Muscle twitching and pain in calves and arches of feet.

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Mary41
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Date Joined May 2010
Total Posts : 74
   Posted 5/17/2010 9:50 AM (GMT -7)   
Does anyone have these problems?

Mary41
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Date Joined May 2010
Total Posts : 74
   Posted 5/17/2010 11:55 AM (GMT -7)   
just bumpimg

Libby08
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Date Joined Oct 2009
Total Posts : 434
   Posted 5/17/2010 11:57 AM (GMT -7)   
Yes.  I get both from time to time.  Not quite sure if it's fibro-related or not.

lostnomad
Regular Member


Date Joined Mar 2010
Total Posts : 60
   Posted 5/17/2010 12:13 PM (GMT -7)   
I get lots of muscle twitching, typically in my arms and thighs. Don't know if it's FM related or not. I've had it a while.

KellieJo
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Date Joined Apr 2010
Total Posts : 382
   Posted 5/17/2010 12:42 PM (GMT -7)   
I have arch pain off and on...muscle twitchs, spasms. I do have pain in my calf among many other areas that come and go.

I usually ignore the twitches, they are not painful. The pain 9 times out of ten I can ignore because I know it's gonna go away. Once in awhile the pain is constant and I will take over the counter meds.

shannahsmom
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Date Joined Jan 2010
Total Posts : 87
   Posted 5/17/2010 12:52 PM (GMT -7)   
I used to get this quite often but since I've started taking the magnesium and malic acid supplements I very rarely have these problems anymore.
Shannahsmom
Fibromyalgia DX Dec 2009, bilateral epicondylitis, IBS.... stay tuned more to come I'm sure.
 
No one is in charge of your happiness but you.
Don't take yourself so seriously, no one else does.
What other people think of you is none of your business.
Life isn't fair, but it's still good.


Sheila1366
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Date Joined Aug 2005
Total Posts : 384
   Posted 5/17/2010 4:12 PM (GMT -7)   
My daughter who also has FM/CFS gets this sometimes. Especially the pain in her calves. It just comes and goes for some reason. One of the unknown health problems that come with this illness.
I struggle with FM,Raynauds Syndrome,gastroparesis, IBS and depression. I trust in God with all things. Been a tough journey and it's not getting any easier but thanks to God and my family I am not alone.


Alcie
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Date Joined Oct 2009
Total Posts : 4648
   Posted 5/17/2010 5:14 PM (GMT -7)   
Check the lists of serotonin syndrome causing meds just in case. Wikipedia has a pretty good list. I had it from taking tramadol with Zofran. A lot of fibro meds are on the lists, usually in combination.
Alcie
 
 


bcb1200
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Date Joined Nov 2010
Total Posts : 29
   Posted 6/29/2011 11:44 AM (GMT -7)   
I'm sorry.  I read this and had to post.
 
You should really be checked out for lyme disease and Bartonella.  Lyme and it's co-infections (Bartonella, Babesia, etc) are commonly (constantly) misdiagnosed as Fibromyalgia.
 
A classic hallmark of Bartonella is twitching calves, burning shins, and sore bottoms of your feet.  Some people may also have anxiety, GI symptoms (Gastritis) and purple marks on the skin that resemble stretch marks.  Treatment is done with Levaquin or Rifampin for 1-6 months.
 
Blood tests for Bartonella are miserable as there are 40 different strains, yet we can only test for 3-4.   Bartonella is a clinical diagnosis by a Lyme Literate LLMD.  I suggest you find an ILADS trained LLMD who can diagnose you and get you well.
 
 
There is a book, the Lyme Disease Solution by Dr. S.  He lists Bartonella symptoms as:
 
Common symptoms of bartonellosis include:

___Fatigue (often with agitation, unlike Lyme disease, which is more exhaustion)

___Low grade fevers, especially morning and/or late afternoon, often associated with feelings of "coming down with the flu or a virus"

___Sweats, often morning or late afternoon (sometimes at night) - often described as "thick" or "sticky" in nature

___Headaches, especially frontal (often confused with sinus) or on top of head

___Eye symptoms including episodes of blurred vision, red eyes, dry eyes

___Ringing in the ears (tinnitus) and sometimes hearing problems (decreased or even increased sensitivity - so-called hyperacusis)

___Sore throats (recurring)

___Swollen glands, especially neck and under arms

___Anxiety and worry attacks; others perceive as "very anxious"

___Episodes of confusion and disorientation that are usually transient (and very scary); often can be seizure-like in nature

___Poor sleep (especially difficulty falling asleep); poor sleep quality

___Joint pain and stiffness (often both Left and Right sides as opposed to Lyme which is often on one side only with pain and stiffness that changes locations)

___Muscle pains especially the calves; may be twitching and cramping also

___Foot pain, more in the morning involving the heels or soles of the feet (sometimes misdiagnosed as plantar fasciitis)

___Nerve irritation symptoms which can be described as burning, vibrating, numb, shooting, etc.

___Tremors and/or muscle twitching

___Heart palpitations and strange chest pains

___Episodes of breathlessness

___Strange rashes recurring on the body often, red stretch marks, and peculiar tender lumps and nodules along the sides of the legs or arms, spider veins

___Gastrointestinal symptoms, abdominal pain and acid reflux

___Shin bone pain and tenderness


Bartonella is a bacterium that causes illness, the most commonly known of which is a disease called "Cat Scratch Fever."


Thousands of known cases of Bartonella occur in the U.S. each Year, with the vast majority of known cases due to bites from fleas that infest cats or infected dogs (may also occur directly from bites and scratches from infected dogs or cats).


Bartonella can also be transmitted by ticks that transmit Lyme Disease.


In fact, in a study published recently, deer ticks from New Jersey had a higher prevalence of Bartonella organisms than of Lyme organisms.


It is unclear whether the organism that we see transmitted along with Lyme disease is actually a Bartonella species (such as B. henselae or B. quintana) or is "Bartonella-Like Organism" (BLO) that is yet to be fully identified.


While BLO has features similar to organisms in the Bartonella family, it also has features slimiar to the Mycoplasma and the Francisella (causes tularemia) families.



tooyoungforfibro
New Member


Date Joined Jun 2011
Total Posts : 9
   Posted 6/29/2011 12:38 PM (GMT -7)   
YES!!
My muscles twitch a lot especially when I lay down at night to go to bed. It isn't even just in my legs I get it all over. The arches of my feet hurt too and I was told that it is plantar fascitis (sp?). I was told that if you put an arch support in your show it can help and make it feel better.
I have been tested for lyme disease an it was negative. Actually, I've never had a tick so it can be from fibromyalgia. At least that is where mine comes from.

bcb1200
Regular Member


Date Joined Nov 2010
Total Posts : 29
   Posted 6/29/2011 1:05 PM (GMT -7)   
Uh...I hate to tell you, but lyme is often misdiagnosed as Fibro. And tests are garbage. I never remember a bite, never had a bullseye rash, and also originally tested negative.

Just watch the 2009 oscar-nomicated film "Under Our Skin" and see how many folks were told "Fibro" and it was really lyme.

Tell your story at flash.lymenet.org and see for yourself!

Deranged
Regular Member


Date Joined Jun 2011
Total Posts : 21
   Posted 6/29/2011 1:29 PM (GMT -7)   
I get all over muscle twitches, bottoms of my feet will also ache as though I've been on them all day. But, it's only at night I get the twitches, and only at night/when I wake up that the bottoms of my feet hurt. My left calf often hurts and cramps up, but that's most likely a combo of the FM and varicose veins.

Here's some good reading:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2594623/
http://www.collagendiet.com/fibromyalgia.pdf (pg 137, p 1)

The second paper I linked to is actually a good read in it's entirety, if you can stand the dryness of it. The section I pointed to deals directly with the muscle twitching.
Fibromyalgia, SIJD, reactive hypoglycemia, gluten intolerance, bulge and annular tears, chronic infections

Shanny63
Regular Member


Date Joined Jun 2011
Total Posts : 339
   Posted 6/29/2011 3:19 PM (GMT -7)   
Yep got the twitches too sore feet top and bottom, all part of fibromyalgia I fear

bcb1200
Regular Member


Date Joined Nov 2010
Total Posts : 29
   Posted 6/29/2011 4:12 PM (GMT -7)   
You folks do realize that Fibro is the name they have assigned to a group of symptoms of which there is no known cause, correct?

Are you also aware that the latest research in Lyme disease shows that most Fibro cases are in fact undiagnosed lyme?

http://www.canlyme.com/fibrocfslyme.html

tooyoungforfibro
New Member


Date Joined Jun 2011
Total Posts : 9
   Posted 6/29/2011 7:45 PM (GMT -7)   
Actually, there have been studies done to show the difference in the brain that results in the fibromyalgia symptoms. It is actually a neurological disorder but due to the pain is gets treated by a rheumatologist. However, I will agree with you that fibro is often misdiagnosed as MANY things, not just lyme.

Marissa
tooyoungforfibro.wordpress.com

Deranged
Regular Member


Date Joined Jun 2011
Total Posts : 21
   Posted 6/29/2011 8:39 PM (GMT -7)   
bcb1200, attitudes like yours are why so many ppl suffer without family support. Do some real research into FM, your views could do with some educational updating. I'll help you along:

onlinelibrary.wiley.com/doi/10.1002/art.10893/full
www.springerlink.com/content/t112757w8086777u/
www.springerlink.com/content/e84p84200817k213/

If you can manage it, Google: fibromyalgia central sensitization, fibromyalgia hyperalgesia, fibromyalgia allodynia, fibromyalgia endocannabinoid system. Use the "scholar" drop down tab to get the actual research papers and clinical trials. There's hordes of them.

The break down, as already stated, is that FM is a neurological disorder. And the very last thing any FM sufferer needs is anyone insinuating this disease is not real. We get that enough from family, friends, and uneducated doctors.
SIJD, reactive hypoglycemia (sudden onset), IBS, irritable bladder, insomnia, gluten intolerance, bulge and annular tears (L4, L5, S1), chronic infections, varicose veins, sinus/Eustachian swelling...

Pregabalin - nerve pain, burning, tingling
Dicetel - IBS
Vesicare - irritable bladder
Sertraline + 5HTP - insomnia, FM
CoQ10 - FM
Amino Acids - FM

bcb1200
Regular Member


Date Joined Nov 2010
Total Posts : 29
   Posted 6/30/2011 3:26 AM (GMT -7)   
What do you mean attitudes like mine?

I'm not saying it isn't real. Believe me, I was told my illness wasn't real and that it was all in my head. I know it is real.

But...I question the root of it. I believe FIbro is really lyme disease. And the latest ILADS research prooves this. If you could meet the dozens of people I have met who were originally told they had "Fibro" and it was really Lyme & Co. All of these people are now COMPLETELY WELL and off medications, living normal lives after getting proper treatment from an ILADS trained LLMD. Some of these folks lost 10+ years of their lives suffering with "Fibro" when it was really lyme. Once they found an LLMD they got better.

Muscle twitching, pain in calves, and pain in arches of feet are HALLMARKS of BLO (Bartonella Like Organisms) - a co-infection of lyme disease. Most people are cured (of these symptoms) with 3-4 months of Levaquin or Rifampin with Doxycycline. But then usually have to treat other infections (Lyme, babesia, etc).

I"m trying to help. Check out the discussions at flash.lymenet.org and see how many ex-fibro sufferers there are.

bcb1200
Regular Member


Date Joined Nov 2010
Total Posts : 29
   Posted 6/30/2011 3:28 AM (GMT -7)   
THought i would post this. It is the complete symptom list of lyme disease (including co-infections.) If you have (or had at one time) more then 20, RUN to an LLMD.



PRINT AND CIRCLE ALL YES ANSWERS ( 20 yes represents a serious potential and Lyme should be included in diagnostic workup )
Symptoms of Lyme Disease

The Tick Bite (fewer than 50% recall a tick bite or get/see the rash)
Rash at site of bite
Rashes on other parts of your body
Rash basically circular, oval and spreading out (more generalized)
Raised rash, disappearing and recurring


Head, Face, Neck

Unexplained hair loss
Headache, mild or severe, Seizures
Pressure in head, white matter lesions in brain (MRI)
Twitching of facial or other muscles
Facial paralysis (Bell's Palsy, Horner's syndrome)
Tingling of nose, (tip of) tongue, cheek or facial flushing
Stiff or painful neck
Jaw pain or stiffness
Dental problems (unexplained)
Sore throat, clearing throat a lot, phlegm ( flem ), hoarseness, runny nose


Eyes/Vision

Double or blurry vision
Increased floating spots
Pain in eyes, or swelling around eyes
Oversensitivity to light
Flashing lights/Peripheral waves/phantom images in corner of eyes


Ears/Hearing

Decreased hearing in one or both ears, plugged ears
Buzzing in ears
Pain in ears, oversensitivity to sounds
Ringing in one or both ears


Digestive and Excretory Systems

Diarrhea
Constipation
Irritable bladder (trouble starting, stopping) or Interstitial cystitis
Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)


Musculoskeletal System

Bone pain, joint pain or swelling, carpal tunnel syndrome
Stiffness of joints, back, neck, tennis elbow
Muscle pain or cramps, (Fibromyalgia)


Respiratory and Circulatory Systems

Shortness of breath, can't get full/satisfying breath, cough
Chest pain or rib soreness
Night sweats or unexplained chills
Heart palpitations or extra beats
Endocarditis, Heart blockage


Neurologic System

Tremors or unexplained shaking
Burning or stabbing sensations in the body
Fatigue, Chronic Fatigue Syndrome, Weakness, peripheral neuropathy or partial paralysis
Pressure in the head
Numbness in body, tingling, pinpricks
Poor balance, dizziness, difficulty walking
Increased motion sickness
Lightheadedness, wooziness


Psychological well-being

Mood swings, irritability, bi-polar disorder
Unusual depression
Disorientation (getting or feeling lost)
Feeling as if you are losing your mind
Over-emotional reactions, crying easily
Too much sleep, or insomnia
Difficulty falling or staying asleep
Narcolepsy, sleep apnea
Panic attacks, anxiety


Mental Capability

Memory loss (short or long term)
Confusion, difficulty in thinking
Difficulty with concentration or reading
Going to the wrong place
Speech difficulty (slurred or slow)
Stammering speech
Forgetting how to perform simple tasks


Reproduction and Sexuality

Loss of sex drive
Sexual dysfunction
Unexplained menstral pain, irregularity
Unexplained breast pain, discharge
Testicular or pelvic pain


General Well-being

Phantom smells
Unexplained weight gain, loss
Extreme fatigue
Swollen glands/lymph nodes
Unexplained fevers (high or low grade)
Continual infections (sinus, kidney, eye, etc.)
Symptoms seem to change, come and go
Pain migrates (moves) to different body parts
Early on, experienced a "flu-like" illness, after which you have not since felt well.
Low body temperature
Allergies/Chemical sensitivities
Increased effect from alcohol and possible worse hangover

bcb1200
Regular Member


Date Joined Nov 2010
Total Posts : 29
   Posted 6/30/2011 3:30 AM (GMT -7)   
You may also want to watch this clip from the 2009 Oscar-Nominated Film about lyme called 'Under Our Skin'.

See how many people were diagnosed with "Fibro"

http://www.youtube.com/watch?v=WMuVy78fdC8

nana68
Regular Member


Date Joined Mar 2011
Total Posts : 474
   Posted 6/30/2011 5:28 AM (GMT -7)   
lyme's is not the only thing that can cause all those symptoms.I have been tested numerous times even a dna test for lyme's and is negative.One doctor says it is possible fibro while the other says it's caused by all the meds last year for respiratory failure.I was on lots of high power antibiotics some of which were floraquinilones and coritcosteroids which in some people can cause severe effects lasting years.
treacheal stenosis,fibromyalgia,panic disorder,ptsd and who knows what else

bcb1200
Regular Member


Date Joined Nov 2010
Total Posts : 29
   Posted 6/30/2011 2:32 PM (GMT -7)   
Lyme testing misses 70% of the cases out there. The CDC even admits that only 1 in 10 get properly diagnosed. That means out of 40,000 cases reported in the USA last year, they estimate the actual amount could be 10x higher (400,000!!!!!)

I tested negative originally as well. The test was plain WRONG.

MeGoSun
Regular Member


Date Joined Nov 2010
Total Posts : 389
   Posted 6/30/2011 3:33 PM (GMT -7)   
The only thing I have to say is that I was dx with Lyme and am being treated for it.
My test showed it was new. I believe it to be true.
I had been having problems for about 3 years.
My thyroid was part of the problem. I have been hypo for over 10 yrs.
I was feeling very bad. Didn't think all the pain, forgetfulness and tiredness was all due to my thyroid.
After getting my thyroid "settled" my Endo told me that he thought I had an autoimmune problem.
I had started going to a Rhmy the same time as a new Endo and GP.
For about 2 -3 months everything seems to be twice as bad as normal. That's when I was dx with lyme.
I was on 2 courses of Doxy. Guess what - I'm feeling better. Well, let's say that the pain isn't twice as bad, just bad. lol
I know I had lyme.
I know it was new.
I know that since taking Doxy I'm better.
I'm having all the same trouble I was having before lyme.
We each are different.
We each have different levels of pain we can handle.
We each know our own bodies.
We each know what we are going thru and should be there to HELP each other.
Both lyme and fibro are difficult on only on you but also for others to understand.
I have been doing a lot of reading and serfing to learn about both.
I wouldn't wish any of them on my worse enemy.
So like I tell my kids - you can only do so much and then it's time to stop.
Hypothyroidism
Lyme
Fibromyalgia
Raynauds
Hypokalemia
Hemochromatosis

May the sun shine on you and warm your heart.

bcb1200
Regular Member


Date Joined Nov 2010
Total Posts : 29
   Posted 6/30/2011 3:36 PM (GMT -7)   
Uh..if you were only treated with 2 weeks or 2 courses of antibiotics than you STILL have lyme.

I've been on multiple antibiotics for over a year. Most people need at least 1-2 years of therapy before getting well.

So...you likely still have it.

You see...the mainstream doctors only treat for 2-4 weeks. And that isn't enough. ILADS doctors treat open ended until all symptoms are gone for 2-4 months. They believe lyme can hide and evade the antibiotics and immune system. Modern research has supported this with the recent discovery of a lyme biofilm.

This is all taked about in "Under Our Skin".

Shanny63
Regular Member


Date Joined Jun 2011
Total Posts : 339
   Posted 6/30/2011 4:39 PM (GMT -7)   
Sorry if I sound dumb here but I'm from Australia do we have Lyme disease here cause I had a flea bite just before I had my last flare up..

Moonsinger
Regular Member


Date Joined May 2011
Total Posts : 227
   Posted 6/30/2011 5:53 PM (GMT -7)   
From what I am finding online, Shanny, they do not believe that lyme disease is carried by any varieties of ticks in Australia. Though they may carry other bacteria that can mimic lyme disease.

http://www.health.nsw.gov.au/factsheets/infectious/lyme_disease.html
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