Relief for something

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Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 5/15/2010 10:46 PM (GMT -7)   
I have degenerative disk disease in my neck, no curvature in my neck which causes compression and pain, myofascial pain syndrome in my neck, too, bursitis in both hips, coccyxadnia (or however you spell it), hypermobility joint syndrome, and fibro.   The coccyx pain makes it difficult to sit, the bursitis and fibro make it difficult to walk, and the neck problems make it difficult sometimes to use a cane.  The bursitis and hypermobility joint syndrome can be helped with exercise, but I have to go slowly on the exercise because of the fibro.  The neck problems make me dizzy and nauseaus.  If I could just get relief for the bursitis and neck pain, I would be so happy. 
 
I just wish there was something that could be done.  I am nearly ready to ask for surgery on neck and/or coccyx, but have heard mixed reports about the pain relief that come with the surgery.  Can't anything be done?  Surely not every single thing is forever?  Every single day at least one of these things is causing pain, but usually nearly all.
 
I have increased my exercise.  I was walking 10 minutes twice a day, but now I can go the same distance in 7 minutes on most days.  Nearly every day I walk another 10 minutes in the middle of the day.  I do light yoga almost every day and 10 minutes of cardio once a week, and arm curls with light weights 5 days a week.
 
Sue

ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 5/15/2010 10:54 PM (GMT -7)   
I'm sending you a soft gentle hug.

I too have degenerative disc disease but in my lower back, the no curvature in neck, I compressed the vertabrates almost 12 years ago.

What meds to you take. I take Trimadol 50 mgs. which sometimes works and sometimes I have to up the dosage, It does help.

It's good you are able to go for walks and everything else you are doing.
Veronica
DX Fibro 12/31/07   Guess I can put the rest dx
PSTD  Bi Polar 2/04  Depression most of my life  IBS
RX Amitriptylin 25mg
 
God gives doesn't give us more than we can handle. So this too shall pass.


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 5/16/2010 2:18 AM (GMT -7)   
Hi Sue, I literally feel your pain. In fact i just woke up with it. My back pain is also caused
by degenerative disc disease. I have had surgery, a lumber laminectomy on L-4 and L-5.
My surgeon said when he first opened me up there was alot of scar tissue that had to be
cleaned up and that it looked like I had prior surgery. It has helped, but I still get the bad
sciatica with it. My back pain does not go well with fibro or my MCTD. The physical stress can
cause everything else to flare. I took vicodin for back pain relief for nearly a year and
no longer take it. Exercise has helped alot with back pain and fibro and everything else.

I'm sitting with my bed buddy right now and did take a muscle relaxer. Exercise is a must
for me. For a while I was doing physical therapy. I still do the exercises like the pelvic tilts and
cat stretches each morning. Walking is something I try to do daily. Sciatica set in on Friday
so I haven't been walking. Everything has been flaring. Most days , I have been walking an
established route of 1.6 miles.

I'm hoping you can find some relief and checking out all the alternatives. I know how
wearing pain can be both physically and emotionally. Oh, I'm sure you might have seen
posts where I mention doing relaxation therapy and deep breathing . It doesn't take the pain
away but does help make it more bearable. Wisjing you the best!!!

Hugs, Robin


Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

Post Edited (crazykitty) : 5/16/2010 3:43:04 AM (GMT-6)


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 5/16/2010 8:13 AM (GMT -7)   
Sue, I have no curvature in my neck either...it's poker straight...and my spine curves to the right.  I have far more problems with my back then my neck.  I do bring my head down so my chin will touch my chest and then bend it to the side and bend it to the other side.  This does help keep those muscles more flexible so my neck doesn't hurt a lot.  I also massage the base of my skull in the back.  I usually develop knots the size of marbles on each side where the neck joins the skull.  This has helped me, too.
 
I'm so sorry you are having so much pain.  Anything dealing with the spinal column can restrict you.  I do hope you can walk though.  Also, try walking in water...not on water!  devil    That is good exercise and very gentle and will help keep your muscles flexible.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 5/16/2010 10:36 AM (GMT -7)   
I guess there is no surgery for straight necks. I remember when I did pilates that my neck grew stronger and I felt better. that is probably a good thing to start up again. Thanks for reminding me Sherrine.

That is amazing Robin that you can walk so far. How long did it take you to work up to that? It is funny that before fibro I walked all over Europe for nearly a month before my feet started hurting badly.

I am currently taking mobic and zanaflex every day and tramadol and percocet when needed. Thursday I took too much tramadol (one dose two hours apart) and was nauseaus for the rest of the day.

Another thing that works is to do things that get my mind off of the pain - like gardening. I have been planting flowers and pulling weeds this morning and it is glorious! Came in to make a list of things to buy: lobelia, kangaroo paw, irish moss - and sat down to check the forum. Maybe I am in the wrong field! I am soon starting a phd program in developmental psychology - that requires a lot of reading, writing, researching. Maybe I should have gotten my degree in horticulture!
:)
Sue

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 5/16/2010 12:15 PM (GMT -7)   
Sue, I have always been a walker. Before fibro the longest distance I have ever done
was just over nine miles. I did alot of walks for differant charities over the years. Also did
alot of backpacking and climbing. I have always enjoyed the outdoors.

My neighbor is also a walker and one day we just decided to walk to the new addition to
our subdivision, I wasn't really thinking about how far it was and just kept walking. Later
I realized it was longer than I had walked in a long time, so I hopped in the car to figure
out the mileage and was surprised it was 1.6 miles. My neighbor and I take our daily walk
out there and can watch the progression of the new houses being built.

Like you, I also enjoy gardening and need to pull some more weeds. I haven't put my annuals
in yet. I usually put things in that don't require dead heading like vinca and all sorts of choleus.

Sue you have worked so hard to get your degree. I think it is wonderful that you have
accomplished so much regardless of pain. You are a true example of where there is a will
there is a way!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 5/16/2010 9:28 PM (GMT -7)   
I am right there with you on the back pain! Where your neck is straight, mine curves backwards! I have 3 areas of scoliosis and stenosis. I just found all this out so I am still dealing with the blow. The reason they started checking into things was I kept falling because my left leg would just go completley numb and I would faceplany...in alot of REALLY embarassing places. I have my nerve conduction test Friday to see how damaged the nerves really are and if surgery will even be an option, if not I am looking at wheelchair bound, but I am hoping and praying that they can at least fix my lower back. I just don't want to loose the use of my legs...I am only 36 have a 12 year old son and 2 grandbabies ages 2 and 3 and 2 stepdaughters!. I kinda feel like I got a lot more miles left in me! Keeping my fingers crossed
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 5/17/2010 8:27 AM (GMT -7)   
frc, hoping something can be done to help your situation. Before my surgery my right foot
dragged behind me (dropped foot) as a result of sciatic nerve compression. I no longer
have the dropped foot. Because of DDD I do have scoliosis and when my back gets out
of whack my right hip will be higher than the left and then will settle back into place.
Wishing you the best of luck!!!

hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 5/17/2010 10:33 PM (GMT -7)   
I also have lordosis or kyphosis or whatever it is called with sway back. I am going to try to strengthen my neck. Driving probably makes some of the pain worse and I am in the car 2.5-3 hours a day! dang. Robin, what is ddd?
Sue

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 5/17/2010 11:09 PM (GMT -7)   

Hey Sue,  DDD is what we both have, degenerative disc disease yeah

Hugs, Robin

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