of things that we can't even put a car into it. It is not all his, a few of the things are mine, but it is mostly what he has accumulated. His father passed away 41/2 years ago, and alot of it is things of his father's that he has not been able to part with. He keeps talking about it, but it never happens. We are having a new front porch built, a nice large one. He keeps talking about all of the things that we can put on it. If we are not careful, he will have it so crammed full of things that we won't be able to use it! Maybe the storage unit would be worth looking into.

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 5/17/2010 7:51 AM (GMT -7)   
Well, it did save my sanity for awhile!
  Achey 
 
    Diagnosed: Fibromyalgia, possible Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
 
Be yourself.  Everyone else is already taken.

New Topic Post Reply Printable Version
27 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Saturday, December 10, 2016 11:17 PM (GMT -7)
There are a total of 2,736,222 posts in 301,362 threads.
View Active Threads


Who's Online
This forum has 151452 registered members. Please welcome our newest member, sarajseri.
202 Guest(s), 4 Registered Member(s) are currently online.  Details
bluelyme, geop, Girlie, jrpsf


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer